Super Aiden's Biggest Battle

$12,815 of $25,000 goal

Raised by 65 people in 41 months
Lindsey Newbauer
on behalf of Danielle Myers
I am Lindsey Newbauer (Garland) and I graduated with Danielle Myers (Hoening) in 1999. We were friends in high school and after all these years, we’re closer than ever, sharing among other things, the same sense of humor and a love of writing. So, watching her and her family struggle with debilitating illnesses has been gut-wrenching. It’s an extremely terrible feeling to not be able to give the relief I know they need so desperately. Besides physical pain, the financial burden incurred treating her and her son, Aiden, has been heavy, at best. Even with insurance, the out-of-pocket costs have been and will continue to be staggering. I may not be able to take away their physical pain, but I can try to help ease the pain Danielle and her husband Doug feel when they consider that the treatment needed for their little hero, their Super Aiden, might be out of reach because of finances. I know she would do the same for me—or anyone in need—because that’s just the kind of person she is. Even with everything going on in her life, Danielle is always asking how I am and if there’s anything she can do for me. I love her and her little family and hope this campaign can give new hope in this, Super Aiden’s biggest battle…

Aiden had his first seizure at three months of age. He was diagnosed with Tuberous Sclerosis Complex (TSC), a genetic disorder that causes tumors to form in various organs of the body. Aiden has these tumors (called tubers in TSC because they are usually benign) in his brain, one kidney, heart, eyes, and skin. The thirty five or more tubers in his brain cause his epilepsy. He also developed a catastrophic form of epilepsy called Infantile Spasms (IS) around four months of age. These seizures occur in clusters and are difficult to control. Aiden had seizure control for about a year before they came back. Now, they’re causing the regression of hard-won developmental progress as well as physical weakness. He went from a fairly strong 6-year-old to a 7-year-old that has need for a wheelchair. One year of uncontrolled epilepsy has robbed him of his quality of life. And after seven years of trying numerous medications, and suffering through their side effects, neurosurgery is the best hope left at controlling his seizures.

Aiden's dad, Doug, works full-time as a service manager and Danielle stays home to take care of Aiden and his three other siblings. Danielle was recently diagnosed with Rheumatoid Arthritis and has spent the last year suffering through flare-ups and allergic reactions to medications meant to manage the RA. Her illness as well as Aiden's Tuberous Sclerosis has put the family's budget under strain. The possibility of the family being able to afford this much needed surgery for Aiden is slim.

Thankfully, Aiden and his family have the attention of a renowned neurosurgeon. But they will need help financing a trip, possibly as soon as May, to consult with his specialized team at Texas Children’s Hospital in Houston. The trip is expected to be difficult and last 3-4 weeks. The family needs help not only in paying for the medical and travel expenses associated with the trip, but also the lost wages while Doug must be away from work for the few weeks needed for Aiden to have brain surgery.

Any money raised will be humbly accepted and used to pay existing medical bills as well the trip to Texas and any new medical expenses incurred beyond the scope of their insurance.

They have always looked at Aiden as their brave little boy, their hero for his strength in an unimaginably difficult situation, their Super Aiden. Please help Super Aiden win this battle against TSC so that he might have the chance to once again have wind beneath his cape.

You can read more about Super Aiden and Danielle's family on CrossRoadTrippers where she and I blog about life and more.

Thank you!!
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As I go through and thank the folks who have been so generous to my friend and her family in this difficult time, I'm just overwhelmed by this peace...feeling the good in the world and seeing how folks, even total strangers, pull together for a family in need of support. With all the terrible in the world these days, it's nice to feel love, empathy, and generosity are not as rare as they sometimes seem. Keep fighting the good fight, as they say, and Super Aiden will do the same!
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The time for Aiden's second surgery is fast approaching. During this terrifying, yet hopeful time, the family needs all the help we can give them. Both financial and moral support are blessings in this difficult time.
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Sadly, Super Aiden is being revisited by his arch nemesis... He began having cluster seizures again after a brief seizure free time after last year's surgery. These seizures not only interrupt his life, but they hinder his development. He is having 3-4 clusters a day and they are getting stronger and lasting longer. The family has to return to Texas for more surgery with Dr. Curry (laser surgeon) and Dr. Weiner (open cranial brain surgeon). Both options are on the table again.
This time, the trip will be one long stay of 3-4 weeks instead of two trips of about 2 weeks. There will be no time to save up money between trips this time. This is putting an enormous strain on the family's finances.
On top of that, Danielle is still fighting to control her RA and she never knows from day to day what her health will be like. She can't face the trip without Doug, but they also can't afford for him to take the time off from work.
They need our help to get Aiden where he needs to be in order to fight this formidable foe!
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Aiden continues to heal from his surgery and he and his family are learning all about the "new Aiden." They're also learning about just how expensive the surgery was. Everyone has already been so generous! But if you'd still like to give, funds will be applied to the medical bills that are rolling in.
Please continue to keep the Myers family in your thoughts and prayers as Super Aiden continues to recover!
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$12,815 of $25,000 goal

Raised by 65 people in 41 months
Created February 22, 2016
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Dexter Taylor
19 months ago
Alycia Verdeyen-Porter
23 months ago

From the Porter & Verdeyen Family (formerly Alycia Paulus). We wish Aiden all of the health, happiness, and joy a 7yr old deserves. Our love to your whole family! The Porter-Verdeyens

Shannon Barnes Arndt
24 months ago

From TSC buddy, Bladen.

Betsy Schaaf
24 months ago

Love & payers to Aiden and his entire family....

Karen Cahill
24 months ago

Praying for you all!

Traci Ritts Brown
24 months ago

Prayers and Best Wishes to Aiden and the whole family.

Kay Tillman
24 months ago

Prayers for Aiden's second surgery and you and your family.

Wendy Blosser
24 months ago

Love and prayers, Wendy

Viv Liette
24 months ago
25 months ago
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