Help this mumma fight

$3,393 of $60,000 goal

Raised by 34 people in 32 months

There are moments in our life when we need to ask for help.  For me it’s now as I’m trying to raise money to cover A$60,000 for Keytruda immunotherapy treatments. 

I’m Kati, 46 and mother of a lovely funny 2 year old girl, Laney. 

I was diagnosed with stage 3, grade 3 Triple Negative Breast Cancer July 2016. My cancer was inoperable so I had to go through 6 months of neoadjuvant chemotherapy, mastectomy and 8 weeks of radiation. My medical team treated the cancer very aggressively with the most toxic chemotherapies available and radiation specifically targeting the skin, only to find out my last week of radiation therapy that the cancer had spread to the skin and I was now stage IV, incurable terminal cancer. 

I have been treated with 6 different chemotherapies and am currently on a clinical immunotherapy trial with monthly Nivulomab fusions and an oral daily pill trialled on people for the first time. After a rocky start with the trial with 2 hospitalisations. there was positive developments — until now when the cancer has started to grow again, slower than before, but it’s only a matter of time when the therapy stops working and I will have to look back to other treatments like chemo. As the cancer is so aggressive, we’ll need to be targeted simultaneously by many treatments, most likely with another immunotherapy drug, Keytruda.  Unfortunately, it is not listed by the PBS and it comes at a price of A$4,500 per injection every 3 weeks. Only once you have reached A$60K will the pharmaceutical company will subsidise 95% of the costs. This is a massive financial burden for any family.

I’ve been unable to work due to the continuous treatment,  increasing fatigue and other side effects. As my mets mainly reside on the skin, I am not “sick enough” for many clinical trials. But it has been aggressive spreading into lungs in less than 2 months, so I don’t have time to wait for the right trial, which means I will need to fund additional immunotherapies out of pocket.  

I’ve suffered from the side effects of chemo and strong drugs. I’ve had my skin burned off by radiation and covered by painful skin metastasis lesions. I have been curled up to a ball on the floor wailing from pain and had to be on oxygen in order to breath. But I continue to fight for my family, as my little girl needs a mother. My heart breaks thinking about my little girl growing up without her mum.  

Any help is very much appreciated. We thank you with all our hearts for your generosity and healing thoughts. 

http://www.pinkymckay.com/breastfeeding-and-breast-cancer-a-mothers-journey/ 

+ Read More
Kati Kuusisto
26 months ago

Thanking everyone for their generous donations ❤ Wanted to share the best news in a long time. After nerve wrecking fee weeks with a lot of doubt, my PET scan shows all clear other than 3cm tumour in the breast. Chemo has killed cancer in lymphnodes and shrunk the tumours in the breast - so the redness is just my body reacting weird to chemo and/or tumour shrinking. This is great news considering my medical team was very concerned about the angry redness and the other weird symptoms. Wish the tumour would have shrunk away completely but I'll take from 5cm to 3cm - (the total breast tumour mass was about 8cm in the beginning). I didn't realise this but I started as inoperable because of the size of the ttmour(s) and now can be operated on. (Still a mastectomy and lymphnodes need to be removed as triple negative BC is so highly aggressive often returning unless all is removed. I did a happy dance in the Farmers Market - lot of weird looks But I didn't care

+ Read More
Kati Kuusisto
31 months ago

Thank you again for everyone's generosity. I've now completed chemo round 2 - another 2 (every 3-weeks) to go and then another 12 weekly ones. Feeling much better after this round thanks to the advice of a wonderful breast care nurse, just the fatigue gets me even after short spurts of activity this week. Hoping the energy levels will pick up next week to keep up with my active little girl whose eager to discover the world. Facing a bit of hair loss (about 50% now) regardless of the cold cap. Needless to say I've been obsessing about my hair more than is healthy, but I suppose it comes with the territory. Must take it day at a time

+ Read More
Kati Kuusisto
32 months ago

Thanking everyone for their generosity. Our little girl has adjusted well to early weaning and other changes we've had to make quickly. She really is such a resilient little trooper. Keeps me smiling every day.

+ Read More

$3,393 of $60,000 goal

Raised by 34 people in 32 months
Created July 18, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$300
Anonymous
9 months ago
$20
Anonymous
23 months ago
JB
$50
Jennifer Black
23 months ago

You are one strong lady Kati and I know you will beat this!! Beautiful family you have. Keep fighting! Prayers and strength to you in the days ahead. Hugs ❤️

$75
Sian Herbert
26 months ago
1
1

Wishing you a speedy and full recovery x

MC
$100
Matt Christmas
26 months ago
1
1

Get well soon

Kati Kuusisto
26 months ago

Thanking everyone for their generous donations ❤ Wanted to share the best news in a long time. After nerve wrecking fee weeks with a lot of doubt, my PET scan shows all clear other than 3cm tumour in the breast. Chemo has killed cancer in lymphnodes and shrunk the tumours in the breast - so the redness is just my body reacting weird to chemo and/or tumour shrinking. This is great news considering my medical team was very concerned about the angry redness and the other weird symptoms. Wish the tumour would have shrunk away completely but I'll take from 5cm to 3cm - (the total breast tumour mass was about 8cm in the beginning). I didn't realise this but I started as inoperable because of the size of the ttmour(s) and now can be operated on. (Still a mastectomy and lymphnodes need to be removed as triple negative BC is so highly aggressive often returning unless all is removed. I did a happy dance in the Farmers Market - lot of weird looks But I didn't care

+ Read More
Kati Kuusisto
31 months ago

Thank you again for everyone's generosity. I've now completed chemo round 2 - another 2 (every 3-weeks) to go and then another 12 weekly ones. Feeling much better after this round thanks to the advice of a wonderful breast care nurse, just the fatigue gets me even after short spurts of activity this week. Hoping the energy levels will pick up next week to keep up with my active little girl whose eager to discover the world. Facing a bit of hair loss (about 50% now) regardless of the cold cap. Needless to say I've been obsessing about my hair more than is healthy, but I suppose it comes with the territory. Must take it day at a time

+ Read More
Kati Kuusisto
32 months ago

Thanking everyone for their generosity. Our little girl has adjusted well to early weaning and other changes we've had to make quickly. She really is such a resilient little trooper. Keeps me smiling every day.

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.