There have been so many people that have reached out asking how they can help. Offsetting the financial burden that comes with this type of situation is one way that I believe would provide a lot of relief for them. The expenses are just starting. They are facing an extended stay in Charleston, loss of income since they are not home to work, and the obvious mounting medical expenses that insurance does not cover. The hospital believes that they will be in Charleston for at least the next 4-8 weeks. Possibly over Christmas. When baby Jet is healthy enough, he can be transported back to a pediatric hospital in Orlando, but we have been told that the insurance will not cover those transportation expenses. I am asking for any support that people are willing/able to give. Knowing that some of these expenses are covered will be one huge burden taken off of their shoulders so that can focus on what’s most important…baby Jet’s care and needs. No amount is too small. I know that Erica and Chris are so grateful for all the prayers and emotional support they have already received and would be equally grateful for any financial support. I also wanted to extend a special thank you to everyone that helped during the emergency. Their caring and expertise made all the difference. In addition to the medical personnel mentioned above, Erica and Chris would also like to thank the emergency medical team that met them on the tarmac and transported them to the hospital, flight attendant Tracy (and others, but did not catch their names, sorry), and the entire Southwest team. Thank you all!
Florida Today Article
Today, his oxygen requirements on thr CPAP went up significantly from 23-25% to anywhere from 35-45%. They ordered a chest x-ray that showed some fluid in his lungs and he then received a diuretic to help remove it. He also had a repeat Echocardiogram and it showed that the PDA has completely closed! This is great news! The ophthalmologist was by to do his second eye exam. The first exam was normal however, today's exam showed some stage 1 eye disease in both eyes. Per the Dr., nothing to be concerned with right now, but should be repeated in 2 weeks. He weighs 1620 grams now!
The greatest news of all is that the insurance approved his transfer to Nemours Childrens hospital in Orlando! They will speak to the Case Manager here at MUSC tomorrow and let us know if a NICU bed will be available on Thursday! Though it will be bittersweet leaving our AMAZING primary nurses here in the NICU, (Kumi, Kori, Leslie, Nikki), and the incredible care team (Dr's, NP's, RN's, RT, OT, PT, etc.) we are looking forward to being home and closer to family and friends.
Thank you all SO much for your continued prayers and support. Without you all, this transfer would not be possible, and since we are away from home and unable to work, our time here in Charleston, would have been much much more stressful. Though our journey with Jet's hospital stay is not over, we appreciate your continued prayers! He is our little fighter!
Erica, Chris and Jet
On 12/29, Jet was extubated and transitioned to CPAP. He is breathing all on his own, the CPAP mask just gives enough pressure needed to expand his lungs. Over the last few days, the physicians have been weaning the settings and he has been adjusting so well. All of the Drs and nurses are impressed!
We spent time holding him to ring in the new year! It was the best way to start 2017! Still working on getting some good pictures to share. <3
Thank you again for all your love, support and generosity! We wish you all many blessings in the new year!
Erica, Chris and Jet
He has grown to 2lbs 11 oz.! Still so tiny and precious but so thankful he is tolerating the feedings and gaining weight daily.
He has a ton of blonde hair. All the nurses comment about how cute it is. Once the IV is out of his scalp, we will take some more pictures to share with everyone. (thankfully they didn't have to shave his head for the IV) <3
Thank you again for your love and support <3
Erica, Chris and Jet