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Stem Cell Magic for Erica Kathleen

$11,296 of $15,000 goal

Raised by 151 people in 4 months
Hi friends So many of you have generously asked what you can do to help... and wanted & wished to be able to take my pain away.
Now, there IS something you can do and I’m being my bravest right now (ahem) and asking for your help & support.
My blood disorder (hemochromatosis) has destroyed my joints & damaged my bones. The ones we’ve looked at so far ... my neck, spine, low back, sacrum, and both hips. All deteriorating.
My doctors, X-rays & MRI’s say that I need many surgeries. One is total hip replacement of both of my hips. My paperwork is heavy & reads like “Severe, Advanced, Degenerative”
Up until now, I’ve tried to accept that this is how it is. I’m falling apart, literally. Things are just going to continue to deteriorate, until I’m in a wheelchair... and who knows what else.
Pretty rough.
The last specialist I went to, told me to avoid the surgeries at all costs. She told me to research Stem Cell Therapy. “It’s not approved by the FDA, but you NEED to research it. This is your job. I can’t do anything for you. There is no medicine I can give you. You NEED to look at Stem Cell Therapy.” ... then she winked at me
So I’ve done the research and it looks soooooo promising! I HAVE HOPE! I have hope that it can & will actually REGENERATE the damaged parts. They will draw bone marrow from my hip bone, concentrate the stem cells & then inject them into the damaged areas. The stem cells tell your body to create NEW CELLS
If I could move, I’d be dancing and singing and shouting around my house... I’m SO EXCITED & bursting with HOPE
So.
Ahem.
It’s super expensive. It is not covered by insurance. I have to pay half of it when I book the procedure & the other half 2 weeks before.
So, I’m holding out hope that miracles can happen. Not that things will just “be ok”, but that they can and actually WILL get BETTER
If you’ve ever wanted or wished you could help me, now is the time.
It’s hard, being bold enough to ask for help.
But you know me, I can do hard things.
Thank you, from the bottom of my heart.
Thank you for not giving up on me.
I love you.
xo, Erica Kathleen
❤️
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UPDATE: I went to a new stem cell clinic yesterday for a consult & They are awesome! I don't have enough money to do all of my joints, but I have enough to do some ;) SO... I'm booked for September 10th! When the girl was explaining to me, she's like, "most places do one injection per site/area... we do 15-20, because we want to be sure the stem cells get in all the areas to help heal better." . . . a-HEM! So... I'm having 4 'areas' injected... neck, back & 2 hips. Are you doing the math? 4x15 = 60 and 4x20=80. 80 needles! . . . ok. I can do this. I can do this. I got this. I also wanted stem cell IV & asked if I could do it while I was there yesterday. She said YES & I was sooooooooo EXCITED!!! out with the needles to start an IV . . . 1st vein . . . digging, digging, digging... needle moving around under my skin in search of the vein . . . after so long, I'm like, "OK! That's about all I can take! Take it out & try another spot." . . . so, she does, and it's a replay of the last vein . . and I say enough. She gets the doctor & says he'll get it on the 1st stick. AHEM. So, now there's a needle in my WRIST... I can feel it digging on my bone . . . I take as much as I can, before I feel like I'm about to throw up on all of them .. . and then call it, again. So then he gets out the ultrasound machine, to find another vein & guide another needle . . . JESUS CHRIST . . . more digging & digging & I'm trying soon hard to stay calm & breathe & if this was any other day I would have called it, but you know how badly I want these stem cells in my body! He eventually got it & I got the cells into my bloodstream. Hours & hours later, after I'd gone to dinner with my hubs, we're sitting outside & my heart is racing, I can't catch my breath. I'm crying & shaking like I'm buck-naked on a snowy mountain. I think it was a very delayed response to the trauma of the needles... aaaannnnd probably thinking about the 60-80 needles I'll be getting soon. I think it was a full-blown panic & anxiety attack. (Insert emoji of person crying & completely losing their shit here). Again, THANK YOUUUUUUU to each of you who has donated & helped me out in this crazy time, that I hope will soon be a memory.
My gofundme is still open & donations will keep adding up until I have enough to do the joints that don't get done this time.
I couldn't do this without you.
it takes a village.
thank you, from the bottom of my heart, for being part of my village.
I'm really looking forward to being on the other side of this miracle.
I love you.
xo, EK
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UPDATE: Stem Cells postponed ;(
My appointment monday is cancelled.
Short reason: I don't trust the place I was scheduled at.
Long reason . . . oh boy, it's a doozy.
Yesterday I was packing up the car for the road trip to get the stem cells. Then I got an email from them with my paperwork . . . & I didn't recognize the doctors name.
He's not the doctor they show on their website.
So I googled it.
Shit came up & I was like "OOOOHHHH NOOO!" ~cringe~
... part of me wanted to close the browser & pretend I never saw it.
I want, MORE THAN ANYTHING, to get this procedure so I can hopefully start healing.
I have had gut instincts & feelings & red flags before & ignored them.
I've been burned before, and I never want to be burned again.
So, I dug.
This doctor, the one scheduled to stick needles into my neck & spine & every joint in my body...
are you ready for this shit?
from the Colorado Medical Board:
He's had his license suspended.
His license is currently restricted.
His "care of & prescribing practices failed to meet generally accepted standards of medical practice"
He has been "diagnosed with a physical or mental illness or condition that impacted his ability to practice medicine with reasonable skill and safety to patients."
Unprofessional conduct" by "terminating the professional relationship" with a patient and then "engaged in a sexual relationship" with that patient.
There's more, but that's more than enough.
When I confronted the company, I got ...
"that is not the man he is today."
Cool. and perhaps true.
and I'm all for 2nd chances,
but he's not sticking needles in my spine.
Then I dug into their FB reviews.
I'll just say, there were red flags.
so. DEEEEEEEP BREATHS.
I'm trying not to let this crush my spirit.
I'm trying to not fall apart or completely lose my shit.
I'm trying.
I WILL be getting the stem cells.
Mark my words.
Not on Monday.
Not with that company.
Not with that doctor.
Another kick in the nuts...
all of the other places I'd contacted, were much more expensive.
Now I see why.
So, I'll keep breathing & keep going
& keep researching
until I find the best place with the best doctor.
I WILL get stem cell treatment.
and I will fucking get better.
I've raised my gofundme goal (link in bio)
I also have kick ass art in the shop (link in bio)
thank you for being here.
thank you to all of you who have helped me,
supported me,
& not given up on me.
I am so grateful you're here.
xo, Erica
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this was me last night . . . (read till the end... there's an upswing)
Some days, I can rally like a champ. Some days I can see a light in the darkness.
Some days.
Not today.
Today, I’m all out of grace.
I’m all out of “fighter” and “warrior”.
I feel. Completely. Fucking. Deflated.
I’ve had all I can fucking handle.
I can barely walk.
I started crying while trying to feed myself, because it hurts to hold a motherfucking fork.
Another scan today and another fucking diagnosis of another fucking condition caused by this fucking blood disorder.
Seriously.
I can FEEL IT.
So the diagnosis doesn’t surprise me, at all.
And somehow, I don’t know if any of this even matters. #done
Pity party post over.
. . .
Then, this morning, I can breathe a little easier & see the light starting to come back. My stem cell procedure is booked for next Monday. My love & I are heading to Colorado to have it done. I am in the most loving hands ;) I'm having 15 different joints injected & also getting stem cells through an IV.

I am so excited & sooo hopeful.

When I get better, you will be getting a hand-written note from me. But for now, know that your donations have given a girl HOPE, who had lost it completely.

I'm still $1,800.00 short. If you can donate, PLEASE DO.

I am also opening up the shop for a quick 24 hours & ALL of the money from art sales will go to my stem cells. So if there's something you've been wanting to buy, now is the time. If you're thinking of gifting art for Xmas, now is the time to grab it.

www.ericakathleen.com

I could not be doing this without you.

Thank you.

I love you.

xo, EK
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Sooo... I got some bone scan results yesterday. I found myself sitting in a hot car, in the parking lot of a grocery store, staring at the report, on the phone with my honey, trying to catch my breath, and crying. . . . . 4 more diseased joints found. . . . . . Him, “Are you ok?” ... me ... (crickets) ... Him “Sweetie?” ... Me, “No. No, I’m not ok. That’s 4 more broken parts, added to the fucking list, that keeps getting longer.” .... it’s just . . . a . . . LOT. . . . then I put the car in reverse, lit a smoke, & drove my ass to the beauty supply store. I may spend most days in bed, but I plan on having an absolute rock star hairdo you’ll have to wait to see it. It’s one of those hairdos with ‘many steps’. HUUUUGE HUGS of gratitude to everyone who has helped me. I know it sounds cliche, but I TRULY could not do this without you. Know that, and know that I LOVE YOU #thankful #grateful #love #kindness #caring #bekind #compassion #stemcelltherapy
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$11,296 of $15,000 goal

Raised by 151 people in 4 months
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