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“Kicking Cancer's Ass (Again!)”

$19,275 of $60,000 goal

Raised by 193 people in 10 months
Well my dear friends not the update I wanted to provide but life is like that: unexpected.  The cancer has spread. Because I have such an aggressive and fast growing tumor... the doctors say that I only have a two month window to fight this hard or my chances of winning decrease significantly (but you know me, I’ll never give up!)

***First again thank you to everyone who's helped me--through prayer, time, money, thoughts whatever it is and was I THANK YOU! ***

It's not that the  cancer has spread that has me the most angry and troubled it's that I’m a 44 year old black woman who has never smoked a day in her life--n​ever a heavy drinker​ and yet I have lung cancer!

It’s imperative that I throw everything at this disease including the kitchen sink. I've started a new clinical trial BPT.   BPT works in 1 out of 5 people and I'm determined to be that 1! !! There are three holistic clinics renowned for their alternative healing methods that I want to try along with my clinical trial.   The Rythmia Clinic in Costa Rica https://www.rythmia.com  and The Optimum Health Institute http://www.optimumhealth.org in San Diego and Greenbridge Medical https://www.greenbridgemed.com in Santa Monica.
​​
Insurance (again thank you Stacy) won't cover it, some meds it won't cover and there is day to day life i must attend to.  I haven't been able to work during this time and just as I was getting close to taking on a couple of clients a week I was hit in the face with this new diagnosis.  I'm fighting another round and I can't work.  I was initially denied disability but we're applying again in light of this new battle but not sure I'll get it.    Now how are we here...

Many of you know in October of 2017 I went in with what we thought was a canker sore on my tongue​.​  One biopsy later and it was a squamous sarcoma: Cancer.     A 24 hour surgery (where my jaw was split open, tumor removed, tongue rebuilt by creating a flap using skin, tissue and nerves from my left forearm) later and I was on the path to healing.  ​ I did 2 1/2 months of Radiation and Chemo.  Cancer! Fuck you!!!!!  We were hopeful that we got it all and stopped it​
in its tracks…we did not.   My follow up scans in late April (protocol dictates 3 months from the time of your last radiation/chemo) found the cancer had spread to my lungs.  Oh at first we thought, we hoped (oh how hope springs eternal) it was an infection and we ran tests and tests an tests. I was poked and prodded and stitched up and after two procedures to biopsy the nodules in my lungs the final results came mid June.  Yep! It's Cancer.  Fuck you!!!!!  ​

After some conversations with my oncologist, the wonderful Dr. Mita,  that sounded an awfully lot like Charlie Brown talking to any adult (whaa, whaa, whaa) we settled on a new treatment ASAP.  Guys it was hard to hear that I had to start a new battle and I had yet to heal from the last--I'm just starting to chew and God bless TASTE food.  I was on the precipice of healing and these fucking tentacles wrap round me and snatch me back.  But I digress, Dr. Mita and I spoke about my treatment options.  I decided to go with a new clinical trial BPT.  It started Thursday, June 21st.   My treatment is on Thursdays--two weeks on then one week off and so on and so on.  The treatment consists of two chemo meds and is all IV meds and since my first fight my veins are for shit I had a port implanted in my right bicep so they don't have to try to find a good vein.  I come in and they just access that port and they can draw blood (so much lab work) and give me the meds no problem.  Each session is about 8-6 hours so I sit with my girl (Jess, my love) and/or friends and family.  I love having the company to chat, laugh, cry and eat (june brings the best snacks).   Look folks I’m coming to this forum to ask for help in this battle because I cannot do this alone.


28182782_1530559566302042_r.jpegTrying to get a family portrait:  I should just pull my teeth out.


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YES! YES!! YES!!! The treatment is healing!
The 2nd CT Scan Update we learn if the immuno therapy is continuing to work...to have a positive affect on ridding my body of cancer. There were no new growths. None. There were a couple (2) that looked to have shrank. The others remaine the same. We must also remember that I went from clear lungs to suddenly 10 spots in my lungs to now no new growths.

I'm able to eat soft foods now so that has made life much better--my mood better. I gained a couple pounds back. I'm getting stronger. I still have frustrations with it being able to eat a meal (blended meat soup doesn't roll off the tongue--but it is yummy). Not being able to hike/walk/work the way I want-need is a pain in the tush.

The treatment is working. The Lord is working. The Keto Diet is working. The CBD RSO is working. It's all working so I will continue to continue? I enjoy living.
Welcome to the Update!
One of us surely can work this...
?????
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Hello and Thank You and it's been a while between updates...it's been a difficult few weeks so lots of processing. Three weeks ago today I had yet another surgery. This one was to repair my jaw. The bone wasn't healing causing me not to eat--found the bone had too much dead area and a bad tooth. We went in and took the tooth, shaved away the dead bone, put in new and plates and bands to wire it shut. The plates have to stay for a little more than a month.

I had one week of full wired. I couldn't use a straw so that week was so hard and frustrating that i wanted to ( & did) cry and hit and throw shit. The next week (as the 1st part of video shows) we took out most of the bands. Still couldn't use a straw so more weight loss. Last week we took out the last of the bands but still can't chew or use a straw. More weight loss. The swelling gradually has gone down which is good but i still can't eat enough food so I had to make the hard choice to have a feeding tube put in.

Without enough nutrition I can't do as much and if you know me you know i can't abide the thought of sitting and doing nothing. It made it a touch easier to decide to have the tube put back in. Anyway as the second part of the video shows we went to have the tube through the nose put in. Sadly I could only handle it for 30mins. The radiation treatment i had caused too much interruption and the throat is tight and narrow. I began to choke on the tube so out it came.

As these weeks have sucked the past few days has found that I'm at least better able to use a straw...a big straw but that's good still with the amount of weight I've lost these past three weeks I have to gain some weight back or at least remain stable...if i don't then next week we are going to have the J-tube feeding tube put back in my stomach. It's not something I relish doing but I have to get calories in so I'll do it.

Yes the good news is that the tumors in my lungs are shrinking. There are so many facets to all this and it's fucking hard sometimes. It's been a while because it's been difficult for me to share how hard these past few weeks have been.

Alright i'll keep you updated. Keep the prayers and good thoughts coming...
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I AM THE !!!! The TREATMENT is WORKING!!!! All of the tumors have shown shrinkage! All! And no new ones have appeared. The tumor on my arm is a cist. Annoying lil bugger can be dealt with after we deal with my mouth. Which brings me to tomorrow. Tomorrow I'm going in to have the plates repaired and two teeth extracted. later I'll have a bridge put in--will expund on that at a later date. Anyway the healing and promoting healing will be the challenge moving forward. since The radiotion affected the bones and teeth will be the

It was important that I share the good news
When God and the universe is that good.
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wednesday was a the day. Scans Day. These scans are the first since I began the clinical trial. the hardcore cbd drops and tar. We will learn next week if the treatment is working. I wanted to update and be really real with you.

But first I'd like to interrupt this regularly scheduled program to bring you: Thank you Suzanne. June. Sara. and Julia. Your visit last week was so very nice especially since i was sort of out of it and not very much fun but thanks for the homemade bone broth. Love

Now back to your program:
Jessica said i should be more real with you and not be so on the sunny-side of the street girl. I told her that's not who I am...not gonna complain about all things because I usually believe it will be all good. then i took a breath and sincerely thought about what she said. It's not complaining to share what's happening and if in those moments I want to put my fist through a wall (not good on the knuckles but thankfully we had a bag of peas) then yea I'm gonna do that.

Anyway on the real it's hard. and these past three weeks have been the hardest. I just found out the infections in my tooth and bone are because the plates they put in, after they broke the jaw to repair the tongue, have begun to shift and cause bone structure problems. I'm more than likely going to lose one maybe two teeth (i said i'm cool with that but there must be a plan to replace them cuz the meth look ain't cute).

So I'm having yet another surgery next Thursday to take out the plates and put in new ones. I admit to being angry and frustrated and poor jessica and even our babies are taking the brunt of it. It's hard to keep doing all you can to fight and be positive and just when you think 'ahh a break' you get kicked in the teeth. And it's all so scary. Scary because of the what if? Right? the i'm not sure what's going to happen and I can't really control that so angry again. frustration again.

What i find difficult/straining is watching those on the journey with you. Your partner there for it all, walking those steps with you--seeing their hurt and anger and frustration and their hope getting pricked... but there are steps we take alone. no matter how involved and down in the mire they are with you if the unthinkable happens I'm the one walking those steps. she can't come with me therefore she can't know what it's like to face that even if it's a fleeting momentary thought it's a thought I have. just as I can't know what it's like for her to watch me and if the unthinkable happened she'd be on a path i couldn't go down.

Anyway the scan results will be in next week and we'll see where we are and what it means to be wherever we're going to be.
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