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Stay Strong Sofia!

$51,840 of $5,000 goal

Raised by 619 people in 4 months
Created July 1, 2018
Fundraising Team
on behalf of Joyce Brake

Family, Friends and Neighbors-
For those of you that haven’t heard, Our sweet, spunky, sassy 10 year old, Sofia Sanchez, an incoming 5th grader at Kingsley School in Downers Grove, has just been diagnosed with the devastating news of having cardio myopathy. Cardio Myopathy is an incurable disease that causes heart failure. Sofia is currently in critical condition at Lurie Children’s hospital in Chicago undergoing invasive procedures to determine just how quickly she will need a heart transplant. Unfortunately in the meantime, her liver is beginning to fail her.
As any parents would be, Dave and Natalie are fearful to leave Sofia’s side right now. This is obviously going to result in a decrease of income, which is stressful enough without the burden of having a critically sick child. With this diagnosis, Sofia’s medical bills will continue for many years.
Let’s all do our best to reach out to Natalie, Dave, Anthony, Jonathon and especially Sofia and show our support from a great community that is here to lift each other up and help however we can. No one wants to experience the uncertainty the Sanchez family is dealing with right now. If you are able, please help and support Stay Strong Sofia!
Please keep following for updates as we have them. Thank you.
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Sofia update 10/11/2018
From Natalie-
Sofia had her second catheterization/biopsy and her pressures again were at 100% and this time with ZERO rejection. The steroids she was given after surgery worked and cleared up the little bit of rejection she was experiencing.
While staying at the Ronald McDonald House Sofia is attending Cardiac Rehab three times a week and has clinic visits once a week. Sofia is feeling great and is looking forward to returning home!
Thank you for continuing to keep her in your thoughts and prayers.
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Sofia update 9/14/18
From Natalie-
Sofia had a catheterization on Tuesday. It showed 100% pressure/squeeze of the heart, but with a little rejection. We’re hoping that the steroids will clear up the rejection. Sofia was discharged from the hospital Wednesday evening and we are now at the Ronald McDonald house for the next 4-6 weeks. Sofia is feeling great and really enjoying the fresh air. Thank you all for your continued support.❤️
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Sofia update 8/29/18
From Natalie-
Update on Sofia...
First we would like to thank God! Also, we want to thank and bless the donor and his/her family.
Yesterday started off slow. Sofia was intubated and paralyzed. The plan was to take the paralytic off sometime during the day and the breathing tube out the following day. As The paralytic started to wear off, Sofia quickly started communicating with us that she wanted the breathing tube out. She started breathing over the tube so the doctors turned down the oxygen and she was able to breathe on her own. Sofia was extubated 24 hours after her heart transplant! She was able to drink and eat a little. She said that this surgery is nothing compared to the last, when they placed the HVAD. Doctors are amazed at how quickly she is starting to recover. With the HVAD Sofia could not hear her heartbeat, but only a motor running.The best part of all was when she was able to listen to her heart beat again. It was very emotional. And we are so grateful. Although Sofia is doing well, she is extremely exhausted. We do expect her to make a full and quick recovery. We are hopeful that Sofia will be home by November. Thank you all for your prayers and support. ❤️
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Sofia update 8/27/18
From Natalie-
Sofia is out of surgery! Surgery went well. She received a really good, strong heart. They will keep her asleep for the remainder of the night. Thank you for your prayers ❤️ God is good ❤️
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$51,840 of $5,000 goal

Raised by 619 people in 4 months
Created July 1, 2018
Fundraising Team
on behalf of Joyce Brake
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