Stand for Eden
That’s why, on December 23, 2015, when she did a bridge (a backbend where you push yourself up from the floor) on our living room floor and then collapsed crying, I shook it off. When she cried that her legs, back and hips hurt, I gathered her in my arms and rocked her, shushing her, telling her to calm down.
But this time, Eden didn’t pick herself up off the ground, dust herself off and go on her next crazy adventure. Thirty minutes after she started crying, she stopped. Her face changed—it kind of filled with wonder—and she told me, “Mom, I feel like my feet are sleeping.” I looked at her body, which seemed to be posed awkwardly on the bed, and told her to move her leg. She stared at it, saying, “I can’t, Mom.”
I put her and her sister in the car and rushed to the hospital, a day that started her 52-day stay in the hospital where we learned that that backbend turned our independent daredevil into a paraplegic. That backbend, something she had done hundreds of times before, had hyperextended her spine and caused the artery that feeds her spinal cord to stop pumping blood, causing a stroke in her spinal cord. The extent of damage is unheard of. Her stroke was in T8/9, she stretched the ligaments in T3/4, and the damage extends up and down her spinal cord from T2-T12.
In one instant, that backbend altered our lives forever. Eden is now in a wheelchair. She lost the ability to sit up on her own. Her bowels and bladder do not work. We have to wake up twice a night to move her so she won’t get pressure sores from sleeping in one position too long. She also must remember to do pressure relief exercises every fifteen minutes she is in her wheelchair to protect her skin. She cannot regulate her temperature so we have to watch her for signs of her getting too hot or too cold. She cannot reach a sink to wash her hands or brush her teeth. Our bathrooms are not equipped for her to easily shower or bathe. The list of what she now cannot do could span pages.
But what that backbend hasn’t done is take away Eden’s spirit. Her physical therapist, two days after meeting her at acute rehab, nicknamed her, “Daredevil Eden.” Her therapy team said she accomplished more in two weeks of rehab than most kids accomplish in six. Her current PT, the first time she treated Eden at the house, said most kids quit after ten minutes of therapy, but she kept pushing Eden for over an hour because Eden never complained. Eden started back at school one week after she was discharged from the hospital—less than 2 months after being admitted to the ICU where she was hooked up to machines in every way possible.
Because of Eden’s spirit and resiliency, we have never lost hope in her full recovery. Anyone who encounters Eden, including doctors, nurses and therapists always have the same response: “If anyone can recover from this, it’s Eden.”
Eden is going to Kennedy Krieger in Baltimore in April for two weeks of intense physical therapy. After that, she will go to Frazier Rehab in Louisville for three months of locomotor training. Although walking is our ultimate goal for Eden, we have more than the end goal in mind with these therapies. 90% of children with spinal cord injuries before age ten develop scoliosis later on in life. If she does not start standing, her bones will become weak and brittle and she will develop osteoporosis and could break a bone with the lightest tap. Her kidneys are at risk, and she could develop arthritis. These therapies may also help regenerate her bowel and bladder functions and bring back sensation to her lower body. These therapies will also provide what we all need most of all: Hope.
- Kylee Hoelscher, Eden's mother
Eden is five. She did a backbend on her living room floor and is now paralyzed from the waist down. But her story will not end here. We will do anything and everything possible to help her recover. Eden cannot stand on her own, so now we will Stand For Eden and we ask you to join us.
It is our goal to raise funds to assist the Hoelscher family (Nic, Kylee and sister Isabella, age 9) through this extremely challenging time. Every little bit counts. Not only are we looking to raise funds but to ultimately spread awareness, so please feel free to share Eden's story. We are sincerely touched by the support Eden has received thus far and thank you in advance for any contribution you may be able to provide.
Below are just some of the many ways your donations will help.
1. Medical bills so far ($28,000)
2. Renovations to house for accessibility ($10,000+)
2. Flight to Kennedy Krieger in Baltimore ($2,800)
3. House rental in Baltimore ($5,000)
4. Car rental in Baltimore ($1,100)
5. Caregiver at home ($675/week)
6. Upsee Kit ($499.00)
7. Scooot ($595.00)
~Information about Kennedy Krieger~
We provide an intense, medically supervised therapy program that offers state of the art therapy; ABRT- activity based restorative therapy, and a variety of modalities to promote restoration of function. Our innovative rehabilitation program includes an experienced interdisciplinary team that consists of licensed therapists, physicians, nurses, nurse care managers, social work and financial counseling. We generally start with evaluations by our physicians and therapists and then design an outpatient and home therapy plan tailored to her individual needs. We offer physical therapy, occupational therapy and aquatic therapy services. We generally recommend at least a 2 week stay for therapy. Patients will often return on a regular basis to update their home therapy plan.
Here are video links about the program:
Tour of the Center - https://www.youtube.com/watch?v=aOk43B1sQF0&list=PL5170B26D0463B5CA&index=21
Aquatic Therapy - https://www.youtube.com/watch?v=0F3YU3tXVW0
Therapy - https://www.youtube.com/watch?v=tLrLk0z5F88
For those of you who don't know, we are now in Louisville, KY at Frazier Rehab for 3 months of locomotor training. Eden goes to therapy 5 days a week for 1-1/2 hours a day. 1 hour of therapy is on the treadmill, and the last 30 minutes are spent doing other exercises such as walking with a walker or sitting balance or standing therapy.
Eden is doing a phenomenal job at therapy. Her injury is right at the belly button and she had no feeling or no movement below. We are so happy to announce that she is making tiny steps toward recovery that we believe are only the beginning!
She is now getting goose bumps below her injury when she is cold. Her legs and feet have been sweating when they get hot. Her lower abs have begun to kick in, along with her glutes, and the newest, biggest news is that on Friday, when her team of therapists had her on the treadmill, and they were moving her legs in a walking motion, they felt a response in her leg muscles!!!! Not only that, but when they had her standing, she was able to bring her right leg forward to kick a ball!!
Our family cannot express how much we appreciate all the donations, kind emails, compassion and all the Facebook shares! This is not something any family ever wants to even imagine living through, but we garner strength from each one of our supporters.
If you would like to follow Eden's progress (and see that amazing video of her kicking a ball!!!!), visit her Facebook page, where we put all of her updates.
Once again, we thank everyone with all of our hearts. Thank you for helping us Stand For Eden.
Nicholas, Kylee, Isabella and Eden Hoelscher
Eden has a long road to recovery, but because of your donations, kind words and prayers, we know she will find the strength to overcome any obstacles in her way.
Nicholas and Kylee Hoelscher
I hope these therapies help her but , if not, know she will still have a great life. I was born with spina bifida (l5-s1) and I use leg braces (many with my condition use a wheelchair). I also have no bladder and bowel control. Yet, I have a masters degree (straight a's), kayak, travel, and do many other great things. Things take more effort and a perseverent spirit but it makes you appreciate little things more,.
Please check into Shriners Hospitals for treatment/rehabilitation. My daughter had spinal surgery at Shriners Philadelphia - they are a blessing and at the very top of their field for spine care. While I was there, I met another mom whose son was severely injured in a car accident (broken neck) and was told he would never walk again. They had him walking within a few months. No one is turned away because of inability to pay. My insurance would not cover my daughter's surgery since it was a new procedure and not FDA approved yet, Shriners took care of us anyway. Good luck!
What a beautiful girl you have, I have to tell you, she has a bright future ahead! My husband became paraplegic at age 8, actually his 36 year anniversary from becoming paralyzed is tomorrow, 3/16. He is now 44 and the most amazing man in the world. He is positive, happy, and everyone loves his spirit! He teaches high school, coaches and plays wheelchair sports. Her spirit sounds much like his, and I know she will do great things! sending good thoughts your way!
Never give up, Eden!! I suffered a C5 -C7 incomplete spinal cord injury. I'm technically a quadriplegic but I am able to use my arms and legs. Just keep working towards your goal, no matter how much or how little progress you're making. You have a great attitude and are a beautiful girl.
Please check into Patient Airlift Services (PALS) to help with flights for you guys. They are an amazing organization that arranges FREE air transportation for situations like yours. They will fly patient and family. They have a facebook page or their website is www.palsflight.org. Praying for Eden!!!! ♥
Look up Tom Loud, healing on youtube. Pastor Loud has a Church in seattle that has a regular healing service and prayer service. They have seen some powerful miracles for people in wheelchairs that were much more crippled than your daughter. Sometimes these spinal injuries respond to what is known as Orthomolecular therapy. You can read, Orthomolecular Medicine for Everyone by PHD/MD Abram Hoffer. They use very high doses of vitamins, amino acids, antioxidants , minerals, etc. In particular high dose Vitamin D therapy used with a colloidal mineral supplement may give her body the added impetus to repair itself. You might read and look up Dr. Joel Wallach and his book, Dead Doctors Don't Lie or Epigenetics. He has specially formulated colliodal mineral supplements to rebuild bones, cartiladge, etc. See Jeff Bowles book on Amazon, on his Miraculous results using High Doses of Vitamin D to repair his bone structure. Vitamin D is a hormone that acts as a precursor to generate a NATURAL steroid Another potential therapy is Low Dose Naltrexone therapy. You can research this at lowdosenaltrexonedotorg. They found it can often be a miracle therapy for MS, Fibromaylgia, The other substances that may be of benefit are serrapeptase, known in switzerland the miracle enzyme. Its an all naturally massively powerful antinflammatory. Hyaluronic acid or HLA injections often yield miracle results.
I know our stories are not identical, but too similar not to comment. I had a spinal cord injury from a simple gymnastics move at age 33. I found out I had Ehlers Danlos Syndrome, and a tethered cord (not seen on imaging, clinically dx'd after bladder sx's and slowly losing use of left foot/leg. Many EDSers are very active, very flexible kids. The temperature dysregulation is Dysautonomia, mine came to a head after my freak accident that I also initially shook off. I'm sorry if I'm telling you something you already know...but if you don't, I just want to help. Much love to your beautiful Eden and your family ❤️ My entire story is on my website if you would like to know more❤️
I am a pediatric chiropractor and I have seen cases of full recovery from these types of injuries. Please take Eden to a pediatric chiropractor. Not all chiropractors pop or crack, we use very gentle methods to help children recover from instances like this. She also needs specific upper cervical chiropractic care (QSM3 is the most progressive) as well to have the best chance of recovering from this. The body can heal itself under the right conditions!
In 1987 while living in Japan, I had a severe injury, such that 3 independent orthopedic surgeons advised me on 3 separate occasions, that I will never be able to turn my head or raise my arms again. After a year of insufferable circumstances, I saw a man on television, Mr. Kozo Nishino, who is a master of 'KI' power ('CHI' in Chinese), bio-electrical energy, which is inherent to all living creatures. He spoke of his ability to heal people with this enigmatic energy. He also was able to repel people backward about 12 feet with this energy emitted from his hands. I had everything to gain and visited him the next day in Shibuya-ku, an area in Tokyo, in the Nishino building. I asked him to heal me. He instead introduced me to his senior student, Mr. Yoshio Yuzaki, then manager of Nishino's school where the development of this intrinsic energy is taught. Mr. Yuzaki placed his hand upon my neck at the top of my spine for forty minutes, at the end of which, I was for the first time in 1 year, able to turn my head either way and raise my arms. I began learning at that school. Mr. Nishino demonstrated on me that he could propel me back 12 feet with his KI power. Had he not done so, I would never have believed it to be true that he could do so. After some weeks, Mr. Yuzaki allowed me to visit his home in Machida-ku, Tokyo every week for private lessons. That same year, my twin brother in Los Angeles was hospitalized and had a pulmonary thrombosis and required, according to western conventional medicine, the surgical removal of his leg, which had filled with blood clots, because of a bungling physician who had made a minor knee surgical procedure go wrong. Mr. Yuzaki flew with me to L.A. and applied his 'laying on of hands' (non-religious), to my brother's blackened, swollen leg and balloon-like foot for 3 consecutive days intermittently. He saved my brother from amputation and saved his life! At the age of 5, my now 18 year old daughter, pulled a pot of boiling water from the stove onto her chest. All of her skin came off when the paramedics removed her shirt. The doctor at Cedars Sinai Hospital in L.A. advised me that my daughter would need skin grafting and eventually plastic surgery, that there would be thick scabbing and permanent scars from the severe burns. I signed a release from the emergency room, took her home and used my hands to transfer my now strong 'KI' into her chest, every day for forty minutes. At the end of 2 weeks, her skin turned a light rose pink, from what had been a raw and hideous, ugly dark maroon color. Ther were no scabs, there are no scars! In 2004 I began healing a Persian-Jewish man who owns Glatt Kosher Market on Pico Blvd. for a debilitating disease common among Persian Jewish males; an atrophy of leg and hand and arm muscles, which leads to total incapacitation. hile I was able to energize and revitalize him with each treatment, I absorb the negative, debilitating energy, and had great pain and great difficulty to rid myself of it. So, I sent him to Mr. Yuzaki who at the time owned a school of his own in the Shinagawa district of Tokyo, called Yuki Juku. He was able to help him recover tremendously after his 16 day visit there, but he had a relapse upon returning to the U.S.A. because he continued to smoke and did not do his breathing exercises. Moreover, Mr. Yuzaki told him that it would require daily treatment for 1 solid year to totally heal him. Anyway, I believe that Mr. Yoshio Yuzaki or his powerful co-teacher, a woman, is fully able to heal your daughter now, while the condition is relatively new. Whether you dismiss me as a liar, a quack or whatever, I wish your daughter a full a quick recovery, whole-heartedly.
Eden's story really touched me. She has such a beautiful smile, I'm so, so sorry that she's going through this, and I feel for your family. I've been teaching ballet and dance for several years now. I will pray for the day that Eden waltzes into the studio to begin lessons to fulfill her dream of becoming a ballerina.
You've got a lot of courage young lady. Keep smiling. Guy Trudeau
Praying for Eden and your family!! So Happy to see you set up a Facebook page for her!! Stand for Eden
Is there a way I can get in touch with Eden's mum Kylee Hoelscher so I can have a one-to-one correspondence re treatment for the little girl from this part of the world - Sri Lanka
Reliv nutrition. help the body heal itself: n May of 1943, as U.S. forces were ramping up efforts in World War II, Theodore entered the Army. He soon picked up the nickname “Dr. Ted,” which stayed with him for the rest of his life. He was wounded with shrapnel while parachuting over Europe. His injuries led to the removal of two discs from his lower back and put him in a wheelchair for some time. (Over the years, he built up his strength until he was able to walk with the assistance of canes.) Dr. Ted earned the Purple Heart and was discharged in 1945. Work in South America Fascinated by the role of nutrition in large animals and the effect of their nutrition on human consumption, he studied the effects of nutrition on dairy herds in South America. By applying proper nutrition to balance the body chemistry of the herds, he was able to help reduce the occurrence of bovine mastitis, an infection that plagued the dairy cows in the region. Realizing that the key to animal health lay in proper nutrition, Dr. Ted applied those same principles to human health. For an entire decade, Dr. Ted researched various formulations of vitamins, minerals, herbs and other ingredients to create a supplement that provided optimal nutrition for humans. He began to supplement his own diet with the formulations he had created. When he experienced significant health improvements through better nutrition, he knew he had the key to help others too. Dr. Ted was eventually able to walk with a cane.
Have you considered applying to UnitedHealthcare Children's Foundation for a grant to pay medical costs not covered by insurance? They have money available and have helped other children like Eden. http://www.uhccf.org/apply/learn-more-about-medical-grants/application-process/
I saw Eden's story on facebook and what the poor little girl is going through. I would recommend you research stem cell treatments in Panama. My grandson is getting stem cells for his autism but they also heal spinal cord injuries. https://www.cellmedicine.com/, it is worth looking into.