My name is Mirryn and I have a very rare disease called CLN1 Battens which there are very few of us who have this. Due to this I can not sit or stand on my own and have to lie down all the time. While spending time at Rachel House I have the use of a fantastic seat called a P Pod which I love and it protects my posture while I am lying in it. This seat cost lots of money and I would love if you could help me and my team raise the money to help to purchase this fantastic seat. ￼￼￼+ Read More
Due to your kind generosity Mirryn was able to have her early disney birthday party. There was many characters there and family and friends were dressed up as disney characters. There was animals there to pat and play with which Mirryn loved. All of this would not have been possible without your kind donations. A huge thank you from her family.