Sock-it 2 Hunter Syndrome - MPS2

$41,770 of $750,000 goal

Raised by 646 people in 8 months
Created June 7, 2018
Fundraising Team
Doctors at Nationwide Children’s Hospital in Columbus, Ohio have conducted research that leads them to believe that a cure for MPS II has been discovered. Dr. Fu and Dr. McCarty have conducted years of research and are relying on parent-led organizations to raise the funds needed to carry the drug development process through clinical trials. Human clinical trials involve administering the drug in a controlled environment to gather data on efficacy. This is usually done before making the drug available to all affected patients.

These funds will cover expenses such as securing the facility where the clinical trials will be held, along with building of vectors that will be used to introduce the cure to our boys. The remaining balance of the $2.5 million dollars will be used to cover medical costs, room and boarding costs, and miscellaneous costs for the patients who will be participating in the clinical trial. If all deadlines are met, Doctors hope to start clinical trials by end of Summer 2018.

Our Mission
Sock-it 2 Hunter Syndrome is a foundation dedicated to fundraising for research and development towards finding a cure for MPSII. To that end, we encourage the general public to take action through social media, by sharing our story, participating in events and directly making donations. 

Our board of directors is a combination of loving and caring individuals with a passion for preserving the integrity of our message: Our aim is to not only find a cure for Hunter Syndrome, but to fund research for improved treatment options. 

Sock-it 2 Hunter Syndrome is an IRS approved non-profit organization (Tax ID 81-4264057) . All contributions are tax deductible and used to directly fund research and development designed to find a cure for Hunter Syndrome.
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To our amazing donors, followers, friends and family,

We would like to update everyone on the fundraising effort over the last few months. It has been a whirlwind of publicity, shares, followers, and of course donations. From the lemonade stands to the national coverage of our story, we feel so lucky to have such wonderful people fighting for our kids.

First off there have been some changes to the trial. Dr. Fu has decided to continue her research efforts on another project. We wish her all the best and thank her for her amazing help thus far. Dr. Kim McBride, a genetics doctor at Nationwide Children’s Hospital, will now lead and supervise the trial. Our foundation had a wonderful conversation with him last week and feel very confident in his ability to lead this trial. He has been working right along side Dr. Fu until this point, and has plenty of experience in similar trials involving other Lysosomal Storage Disorders. We feel fortunate he is involved and believe he has our children’s future and health at heart. In addition to our fundraising efforts, Dr. McBride has drafted a grant proposal to secure a large financial contribution from the FDA. As a collective community we are about $615K away from our $2.5M goal.

We are pleased to announce that as of today, Sock-it 2 Hunter Syndrome will donate $75K, which, per Dr. McBride, will support the time costs associated to researchers and clinicians integral to the clinical trial process. Our foundation is able to contribute to a cutting edge gene therapy trial because of the amazing support from our donors.

Our foundation’s personal goal is to raise $100k by the end of summer to help close the remaining cost gap.

To make that happen please continue to share our gofundme page, follow our story, and connect us with ANYONE who can help. It has been an amazing summer filled with generosity and support. We can’t thank you all enough. This is truly a community effort and we are so fortunate to have the best TRIBE out there. On behalf of our team we are shouting a huge THANK YOU!!!!!
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We are so thankful to have people like you all who care about our kids. Our foundation has been so touched by the outpouring of support and generous donations. We are closer to securing the funds to start the Hunter Syndrome Gene Therapy Trial at Nationwide Children’s Hospital. We hope to have updates in the next few weeks about the trial's start date, how much we’ve raised (in addition to what is on gofundme), and how much more money will be needed. Please continue to share our story and know how grateful we are for your kindness. Big thank you's from Aiden, Ethan, our families, and their Hunter Syndrome Brothers!
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$41,770 of $750,000 goal

Raised by 646 people in 8 months
Created June 7, 2018
Fundraising Team
Funds raised will benefit:
Sock-it 2 Hunter Syndrome
Certified Charity
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Howell, NJ
EIN: 814264057
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
  2. After the deduction of payment processing fees, PayPal Giving Fund delivers the funds it receives to the chosen charity on a monthly basis.*
* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
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