Steph Parrs Brain Tumour treatment

£6,405 of £100,000 goal

Raised by 183 people in 32 months

Hello  and thank you for visiting our page myself Neil parr and my wifeStephanie have set up this go fund me to try and raise money to enable us to pay for treatment for stephs brain tumour

STEPHS STORY: Steph was a fit and we thought healthy 31 year old until a completely out of the blue seiz ure in 2012 led to the discovery of a large grade 2 astroccytoma brain tumour in stephs right temporal lobe,the only option of a cure was surgery to try and remove the tumour. Stephanie therefore had the surgery in August2012.the 9 hour operation took place at the QMC in Nottingham and was originally thought to have been a success and so no further treatment was required, only 6 monthly follow up observation scans.  

Unfortunately one of these scans in 2014 showed the tumour was growing  and now incurable,so steph underwent a 6 week daily radiotherapy  course to try and halt the growth of the tumour for as long as possible. The radiotherapy was extremely draining but when  finished steph was luckily in relatively good physical health and we were able to live an active life making precious memories, then in October 2015 we were over the moon to discover that steph was expecting ting a baby, everything progressed well until steph was 36 weeks pregnant, at which stage the tumour grew again and this time the growth has had a serious effect on stephs physical health and has left her almost completely paralysed  down her left hand side , unable to walk and wheelchair Bound outside of the house. the only hope of curing g this paralysis is to try and shrink thusing chemotherapy.  Stephanie began a chemotherapy treatment, temozolide 2 weeks after the birth of our precious daughter  lily -rose. After 3 cycles we were delighted  to find out the chemo had shrunk the tumour by a 3rd and so the chemo continued and we had high hopes for its continued success  However after 1 more cycle we were devestatedto be told the chemotherapy had stopped working and the tumour is now growing again, we were offered one last treatment option which is another chemotherapy, pcv. Steph is now on her 2nd cycle of this with an MRI scan due in December 2016 to see if it is working, if this is not the case then there are no more treatment options available for stephs tumour on the NHS which means the tumour will almost definitely continue to grow and  ultimately be fatal

 We have therefore been constantly researching other options that offer some kind of hope which are inevitably expensive private Treatments both in the uk and abroad. We are desperate to find treatment to halt the
Growth or best case scenario shrink the tumour and at the same time help improve stephs phsysical health which is very poor at the moment, she is unable to live an  independent life andlnow requires a full time , carer herparalysis having a massively detrimental effect onher quality of life and theonly hope of some improvement in her symptoms and the chance to try and live a relatively normal life and create happy memories as a family  is to find a way of shrinking the tumour


The avenues we have explored so far include a private drugs trial being run by care oncology clinic on harley street London, other options that we are investigating are immunotherapytreatment for which we have a consultation at the Private clinic in London. Obviously all of these consultations and treatments we need to explore are funded by ourselves and with steph physically unable to work this is going to be very difficult for us to fund.

Since steph was diagnosed in 2012 we set up Parrs beating brain tumours fund and with the help of friends and family we raised over £22000 for the brain tumour charity which we are very proud of however due to the change in Stephs health we are now changing our fundraising priority and asking for continued support to fundraise,  but now the money will be used to fund any more treatment options we find are available over the coming weeks and months

We have set a high target of £100000 as we have been informed that treatment plans begin around this price region.

We understand that  money is tight for everbody and any fundraising or donations people are able to do or make will be massively appreciated  and we will provide regular updates on this page as to where any money is spent and stephs treatment plan.




















+ Read More
everyone, I just want to say another massive thank you to all those that have donated to my treatment fund,friends,  family and even strangers,  medical  treatmentfunds are common these days but i never
thought i would find myself in the position where i would need one for myself but unfortunately no one knows what lies around the corner and luckily I i have people willling to support me which i am so grateful for. all my time and energynow goes intofinding  treatments to stop this tumour growing and alleviate my symptons which are now having a devestating impact on my quality of lifeso i am desperate for treatment to at leastenable me to walk again and spend some precioustimebeing able to do  nice thingswith my husband and baby daughter.thank you for all your supportit really helpsso much love steph x x x
+ Read More
At the london csncer clinic Tuesday for a consultation with an oncology progessor. Please see latest update for info
+ Read More
Hi everyone,

Just to update you all, Stephanie and I have been to the London Cancer Centre today for a consultation with a world wide respected Oncology Doctor Professor Angus Dalglish. He was very helpful and positive and has suggested a new drug for Stephanie to take that he has used with other patients, and the medication has had stabilising effect on their tumours. This has obviously helped us come away from the meeting feeling positive, which is exactly what we needed as Stephanie has been in and out of hospital several times this week due to her immune system being at a dangerously low level because of the chemotherapy she is taking.

This appointment was possible and funded by your generous donations and Stephanie will begin taking this new medication alongside her chemotherapy next week.

Thank you Neil and Steph x
+ Read More
Read a Previous Update
Alison Ryman
32 months ago

Please donate however much you can afford will be truly appreciated . I never thought we would be in this position but we are determined to help.Steph because she is truly amazing and always thinks of others before herself xx

+ Read More

£6,405 of £100,000 goal

Raised by 183 people in 32 months
Created December 4, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
BS
£60
Beth Spencer
28 months ago
SM
£100
Susan Murray
29 months ago
AB
£25
Alex Baca
29 months ago
NP
£50
Niki Payne
30 months ago
SN
£5
Sian Norman
30 months ago

Good luck to you and your beautiful family x

EJ
£20
Elouise Jones
30 months ago

I hope you reach your target. Wishing you health and happiness xxx

£100
Anonymous
30 months ago
£10
Anonymous
30 months ago
RO
£20
Rebecca Orbell
30 months ago
1
1
LB
£50
Lisa Beauchamp
30 months ago
1
1
Alison Ryman
32 months ago

Please donate however much you can afford will be truly appreciated . I never thought we would be in this position but we are determined to help.Steph because she is truly amazing and always thinks of others before herself xx

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a £5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.