Steve Muller's Brain Tumor Fund
We know he will face this challange with as much drive and passion as he puts into cycling, kayaking, running, skiing, photography, and being a grandpa.
Our parents are part of a wonderful community and loving extended families, and people have started asking what they can do to help. While we realize how lucky our parents are to have health insurance, a safe home, and a support system, we know that with a high deductible, and Dad not being able to work, expenses will add up.
We hope this fund will make finances less of a concern. We also know that through gifts given here, our Dad will feel the love, comfort, and positive energy that are so important during this time.
He will be sharing his journey through pictures on Instagram. You can see beautiful Montana photos there as well.
Much love and gratitude,
Maegan Dougherty and Sara Muller
June 2016 - Steve and Patti at the New Jersey park where they met as teenagers, and their grandsons now play
July, 2014 - Glacier Challenge Triathlon
July, 2014 - Backyard slackline with the grandsons
Patti and I want to thank everyone for your prayers and support through this difficult year. It has been almost one year since my seizure and brain cancer diagnosis.
My last MRI done in December was good- meaning no new tumor growth. Doctors say the tumor is stable, which is good news - from their perspective. I'm not out of the woods yet, because there can always be hidden cancer cells.
I'm about half way through my one year of oral chemotherapy, and except for some fatigue and low energy, I'm tolerating it well. But as long as I'm able to get outside, then life is good.
In addition to the chemotherapy, I take many supplements and tinctures to help boost my immune system, along with acupuncture, reiki, therapeutic touch, massage, saunas, cannabis, exercise, and plenty of sleep. We eat mostly a paleo/ketogenic diet - low carb/high fat. All of these protocols are beneficial for fighting the cancer and boosting my immune system. We continue to research and add treatments, etc as we discover them.
My latest challenge now is having some expensive dental work done. I have 2 infected teeth that need to be removed. The dentist feels root canals and mercury filling are a big problem and a cause for disease throughout the body. This surgery ( in January or February) has to be timed with my monthly chemo, since my blood levels are low. The infections could also be causing some low blood counts.
Have a great winter,
Steve and Patti
He is doing 5 consecutive days of chemo per 28 days, and continuing consistently with recommended supplements and meds. During the chemo week, he has less of an appetite, some fatigue and malaise, and also hope that the chemo is doing good work.
Overall, feeling pretty good and enjoying each day with gratitude, hope, and appreciation!
At this end of this four week treatment break, he will have an updated MRI and then start a double dose of chemo, 5 consecutive days per month, for about a year.
Mom and Dad continually express gratitude for all your caring and support. The funds gifted here have greatly lessened the financial stress during this time. The in person support and care, and the love and prayers from afar have been abundant. Please continue to keep them in your thoughts and prayers, and to stay in touch. Thank you!
Tuesday he was feeling good. Wednesday he had some shaking and numbness on his left side, and went to the ER. They attributed it to a change in his anti-seizure meds, and kept him overnight for observation just to be sure he's okay. There have been several adjustments to his meds due to his body's reactions, the doctors' knowledge, and also my dad's intuition based on the research he has done. The good news is Wednesday's labs showed his white blood cell count is up a little since Monday, and a CT showed that the brain inflammation from the infection has continued to decrease since the last scan.
Hoping to hear from my mom this morning that he's up walking around the hospital and asking her to bring him his coffee.