269
269
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Teammiraclemirryn

£5,503 of £2,500 goal

Raised by 272 people in 4 months
My name is Mirryn and I have a very rare disease called CLN1 Battens which there are very few of us who have this. Due to this I can not sit or stand on my own and have to lie down all the time. While spending time at Rachel House I have the use of a fantastic seat called a P Pod which I love and it protects my posture while I am lying in it. This seat cost lots of money and I would love if you could help me and my team raise the money to help to purchase this fantastic seat.
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This is the hardest thing I have ever had to write my beautiful granddaughter Mirryn lost her fight and gained her angel wings on Sunday 23 June.
It was a very peaceful end with her family all around her.
The money that is left in her fund will help towards the cost of her celebration of life and I would like again to thank everyone that donated
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Due to your kind generosity Mirryn was able to have her early disney birthday party. There was many characters there and family and friends were dressed up as disney characters. There was animals there to pat and play with which Mirryn loved. All of this would not have been possible without your kind donations. A huge thank you from her family.
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£5,503 of £2,500 goal

Raised by 272 people in 4 months
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JO
£10
June OConnor
22 days ago
£50
Jane Eggleton
22 days ago
VL
£10
Vicky Little
22 days ago
LS
£15
Lynn Sutherland
22 days ago
AR
£10
Arash Remasi
2 months ago
EC
£20
Eleonora Consiglio
2 months ago
£50
Anonymous
2 months ago
EC
£50
elia caliendo
3 months ago
GF
£10
Giovanni Fini
3 months ago
£50
Anonymous
3 months ago
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