Smiles for Ava
With all of that being said, this syndrome will not effect her ability to be an independent adult and follow what ever her heart desires. It will not hinder her ability to completely turn a bad day in to a good one or her ability to completely light up someone's face as they hold her or see her and for that Alex and I could not be more grateful.
Again we appreciate your thoughts and prayers and your generosity as we do what's best for our little girl.
These funds will go directly towards her medical care and a fund for her future Smile Surgery. This surgery will give Ava the opportunity to smile in her own way when she is at the right age. Again we cannot thank our family, friends and community members for all of their support.
Learn more about Moebius here
January 24 is Moebius Syndrome Awareness Day. For the rest of our lives this day will be a day that we celebrate Ava's differences. This year we are asking all of friends, family, friends of friends and family of family to "purple" out Facebook. If you have an Ava shirt or if you are showing support in your favorite purple, we would love to see you post it with #msad16 #ismileforava
Each year as a family our goal is host an event in which we can celebrate our differences and bring awareness to Moebius. If you're in the Wichita area, we would love to see you out for the first ever Moebius event at Freddy's on East 13th street. Mention Moebius syndrome at the register and 15% of their sales will be donated to the Moebius Syndrome Foundation. We hope to see you out!
Thank you, thank you , THANK YOU!