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Steven's ALS Journey

$37,180 of $50,000 goal

Raised by 306 people in 10 months
Created May 3, 2018
After almost a year of dealing with symptoms, my brother, Steven, was diagnosed with ALS on April 30th, 2018. 

There is no cure for ALS and the average life expectancy after diagnosis is 3-5 years.  In a nutshell, ALS affects the muscle and nerve cells. He will lose the function in his arms and legs, the ability to eat or speak and eventually not be able to breathe on his own. He will go to the ALS clinic at University Health Science Center, Colorado in mid-June. Until then, he is not sleeping due to the painful muscle spasms at night 

Those of you that know Steven, have witnessed his selfless and generous spirit. He honestly has never done a bad thing in his life. Those of you that don't know Steven, have enjoyed the pictures of family and nature that he shares.  He gives 100% of himself to his family, his job, his friends and his church. No ever feels they are not first in his life.

And now it's time to give back to him.

He is a teacher for Douglas County Schools in Colorado and has worked hard to provide a life so Chisa could be at home with the kids while they are growing up. He won't be always able to work, and Chisa's next job will be helping to care for him.

We don't know have quickly his ALS will progress but do know that there are items he will definitely need to be safe at home for the short and long-term: ramps built to go into the house, safety bars in the bathroom, a wheelchair and most likely a handicap accessible vehicle. 

We will also eventually have a collection of his photographs put together to help raise money.

I set the money total kinda high...he might need more someday. Anything left after medical and safety expenses would go to Chisa, Liana, and Daniel.
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I have a progressive neurodegenerative disease that destroys nerve cells in the brain and the spinal cord causing weakening muscles and problems with walking, use of arms and hands, speaking, swallowing, and breathing. Besides that I'm a very lucky guy!!
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One of the many reasons I love my daughter: she feeds me donuts.
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My new, fancy power wheelchair was delivered today! Not quite as exciting as getting a new car or something, but happy to get it nonetheless. I'm doing my best not to run over Meggie, but she's not making it easy!
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Child labor. Thankful for my kids. It's weird that my 8-year old son is like 50 times stronger than I am. In fact, my 10-pound poodle is stronger than I am! My body is so weak now. The good news is that I'm doing well on the INSIDE. My heart, my spirit, and my mind are doing well.

"That is why we never give up. Though our bodies are dying, our spirits are being renewed every day."
2 Corinthians 4:16
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$37,180 of $50,000 goal

Raised by 306 people in 10 months
Created May 3, 2018
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$200
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16 days ago
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24 days ago
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