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Support Opal

$61,091 of $150,000 goal

Raised by 560 people in 4 months
Created January 4, 2019
Team Opal
on behalf of Tyler Lang
Two years ago today (January 4, 2017) Opal Lang came into the world. To all who know her, “Opalies”, is sweet, beautiful, and precious. She has a smile that lights up a room and loves to dance when she hears the music from Star Wars. 

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In May 2018, Opal’s pediatrician discovered she had a slow heart rate at a regular wellness visit and recommended she be examined by a cardiac specialist. Her parents shortly after took her to see a cardiologist and were immediately sent to the emergency room after the examination. Once admitted, a test revealed her heart could not function on its own; she had to be taken into emergency surgery to get a pacemaker. Since then, Opal has been 100% pacemaker dependent.

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Opal has continued to overcome her obstacles and thrive and grow into a clever and sweet toddler, learning new things every day.

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Unexpectedly, on December 11, 2018, Opal went into cardiac arrest at home. An ambulance was called, she was triaged at a nearby hospital and then airlifted to Lurie’s Children’s Hospital of Chicago for specialized care. After three cardiac arrest codes, three surgeries, and a minor stroke, she is now stable on a newly implanted ventricular assist device called the Berlin heart.

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Opal is patiently waiting for a new heart, but must remain in the hospital during the wait. Her parents, Tyler and Priscilla, are by Opal’s side as much as possible. However, as you can imagine, Opal’s past, current  and impending medical expenses along with the day-to-day finances of being out of work and away from home are adding additional stress on their family. Opal is need of a heart transplant which comes with a significant financial burden; even with the help the of insurance.

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Opal’s family is thankful to have the loving and prayerful support of many family members and friends. But we want to do more to help them practically during this time.

Please help us support Tyler, Priscilla, Opal, and their soon-to-arrive baby boy (4.20.2019) by giving to the “Support Opal Fundraiser".  Your contribution will give them some peace of mind about financial matters and the ability to keep each other close during this trying time.
 
Please share Opal’s story through GoFundMe and the Support Opal Facebook page where we will continue to post updates on Opal’s progress.

Thank you! 

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Today is a very special day! Opal is getting a heart today! Thank you to everyone who's donated, sent prayers, gifts, love, energy. It's all been felt and it has all worked! Please don't stop sharing Opal's story. She still has a long way to go and a difficult recovery ahead of her. The family still needs your support and love during this time. Here's a facebook update from the family on the Support Opal Facebook Page.

https://www.facebook.com/opalsheart/?__tn__=%2Cd%2CP-R&eid=ARAb1LAgQ7wUPEskbNLdoMetNbHYDlBDIYDCZCoWbkCLSogQGF5ka5NmcGNtDwGjreQk9JIOoAByCBl1
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You may have seen some of our family walk pictures as well as noticed all the devices and things we need just to go out for a walk on the CCU. The blue and grey cart pushed next to Opal is called the Icus. The Icus is part of Opal’s Berlin Heart and is kind of like a fancy air compressor that helps to push and pull blood in and out of her VAD. The Icus also has to stay plugged in and can only be unplugged for 20 minutes for a quick walk before we have to charge it again. Once plugged in again, it can not be unplugged for six hours. Needless to say, when you are trapped in a room on the same floor all day you try to get out early on the first walk so you can squeeze another one in before the day is over. Opal is pretty stable on her Berlin Heart and we just have to wait in the hospital until she gets a transplant. The Berlin is portable for walks, but we can not take her home on it while she waits. In the meantime, we spend our day getting our two walks in as well as lots of floor time. You can see in the video Opal now can hold her head up much better, but her core strength still needs to be built back up. The left side of her body is moving so much better, but is still very weak. She is in very good spirits though and getting stronger everyday. Thank you again for your continued support and prayers.
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Yesterday 1/4/19 we celebrated Opals birthday. She turned two years old. She had a really good day-
You can find a more detailed update video on her fb page Support Opal. Link below

https://m.facebook.com/opalsheart/?tsid=0.27298265643145725&source=result

Please share Opals story and pray for Opal, her mom, dad, the medical team, and the family that may be faced with the decision to #donatelife
Your support is felt and greatly appreciated.
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$61,091 of $150,000 goal

Raised by 560 people in 4 months
Created January 4, 2019
Team Opal
on behalf of Tyler Lang
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