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Support for Baby Parker

$20,230 of $25,000 goal

Raised by 166 people in 18 months

Baby Parker is here.  He is currently in the NICU and will be for a bit longer.  Please support Nate and Nikki by donating money for expenses so that they may spend their time caring for him.  Please give what you can.  Updates will be posted as hopeful progress is made.

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So after another week long stent in the hospital with Parker, we have finally been discharged home. Initially he was taken in for respiratory distress. While in the ER, staff noticed his heart rate to be lower than normal and with a questionable heart rhythm. He was admitted to IMC and within 6 hours into our stay, Parker began to rapidly decline. The ICU team had to be called in and he was quickly intubated and placed in the PICU once again. Unfortunately Parker's heart, with the rhythm he had, was not able to keep up with the stress his body was experiencing. After being extubated and moving onto the next stage of recovery, he was having more problems than normal with feeding. He would vomit during feeds more regularly than his usual. Gastrointestinal doctors were called in and tests were performed through out the week. All GI tests were negative and as Parker continued to fight off the viral syndrome, he got stronger and began to tolerate his feeds appropriately. He began to gain weight and keep more feeds down to where our doctors were satisfied. Once again, we were discharged home and had another successful but sleepless night at home. Sorry for the long update, but a lot had gone on over this past week. Thank you for your continued love and support everyone.
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I will start with the good news before the bad. The good news is that we had a great 6 days home with Parker. In that time we went to the Pediatrician twice and both times he gained an additional 3 oz for a total weight of 7lbs 10oz since he left the hospital last Friday at 7lbs 4 oz. He was successfully breastfeeding and the occasional bottle feed to ensure we had some volume measurements. We were able to wean him off the NG tube feeding for the most part by day 5. All in all things were going great. We of course we're struggling to find our rhythm but we were certainly getting there.

However, on Day 7 home, Parker started to become very irate around 8:45pm. We tried feeding, bouncing, etc. and nothing could console him. Although we've only had 6 Days with him, both Nate & I could tell that his crying fit (which was to the point you'd have thought someone was physically hurting him) was abnormal. His body started wrenching up as he was crying, started to struggle with his breathing, and very quickly he started to deteriorate and his coloring changed and Nate had to provide a few puffs of oxygen to help Parker. We had to call 911 and we are now back at Dell Children's.

While at Children's Parker's condition quickly moved us out of the ER to IMC where they had him a few hours before moving him to PICU due to his condition worsening. We were greeting with familiar faces and have a lot of the same care team supporting Parker. This is great, as they are very familiar with his condition and background. We've had to sedate and intubate again. Thus far, findings have shown two issues going on, his heart and a respiratory infection.

It's been a bit touch and go these last few days to figure out exactly what the course of action will need to be to get Parker back on the road to recovery. We will keep everyone updated once we know more.
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Good news!!! Parker was discharged yesterday from the hospital and we got our first experience at home with our new little boy. While we have our initial hospital stay behind us, we now can look forward to the challenges that come with raising an infant. Nikki and I were required to show that we could competently insert two nasogastric(NG) tubes each before discharge and prove we were able to administer feeds and medications through it if and when needed. Feeding this little guy is a timely process since he tires out frequently through out feeding time. Whatever he is not able to get by bottle or breast, we feed the remainder through his NG tube. Our first pediatrician appointment is this Monday when we will see if he is feeding appropriately and continuing to gain weight effectively. He is as precious as ever and it is lovely to finally be home. Thank you again to all that have continued to support us. We love you all and could not feel more blessed to have you all here to help us.
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Parker has made steady progress over the last several days. The staff have successfully been able to wean Parker off of the CPAP and has moved to a high flow nasal cannula . His work of breathing has drastically decreased and is finally able to rest, what we would observe as comfortable. His withdrawal symptoms from the narcotics and other sedatives have began to lessen and requires less meds to soothe his symptoms. His arterial line has been removed and he is one step closer to moving to the IMC. Yesterday the ICU doctor notified us that Parker experienced another heart arrhythmia that required them to treat with a medication for rate control. This is a medication that he will be going home with in addition to his other scheduled meds. Parker continues to be doing better each day and it seems that discharge will be soon enough. Thank you again for all of your support and prayers.
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$20,230 of $25,000 goal

Raised by 166 people in 18 months
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JS
$100
Joshua Sommers
17 months ago
GM
$250
Guy Mount
17 months ago
$100
Anonymous
17 months ago
$100
Lindsey Baker
17 months ago
LK
$200
Lisa Kenney
17 months ago
AC
$100
Allison Curran
17 months ago
AD
$250
Anthony Dahdah
17 months ago
LP
$30
Laura Panell
17 months ago
$25
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18 months ago
PN
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18 months ago
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