Taylor Marti, Greenville IL

$6,007 of $8,000 goal

Raised by 86 people in 9 months
Created August 16, 2018
32207682_1534477410319063_r.jpeg32207682_1534472205990983_r.jpeg32207682_1534472221706941_r.jpegHi, my name is Taylor Marti and I'm 5 years old.  My mommy and daddy's names are Joe and Rachel.  One night I had a nightmare and when I woke up, my face felt funny and my smile was crooked.  Mommy and Daddy took me to Children's Hospital.  They said I had something called Bell's Palsy and that I'd be OK but a couple days later I was back at the hospital.  We had to stay all night.  In the morning they put me in this big machine to take pictures of my head.  I tried to be so brave 'cause Mommy and Daddy looked worried.

We're all still here at the hospital.  Strange people come to my room and take me to other rooms where there are more machines.  Sometimes we get to stay in my room.  They are trying to be so nice but sometimes what they do really hurts and other times it's just scary.  I want to tell them to just leave me alone. 

I don't know what's wrong with me but I've heard them say something about tumors in my brain and my spine.  Mommy and Daddy always look so worried and sad but they still play games with me to make me feel happy.

I had a surgery and my head hurts really bad now.  Mommy and Daddy still look so worried so I keep trying to be brave.  I've heard them say I have to stay here for a while to get medicine for the tumors.  I don't think I'm going to get to go to Kindergarten with my friends this year 'cause I have to keep coming back for a while.

I hate all these machines and medicine and needles but it must be free 'cause Mommy and Daddy don't leave me to go to work now.  They stay here with me EVERY DAY.   I like that part 'cause I hurt sometimes and I'm so sleepy.  I like it when I wake up and they're here. 

I wonder sometimes who's helping Grandma Cindy get eggs from the chicken house and riding the lawn mower with Papa Dale.  I miss playing with my big sister, Natalia, playing games with my cousins and going to Grandma Linda and Papa Linus' house.  I know Papa Steve is going to need my help riding the tractor when he cuts the beans.  I hope they can make it OK without me while I'm in the hospital.

I love Mommy and Daddy so much.  I know they don't like to ask for help or money but if they have to keep bringing me to St Louis every day, they'll be using a lot of gas, eating in different places and missing more work.  So if you could please help them just a little bit, maybe I won't have to worry about them as much.

Oh, I almost forgot.... When you say your prayers,  please say an extra prayer to God to make me all better so I can go home and enjoy being a little boy again.  I know the prayers will work, 'cause Jesus loves me.

Thanks for all you can do
Taylor

NOTE: Taylor was diagnosed with a rare, aggressive childhood brain cancer called Atypical Teratoid Rhabdoid Tumors (AT/RT).  He has three tumors in the lining of his brain and two spots in the lining of his spine.  His treatment will include six weeks of Proton therapy and about a year's worth of inpatient Chemo therapy that will be for an average of one to three days a week.
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PRAISE THE LORD! PRAISE THE LORD!

We finally got Taylors official MRI results back from last week.

Primary tumor in Aug. was 50 mm×45mm×40 mm. This tumor now measures 28mm×24mmx33mm!

The Secondary was 41mmx28mmx35mm. This tumor now measures 13mmx4mm. This is the tumor he had surgery on.

The tertiary tumor was located near the very top of the brain stem. It was approx. 10 mm×10mm. It DID NOT SHOW UP ON THE SCANS! We will know more for sure on the next scan if it is truely gone or not.

Spine spots: Located between the shoulder blades- these showed up post op. The biggest spot was 6mm is now 3 mm. One spot is now smaller than a pin point. The 3rd spot was not visible on this scan (we didnt even know about a 3rd spot).

He does have some "thickening" of the nerves at the tailbone area. This could just be due to radiation. His secondary tumor still fills his auditory canal on his left side. Not positive yet on whether his hearing is affected currently or not. Some of his chemo meds can cause hearing loss.

They also said that in the beginning that the tumors were solid looking on the MRI. Now they appear cyst like and "fluid filled". Which means the center of the tumors are dying!!!!

God has touched Taylor with a healing hand! I pray he continues to bless him. We are so in awe of his abilities.
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Rejoice in the Lord Always!

We got an unofficial read from his Radation/Proton Doctor on his MRI. They will not be sending this MRI off for an official read, it was for Radiation/proton planning purposes only. But doc said initially that all masses in his skull appeared stable (not changing in size). Which is the best we could hope for because it is still very early yet. She then looked at his MRI from the day after surgery. She compared the primary mass in size and measured them. His largest mass behind his right eye before treatment measured 5 cm. Today it measured 4 cm. Treatment and prayers are working!!!! So happy tears today! Love you all and thank you for all of the prayers! They are working!

This weeks sermon at FCC was about sharing your burdens with others so that they can help you through the hard times. To our fellow congregation members and to all of our Prayer Warriors....Thank you for your support! It means everything to us!
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$6,007 of $8,000 goal

Raised by 86 people in 9 months
Created August 16, 2018
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