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Support Jorge battle Osteosarcoma

$850 of $10,000 goal

Raised by 23 people in 6 months
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Jorge (16) is an amazing, loved and caring teenager he is in 10th grade in Borah High School in Boise.  He was diagnosed back in June 2017 with Osteosarcoma in the right tibia following an intensive chemotherapy regimen (MAP) and a Limb Salvage surgery in September 2017, finishing in February 2018. Like many of the childrens and teens with LLS he has lost his ability to run, jump, and play like a normal teenager but always will receive you with a smile.
When we thought he was finished with this horrible cancer like is Osteosarcoma "THE BEAST" we listened for a second time in June of this year that he relapse, our #JorgeStrong had a tracheotomy to remove the Osteosarcoma nodules in his lungs. Sadly in October 22nd Jorge's oncologist said to us that Jorge relapse for a third time, they found a tumor in his chest wall of 7cm invading his diafragm (what make the surgery really difficult) and 3 little nodules in his lungs. 
Having Jorge had to many side effects caused by the chemotherapy (MAP) : cardiomyopathy, Loss hearing and damage in the kidneys, the doctors need to be careful with the treatments he need to follow , the next steps are start a trial or chemo next week. If this dont work in the next 6 weeks we need to travel and look for another specialist. 

We are a family of 4, Jorge have and adorable and little advocate in her sister Dulcemaria (4) and lots of friends around us trying always to help, so please we ask you to donate and share this account the most that you can.  We believe that with God's favor we will find our miracle for Jorge, please have Jorge and us in your prayers and if you know about Prayers Chain add us.

We are creating this account and  asking for your  help because we have really struggled financially since Jorge's first  diagnosis in June 2017 because the only one who is working is dad, that way mom can take care of Jorge. but sometimes we need take days off because surgeries, scans, appointments that we all want to be present, and that reduce our budget, we always try to  save and we never before asked for help for us but  we now need  help to buy some stuff that Jorge needs and have him the more comfortable and happy we can.

Thanks for the love.

Donaldson - Ibanez Family
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#UPDATE Monday April 29th
Jorge is at home from Sunday 6am, after the most terrifying night of our lifes. I never before felt that I was really losing him until Saturday night that I saw him in his bed with pain in all his chest, having a hard time breathing, screaming in pain, asking to please help him, and can't do anything, just stay by his side holding his hand and trying to calm him down but was impossible until the Paramedics gave him some IV medicine.
When he was in pain my little one woke up and when she saw brother that way she start crying and yell I don't want my brother die. Thanks God my husband calm her down and explain everything will be fine.

We hope to find answers today, but looks like the tumor in the chest wall grew up and that is causing the pain.

Please we need more than ever your prayers, good toughts, love and vibes.
Jorge is a resilient soul, he spent Sunday listening music, and enjoying time with us in home.

#TeamJorge #JorgeStrong #prayforJorge #FightlikeaTeen #pediatriccancer #cancerinfantil #Osteosarcomaawareness #Childhoodcancerawareness
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This happened Saturday night
"We called 911 my Jorge is in a lot of pain, he is yelling and crying
Ada County Paramedics came to see Jorge and took us in the ambulance to St. Luke's Health System
We are not sure of what is going on
Please please pray, pray hard for him
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#UPDATE #March25th

I still not finding the words to write this, but I will do my best to explain what is going on and how hard hit to our family.
Jorge was feeling " pains" before the scans and MRI (March 11 & 12th ) we had a backpack ready because we was in the point to go to Emergency Room. But Jorge is a tough kid, and always calm down, he took pain medicine and that make him feel better.

Because one of zones where he have been feeling the pain was the right side of the chest (where the big tumor is located) we call his doctor after the MRI to know what to do, in that moment he didn't know (Was late Tuesday 12th) but called the next day, saying that there is new spots, and that means the chemo pill wasn't working and they took Jorge out of the trial.

It was really heart breaking news, we talked about it, cried and waited for the appoinment the 14th with his team.

There is a fracture in his clavicle, and new bone spots with Osteosarcoma.

They offer a different chemotherapy plan, but Jorge wasn't sure of what to do. He is tired of all this, he is fighting this beast 21 months, his and our hope was so high with the trial he was following that this was like going backwards.

If you are friend/ family you know how sick go Jorge with IV chemo, we leave both appointments without an answer from Jorge about what he wants to do, because finally he is who will receive the chemo and feel all the side effects.

Thursday 21st, in home we have the more open, honest, open heart talk a mom can have with her son. I say to him that if I can change places with him without doubt I do it, i let him know that like always mom, dad and sister have his back and we will support him and love him even when there will be hard days.
I showed him his teachers, nurses, family and friends messages, I showed all the calls I received asking for him and how they can be support and help for him.

And finally my hero, my love, make the decision to start chemo, he will start the 28th (Thursday this week).

Between this we will have a virtual appointment with the best sarcoma specialist Dr. Anderson and talk about Jorge's medical history.

Jorge feel scared but he and us have faith, and we will still fighting, but at the same time making memories.

Please sorry if I don't answer the messages soon or chat with you life before, my life and my family life is upside down for a 4th time and I will just focus in them.

Don't tell me have Faith because I never losed and I never will. Jesus gives me the strength when I feel i can't do this.

The time for visit Jorge is now, if he means something to you let him know. We will need a lot of support please share our Go Fund Me.

Please pray for Jorge, for strength, for this chemo to work, for find a better treatment.

Thanks for the love ♥️
#TeamJorge #JorgeStrong #OsteoWarrior #FightlikeaTeen #Osteosarcomasucks #Osteosarcoma #BecauseofJorge
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#update
HI there it is a rough week at home! Jorge's grandma (my mom) went to heaven Sunday January 13th and is hard for all the family in special for Jorge and me, my mom was deeply loved and will be dearly missed and we know she is in heaven with God, watching over us. Now we have the more special angel that can look for Jorge

Today we saw Dr. Camilo at #MSTIBOISE after 2 weeks filled with cardiologist and endocrinology doctor's appointments, mri and scans.

The images show that the chest wall Tumor is stable and going necrotic, the reincidence in what I tough was the same place that the diagnosis tumor, actually was in the femur, is not more there!!!

In the other hand Jorge is having problems with T3 and T4 (Hypothyroidism) .this is a side effect from the medicine . For now the medical team decide just keep an eye on that.

Appointment is in 2 weeks and we are starting cicle 3 of #Xl184 #Cabozantinib

Please we ask you to #prayforJorge for this #Trial still working for him and we dont have more ugly side effects!

Thanks for the messages and the calls asking always for our #JorgeStrong

#TeamJorge #OsteoWarrior #FightlikeaTeen #Osteosarcomaawareness #osteosarcoma
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Raised by 23 people in 6 months
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