Sofia's Medical Fund

$2,605 of $50,000 goal

Raised by 16 people in 20 months
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Hi my name is Sofia. Ive been diagnosed with several diseases affecting my GI tract. As a result, i cannot eat food anymore. I require a feeding tube and and Special supplement drinks to be fed. I also have undiagnosed symptoms caused by a possibly very rare disease that requires me to be seen by advanced medical institutes, which are not covered by my insurance.

I want to live life as normally as possible. I dream to become a Gastrointestinal Doctor and help those in need like me and start a Gluten free bakery.

I live with my parents who pay for my medical needs. My family and i would greatly appreciate it if you would be able help me so i can get the treatment i need to live again.
THANK YOU SO MUCH AND GOD BLESS YOU ALL.
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Helllo Everyone,
Sofia had cardiac arrest on 4/13/18 resulted in significant brain damage. She is in coma though opens eyes at times and has no response to any verbal cues.
She recently has tracheotomy to get oxygen because she is not able to breath on her own enough to get sufficient oxygen . She is till in ICU
It was very difficult decision to make to have her tracheostomy which her doctors were against. Doctors said she will not recover at all but to live as a vegetative state. Doctors told us to let her die since she will be in vegetative state.
We believe even though she is in vegetative state, she is our valuable daughter, sister, granddaughter, niece, cousins and friends to our family and friends...
We decided to bring her home to be taken care of until the Lord calls her to be with Him, someday...where there is no suffering and pain.
We want to give best care at home. This means we need to hire good caring caregivers 4 to 5 days a week while her dad and mother at work. Hiring caregivers are not cheap... can be up to $2000 to 3000 per month. This amount is not including if we need to give us break for night care...
We believe God will provide for her best care if He wants her to live continuously at home under our care.
Thank you for everyone’s prayers and support
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Hi all! Sorry its been so long. Ive been out of the hospital for a little over a week now. I developed sepsis and was hospitalized for 3 weeks. It was the most difficult hospital stay ive ever experienced. Im on many more meds but im grateful that the pain specialist prescribed medication that is managing my pain...prior to going to the hospital i didnt have anything that helped. Ive also been prescribed other medications by the other drs to manage my ever so many symptoms. Although i hate taking meds, im now so grateful for how they have helped.

So now i have to gain my strength back ive lost. During my hospital stay, i was not allowed to eat due to my dry heaving/throwing up from the extreme abdominal pain. So my BMI is around 10 and its crucial i get it up. Im hoping it will get better as i recoup at home. Thank you for your time and reading! I will try and post more updates sooner :)
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Hello Sofia here! So lots has happened. Because my GI problems have worsened, im now being fed through IV nutrition in my chest. I currently have an appt with Mayo Clinic in about month so im hoping they can provide more help. Thank you to everyone who has donated. I cant express how much its helped!
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Hello its Sofia!
So about 3 1/2 weeks ago i had surgery to place a tube into my stomach and intestines so that i can now feed from there. Its a more long term feeding replacement instead of the Nasal tube I had. I have seen a Neurologist who diagnosed me with POTS (postural orthostatic tachycardia syndrome ) and starting meds for that. Its not going to help my feeding situation but will help with other symptoms. Im going to be seen by a new GI dr in January and hopefully we will have more success with him. My parents have contacted Mayo clinic and UCSF and i have to wait till next year to be seen. Some files need to be filled and unfortunately there is a waiting period in order for them to accept me. Praying this will be a speedy process!! Thank you to everyone who has been so generous and donated! I cant express how much it will help my family to get me the medical treatment i need. I will be updating more! God bless!
GJ-TUBE as a longer term feeding solution.
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Read a Previous Update
Jose Rizo
2 months ago

Keep fighting!!!

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$2,605 of $50,000 goal

Raised by 16 people in 20 months
Created November 20, 2016
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Jose Rizo
2 months ago

Keep fighting!!!

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