Support Amelia
Donation protected
Feb 6, 2017
* Wanted to add this message today, to thank everyone who has donated so generously and for all your love and prayers. You have touched our hearts and given us hope.
You can keep up with Amelia's journey through the "UPDATES" section I've been sending on this gofundme page.
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Below is the first time reaching out to everyone about Amelia in January:
My beautiful niece Amelia was born with a genetic condition called Neurofibromatosis Type 1 (NF1).
NF1 occurs in 1 in every 3,000 to 4,000 people worldwide.
In short, tumors can grow anywhere in the body along the nervous system.
They told the family that sooner or later Amelia would need an amputation and that tumors would most likely appear--potentially causing blindness, deafness, and premature death.
At 1 1/2 years old, Amelia underwent a sucessful below-the-knee amputation. When she turned 2, an MRI revealed first one optic glioma (a tumor surrounding her left optic nerve which can cause blindness) and then a second optic glioma on her right optic nerve a few months later.
* Over the last month, a tumor in her eyelid called an orbitotemporal neurofibroma, has caused her eye to be pushed forward and downward into her lower eyelid. We are all waiting for results if an MRI will determine if the tumor is cancerous. This is devastating beyond words for our whole family.
Without intervention, her face will be disfigured for life and her right eye will be rendered useless. They have found a highly skilled NF surgeon in Chicago who can remove the plexiform tumor permanently and restore her eye to its proper position. The operation is set for February 3.
These are the obstacles her parents face:
1. They live in The Hague, The Netherlands with 5 children.
2. Surgery in the Netherlands won't be available to Amelia for over a month from now in Rotterdam as the only doctor who can perform this procedure is out on leave. They have therefore advised for her to go ahead and travel to Chicago ASAP as the tumor is growing rapidly.
3. Amelia's parents are not yet sure if the Dutch insurance will cover the costs for out of country medical bills, but at this point they cannot wait any longer and
start to raise funds for her to even be admitted to the hospital.
We simply can't afford to wait without risking permanent damage to Amelia's face and the loss of vision in her right eye.
Therefore we must take matters into our own hands to fight for her.
PLEASE consider donating even if it be a small amount to help Amelia and her family to cover medical and travel costs as they embark on this next phase in Amelia's little life. Every cent counts!
With deepest appreciation,
Tanya
* Wanted to add this message today, to thank everyone who has donated so generously and for all your love and prayers. You have touched our hearts and given us hope.
You can keep up with Amelia's journey through the "UPDATES" section I've been sending on this gofundme page.
-------------------
Below is the first time reaching out to everyone about Amelia in January:
My beautiful niece Amelia was born with a genetic condition called Neurofibromatosis Type 1 (NF1).
NF1 occurs in 1 in every 3,000 to 4,000 people worldwide.
In short, tumors can grow anywhere in the body along the nervous system.
They told the family that sooner or later Amelia would need an amputation and that tumors would most likely appear--potentially causing blindness, deafness, and premature death.
At 1 1/2 years old, Amelia underwent a sucessful below-the-knee amputation. When she turned 2, an MRI revealed first one optic glioma (a tumor surrounding her left optic nerve which can cause blindness) and then a second optic glioma on her right optic nerve a few months later.
* Over the last month, a tumor in her eyelid called an orbitotemporal neurofibroma, has caused her eye to be pushed forward and downward into her lower eyelid. We are all waiting for results if an MRI will determine if the tumor is cancerous. This is devastating beyond words for our whole family.
Without intervention, her face will be disfigured for life and her right eye will be rendered useless. They have found a highly skilled NF surgeon in Chicago who can remove the plexiform tumor permanently and restore her eye to its proper position. The operation is set for February 3.
These are the obstacles her parents face:
1. They live in The Hague, The Netherlands with 5 children.
2. Surgery in the Netherlands won't be available to Amelia for over a month from now in Rotterdam as the only doctor who can perform this procedure is out on leave. They have therefore advised for her to go ahead and travel to Chicago ASAP as the tumor is growing rapidly.
3. Amelia's parents are not yet sure if the Dutch insurance will cover the costs for out of country medical bills, but at this point they cannot wait any longer and
start to raise funds for her to even be admitted to the hospital.
We simply can't afford to wait without risking permanent damage to Amelia's face and the loss of vision in her right eye.
Therefore we must take matters into our own hands to fight for her.
PLEASE consider donating even if it be a small amount to help Amelia and her family to cover medical and travel costs as they embark on this next phase in Amelia's little life. Every cent counts!
With deepest appreciation,
Tanya
Organizer and beneficiary
Tanya Uyleman Broekman
Organizer
Santa Clara, CA
Rochelle Booth
Beneficiary
