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ALS Advocacy trip to Washington DC

$1,855 of $5,000 goal

Raised by 32 people in 11 months
Kathryn's Blog her journey with ALS 

Please help us to go to Washington DC for ALS Advocacy day on May 12-14th. We get to meet with our Congress people and Senators. PALS people with ALS and CALS caregiver of ALS people present vital legislative changes to help people with ALS and other disabilities. For example last year a amendment was presented to eliminate the end date for the Steve Gleason enduring voices act. This passed the Senate and Congress and was signed into law by President Trump this past April.  https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=4&cad=rja&uact=8&ved=0ahUKEwjzlPLxzMvZAhUZ0IMKHTSNDuIQFgg5MAM&url=http%3A%2F%2Fwww.medicareadvocacy.org%2Fan-update-on-the-steve-gleason-enduring-voices-act%2F&usg=AOvVaw1zdV7kYOlToiTmN3Xg-4rp

This trip we paid out of pocket last year and cost upwards of $3000.00. This year due to Kathryn's ALS progression we will need to rent medical equiptment to have at the hotel so she can participate at the conferance. Please help fight in Kathryn's struggle with ALS and Disability advocacy by donating to this site. I am now on a leave of absence from work so our funds are limited.
Thank You all so much.
Joe and Kathryn


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Thanks to everyone who helped get us here. It’s time for me to close down this fundraiser.
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Although we are here already you can still help fund this trip if you would like to help.
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The walk to defeat ALS is behind us. This is our next hurdle. Please help only 2 weeks away
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$1,855 of $5,000 goal

Raised by 32 people in 11 months
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BD
$25
Bill and Maggie Dolbow
9 months ago
AB
$55
Amy Burkhalter
9 months ago
MG
$25
Mark Germana
9 months ago
SD
$40
Stacie Dye
9 months ago
$25
Anonymous
9 months ago
RB
$10
Robert Buchanan
9 months ago
AG
$25
Alyssa Glogowski
9 months ago
AT
$25
Anne Tofalo
9 months ago
SB
$50
Sarah Broz
9 months ago
LG
$25
Laura Gibney
9 months ago
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