Support & Understanding for Beth
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Thank you for taking your time too look at my daughters page it means more too us than you could know and PLEASE!! share this with everyone you know
Hello my name is Amy i have a 6 year old daughter Bethany who has a condition called photo aggravated eczema which is a rare skin condition. This means that she is allergic to sunlight (uv rays) and heat. I want too raise money for Bethany too get some suits for her and for other bits such as special eczema bedding and eczema clothes etc too make her more comfortable as her illness is not curable and none of it is available on the nhs! The suits are £78.44 just for one. Life have been a long cycle of medications, sleepless nights, infections, investigations, nights and even weeks in hospital,painful skin, itchiness and a lot of isolation. Bethany is currently on a drug called azathioprine which is an immuno suppressants drug but unfortunately its not doing the job like i had hoped and dreamed that it would. She also has a lot of allergies which also make things tough she is allergic too Egg, Milk, Soya, Fish, Wheat, Nuts, Grass, Pollen, Dust, Latex, Cats, Dogs and penicillin. She has been refereed back too the allergy clinic as they think she has even more allergies than she already has. She also suffers from anaphylaxis She has never had an easy life its always been very tough for her. Everyone enjoys and looks forward too the good sunny days but Bethany doesn’t. Bethany always gets very sore and really itchy when the sun is out and its too hot for her or even when we are out under certain lighting she will react, she even reacts too the heating at home. I just want too make her like more comfortable without having too isolate her. All money that is donated will go straight on Bethany and i will show you all proof and receipts. Please make a difference too my beautiful princess
please go along at like bethanys support group on facebook and show your support https://www.facebook.com/pages/Support-Understanding-for-Bethany/273750466014879?fref=ts
due to people stealing bethanys photos i have had to delete them off here i hope you understand it is very much appriciated
amy
Hello my name is Amy i have a 6 year old daughter Bethany who has a condition called photo aggravated eczema which is a rare skin condition. This means that she is allergic to sunlight (uv rays) and heat. I want too raise money for Bethany too get some suits for her and for other bits such as special eczema bedding and eczema clothes etc too make her more comfortable as her illness is not curable and none of it is available on the nhs! The suits are £78.44 just for one. Life have been a long cycle of medications, sleepless nights, infections, investigations, nights and even weeks in hospital,painful skin, itchiness and a lot of isolation. Bethany is currently on a drug called azathioprine which is an immuno suppressants drug but unfortunately its not doing the job like i had hoped and dreamed that it would. She also has a lot of allergies which also make things tough she is allergic too Egg, Milk, Soya, Fish, Wheat, Nuts, Grass, Pollen, Dust, Latex, Cats, Dogs and penicillin. She has been refereed back too the allergy clinic as they think she has even more allergies than she already has. She also suffers from anaphylaxis She has never had an easy life its always been very tough for her. Everyone enjoys and looks forward too the good sunny days but Bethany doesn’t. Bethany always gets very sore and really itchy when the sun is out and its too hot for her or even when we are out under certain lighting she will react, she even reacts too the heating at home. I just want too make her like more comfortable without having too isolate her. All money that is donated will go straight on Bethany and i will show you all proof and receipts. Please make a difference too my beautiful princess
please go along at like bethanys support group on facebook and show your support https://www.facebook.com/pages/Support-Understanding-for-Bethany/273750466014879?fref=ts
due to people stealing bethanys photos i have had to delete them off here i hope you understand it is very much appriciated
amy
Organizer
Amy Wagstaff
Organizer
