Supermegs
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Hi all,
We recently had our page taken down :( Please don't reference 'raffle' in your comment if you are making a donation as it is against the GoFundMe terms and conditions and can't be counted as a raffle entry. It also risks us having our page taken down again. If you wish to purchase a ticket for any raffles we hold please contact me here directly instead.
Thanks SuperMegs.
Megan is our little fighter. At a routine 20 week scan we found out she has a heart condition known as Hypoplastic Right Heart Syndrome (HRHS), which means the right side of her heart hadn’t properly developed.
This was to be the start of a very long road.
Megan also had a break in her airway that was discovered after she was born and has required her to have a tracheostomy tube from just 6 weeks old. Along with the tracheostomy tube a slow swallow means that she cannot eat normally and is fed through a feeding tube.
Megan had her first two operations before she was even a week old. The first on her airway and the second on her heart. l say the first two because she has had many, many more operations since then. More than I would care to count but she has fought her way through all of them.
Her first 20 months were spent in Crumlin Children’s Hospital where we had to learn to look after her tracheostomy and peg feeding tubes. We had a lot of highs and lows during this time but we soon found out just how strong and how much of a fighter our Megan really is. When doctors feared the worst, and gave very low percentages for survival, she consistently defied the odds and proved them wrong.
One of our greatest highs was finally getting her home at 20 months old. However, because of her tracheostomy tube she requires 24hr care. There is a constant risk that her tube could block which would prevent her from breathing which is why only people that are trained in this can look after her. Her homecare package allocates a night nurses however due to a severe lack of tracheostomy trained nurses they are often unavailable or simply don’t turn up leaving her mum and dad to cover three or four nights a week. This means one of them must stay awake all night to ensure the tracheostomy tube doesn't block. Not an easy task with two other young children in the house.
Megan is now nine years old and despite everything she has gone through, and the constant pain she endures on a daily basis, she is one of the happiest little girls you will ever hope to meet. Megan can’t speak, and having also been diagnosed with scoliosis is unable to walk but she can still light up a room with her smile and brings lots of joy to her family and friends.
As Megan grows older her needs become greater and her ailments get worse. Simple things like bathing Megan cause excruciating pain to her swollen joints as she needs to be carried upstairs. Housing adaptation grants only cover a small portion of the overall cost so installing a downstairs washroom or bedroom is a huge undertaking. Similarly, a new wheelchair, hoist to get her into and out of bed pain free and other essential equipment are in constant demand which is why we need you, our family and friends to help in any way you can. If you can help by doing a fundraiser, or have an idea for a fundraiser please let us know.
You can also find us on https://www.facebook.com/supermegs1/
Hi all,
We recently had our page taken down :( Please don't reference 'raffle' in your comment if you are making a donation as it is against the GoFundMe terms and conditions and can't be counted as a raffle entry. It also risks us having our page taken down again. If you wish to purchase a ticket for any raffles we hold please contact me here directly instead.
Thanks SuperMegs.
Megan is our little fighter. At a routine 20 week scan we found out she has a heart condition known as Hypoplastic Right Heart Syndrome (HRHS), which means the right side of her heart hadn’t properly developed.
This was to be the start of a very long road.
Megan also had a break in her airway that was discovered after she was born and has required her to have a tracheostomy tube from just 6 weeks old. Along with the tracheostomy tube a slow swallow means that she cannot eat normally and is fed through a feeding tube.
Megan had her first two operations before she was even a week old. The first on her airway and the second on her heart. l say the first two because she has had many, many more operations since then. More than I would care to count but she has fought her way through all of them.
Her first 20 months were spent in Crumlin Children’s Hospital where we had to learn to look after her tracheostomy and peg feeding tubes. We had a lot of highs and lows during this time but we soon found out just how strong and how much of a fighter our Megan really is. When doctors feared the worst, and gave very low percentages for survival, she consistently defied the odds and proved them wrong.
One of our greatest highs was finally getting her home at 20 months old. However, because of her tracheostomy tube she requires 24hr care. There is a constant risk that her tube could block which would prevent her from breathing which is why only people that are trained in this can look after her. Her homecare package allocates a night nurses however due to a severe lack of tracheostomy trained nurses they are often unavailable or simply don’t turn up leaving her mum and dad to cover three or four nights a week. This means one of them must stay awake all night to ensure the tracheostomy tube doesn't block. Not an easy task with two other young children in the house.
Megan is now nine years old and despite everything she has gone through, and the constant pain she endures on a daily basis, she is one of the happiest little girls you will ever hope to meet. Megan can’t speak, and having also been diagnosed with scoliosis is unable to walk but she can still light up a room with her smile and brings lots of joy to her family and friends.
As Megan grows older her needs become greater and her ailments get worse. Simple things like bathing Megan cause excruciating pain to her swollen joints as she needs to be carried upstairs. Housing adaptation grants only cover a small portion of the overall cost so installing a downstairs washroom or bedroom is a huge undertaking. Similarly, a new wheelchair, hoist to get her into and out of bed pain free and other essential equipment are in constant demand which is why we need you, our family and friends to help in any way you can. If you can help by doing a fundraiser, or have an idea for a fundraiser please let us know.
You can also find us on https://www.facebook.com/supermegs1/
Organizer
Ashling Farrell
Organizer
County Dublin
