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Swansons

$23,772 of $25,000 goal

Raised by 177 people in 6 months
Created September 8, 2018

The Swansons have been suddenly faced with major illnesses with both of their kids related to a rare genetic condition called Neurofibromatosis Type 1. 

Oliver (1) was referred to Seattle Children's Hospital because he had high white blood cell count. On 9/14, he was diagnosed with JMML, which is an extraordinarily rare type of leukemia. They see about 1 case per year at Children’s. The doctors said it has a 50% survival rate, but Oliver’s hopefully is higher than that since they caught it early.

Eliza (2) has optic gliomas (non-malignant but growing tumors) behind both her eyes. These are non-cancerous and not life-threatening, but she will require weekly chemo treatments in Seattle for a year.

Please help lift some of the financial burden from the Swansons who will be dealing with medical, travel, time off work, and other expenses. 

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Update from the Swansons:
They have officially diagnosed Oliver with leukemia. They plan to start treatment in about 2-3 weeks. It will be several months of in and out of the hospital with chemo and then a bone marrow transplant.

They will do the bone marrow transplant from the National registry - you should sign up if you aren’t registered! https://join.bethematch.org/s/?language=en_US Parents/siblings are not great options for this type of leukemia.

Oliver has JMML, which is an extraordinarily rare type of leukemia. They see about 1 case per year at Children’s. The doctors said it has a 50% survival rate, but Oliver’s hopefully is higher than that since they caught it early.

We are so in shock and confused why our family is being hit so hard with these medical problems. We are trying to trust God’s plan and know someday there will be a time with no more pediatric cancer units and no more suffering. Until then we are going to fight with all of our might for our kids and we are so thankful for every single person who has reached out to us.

A lot of people have asked how to help - we have a GoFundMe page set up to help with our out of pocket max for insurance ($7,000 a year), travel to Seattle, and missed work for Kara. Gift cards are also super helpful. Freezer meals are helpful. Most of all we want every person possible praying every day for healing for Eliza and Oliver. Thank you everyone for your support
+ Read More

Posted by Celeste Fiorillo
6 months ago ago
Update from the Swansons:
They have officially diagnosed Oliver with leukemia. They plan to start treatment in about 2-3 weeks. It will be several months of in and out of the hospital with chemo and then a bone marrow transplant.

They will do the bone marrow transplant from the National registry - you should sign up if you aren’t registered! https://join.bethematch.org/s/?language=en_US Parents/siblings are not great options for this type of leukemia.

Oliver has JMML, which is an extraordinarily rare type of leukemia. They see about 1 case per year at Children’s. The doctors said it has a 50% survival rate, but Oliver’s hopefully is higher than that since they caught it early.

We are so in shock and confused why our family is being hit so hard with these medical problems. We are trying to trust God’s plan and know someday there will be a time with no more pediatric cancer units and no more suffering. Until then we are going to fight with all of our might for our kids and we are so thankful for every single person who has reached out to us.

A lot of people have asked how to help - we have a GoFundMe page set up to help with our out of pocket max for insurance ($7,000 a year), travel to Seattle, and missed work for Kara. Gift cards are also super helpful. Freezer meals are helpful. Most of all we want every person possible praying every day for healing for Eliza and Oliver. Thank you everyone for your support
+ Read More

$23,772 of $25,000 goal

Raised by 177 people in 6 months
Created September 8, 2018
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BR
$425
Britta Roper
2 days ago
$25
Anonymous
1 month ago
$100
Laura Astle
1 month ago
$220
Anonymous
2 months ago
$1,000
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2 months ago
JN
$25
Jeff-Vicki Noble
2 months ago
BC
$15
Beth Collingsworth
2 months ago
BR
$200
Britta Roper
2 months ago
MO
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SK
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