Little Kids Big Dreams
Lizzy and Mason have a rare genetic disorder called Ligase IV deficiency. Ligase IV effects the immune system, Mason and Lizzy had a bone marrow transplant to fix their immune system. Ligase IV is a very complex disorder. The kids are believed to have a form of primordial dwarfism. Mason has had many complications post BMT. We travel to Cincinnati every few weeks for Mason's doctor appointments.+ Read More
Posted by Justin Slifer
39 months agoShare
Currently, Mason and Mom are in Cincinnati getting a series of treatments called photopheresis. This treatment will take a minimum of six months to one years time. However, we know families who's kids have received this treatment and really turned their lives around. We are hoping for the same results for our Mason. Thank you to those who have followed our journey and double thanks to those who have contributed to the account. Because of this generosity, our family is able to be together more often than not and Mason can get the best care possible.