Lee Lee Jones - In A Moment

$65,125 of $100,000 goal

Raised by 317 people in 10 months
AM
Anita Motion
on behalf of Lee Lee Jones
 COATESVILLE, PA


I am writing today as a friend of the Dutton and Jones family and someone who admires and loves Lee Lee.  As many of you know on December 22, 2016 Lee Lee suffered a traumatic brain injury in a riding accident.  Lee Lee spent 7 1/2 weeks in ICU at Christiana Hospital with multiple complications to her brain injury.  When stable she was transferred to Bryn Mawr Rehabilitation Hospital in Media, PA.  Lee Lee has made significant and definite steps forward in her recovery. It has taken an enormous amount of determination by Lee Lee with a lot of support from her friends and family.  As her  Doctors, nurses and therapists say "this is a marathon, not a sprint".
Lee Lee remains at Bryn Mawr Rehab where she receives around the clock care and copious amounts of therapy - Speech, Occupational, Physical and Recreational.  Once she is discharged from BMR, Lee Lee will continue with outpatient therapy at Bryn Mawr Rehab and will need additional nursing help at home.
Her release date has been set to the last week of August.
A wheelchair accessible house, van, home nursing support and daily therapy are just a small list of things that Lee Lee will need that won't be covered by insurance.
Lee Lee's family have been overwhelmed by the love, encouragement and support given by friends and the whole community.
As friends we can help relieve the financial burden facing Lee Lee's family.  
#LeeLeeStrong #TeamLeelee
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I recently spoke with Evie, Lee Lee's Mom. She was so excited about the progress Lee Lee is making I urged her to help me with an update. Here goes!

I am excited to share with you an update on Lee Lee as we approach the year and a half mark since her accident. This morning when I came into her room and said Good Morning Lee Lee replied "Good Morning" in a loud and clear voice and then said "how are you?" Her voice is getting stronger and stronger and her ability to converse continues to improve.

Lee Lee now eats nearly 100% by herself, although using a spoon is a bit more challenging. We had a big milestone last month, when her feeding tube was removed. Another big milestone - Lee Lee got a new wheelchair that she can propel herself by using her right leg. It requires a great deal of core strength as there is no head rest, trunk support or tilt. This is a monumental step forward and is helping Lee Lee get stronger and stronger. Her ability to control her trunk helps with her walking - we hope to have a walker at home soon so she can motor around at home as well.

Lee Lee continues to work with her wonderful therapists at Bryn Mawr Rehab three days a week. She also works with the wonderful Lindsay for Occupational Therapy at home on Tuesdays and Thursdays, as well as Music Therapy on Saturdays. This past month we have started acupuncture twice a week. She is one busy girl.

During her down time, which isn't much, Lee Lee enjoys going to the barn to see Ollie, taking walks around the farm, listening and singing to music with "Alexa" and most of all visiting with family and friends.

" I haven't come this far to only come this far" is our mantra that we say daily! She is strong and determined as are we!

Thank you for your continued love and support.

#teamleelee #leeleestrong
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Lee Lee continues to inspire us with her progress. Three days a week she goes to Bryn Mawr Rehab as an out patient for therapy along with Hyperbaric Oxygen Therapy twice a week. Recently Lee Lee started music therapy which has shown to have great results with TBI patients. Check out the video (Gracie in the background as back up singer!)
Also shown photo from recent visit with friends L to R Becca, Liz and Marissa.
Thank you for your continued support - please share!!
L to R Becca, Lee Lee, Liz and Marissa
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We wanted to share this photo from Tuesday afternoon of Lee Lee peacefully watching a movie while undergoing her HBO therapy.
Lee Lee in the hyperbaric oxygen chamber
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Lee Lee has been home for a month!!!
She is so much stronger. Holding her head up pretty constantly. Eating really well and saying some new words. Lee Lee is often able to stand with only slight support and assistance.
She still has intensive therapy at Bryn Mawr Rehab Outpatient Center three days per week. Lee Lee has also started Hyperbaric oxygen therapy and on October 28th Lee Lee will begin music therapy. Research shows that these alternative treatments have very positive effects on Traumatic Brain Injury recovery.
Lee Lee has medical aids who support the family with her care for fourteen hours per day.
All the care and treatment wouldn't be possible without your support and donations
UD friends Joe and Liz
Those Eyes!!!
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Read a Previous Update
Wendy Hunter
23 days ago

Such great and wonderful news...it may not seem like all that much to you, but it's HUGE. Keep on rollin', Lee Lee!!!

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Wendy Hunter
6 months ago

Lee Lee, You are the best - and so lovely, too! We are all thinking of you!!

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$65,125 of $100,000 goal

Raised by 317 people in 10 months
Created August 7, 2017
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KR
$100
Karen Ramsing-Bixler
22 days ago

So very excited about this wonderful update on Lee Lee’s progress! Go Lee Lee! Always in my heart and prayers!❤️

Wendy Hunter
23 days ago

Such great and wonderful news...it may not seem like all that much to you, but it's HUGE. Keep on rollin', Lee Lee!!!

+ Read More
Wendy Hunter
6 months ago

Lee Lee, You are the best - and so lovely, too! We are all thinking of you!!

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