Smiles for Ava

$5,910 of $10,000 goal

Raised by 75 people in 42 months
Rachel Butler
on behalf of Ginger Elsea
At 14 hours old, our Ava was admitted in to the NICU. At three months old our little girl is already the bravest person we know and we could not be more proud of her. With in the first couple of days of her being admitted in to the NICU ‌the neurologist was able to identify that she was presenting signs of an extremely rare condition called Moebius Syndrome. This syndrome directly effects her ability to suck, swallow, and to make facial expressions and is in relation to her club feet. This diagnosis was definitely a tough pill to swallow because this diagnosis means we could never see our little girl smile.

With all of that being said, this syndrome will not effect her ability to be an independent adult and follow what ever her heart desires. It will not hinder her ability to completely turn a bad day in to a good one or her ability to completely light up someone's face as they hold her or see her and for that Alex and I could not be more grateful.

Again we appreciate your thoughts and prayers and your generosity as we do what's best for our little girl.

These funds will go directly towards her medical care and a fund for her future Smile Surgery. This surgery will give Ava the opportunity to smile in her own way when she is at the right age. Again we cannot thank our family, friends and community members for all of their support.
 Learn more about Moebius here
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Awareness allows us to get outside of our mind and observe it in action.

January 24 is Moebius Syndrome Awareness Day. For the rest of our lives this day will be a day that we celebrate Ava's differences. This year we are asking all of friends, family, friends of friends and family of family to "purple" out Facebook. If you have an Ava shirt or if you are showing support in your favorite purple, we would love to see you post it with #msad16 #ismileforava

Each year as a family our goal is host an event in which we can celebrate our differences and bring awareness to Moebius. If you're in the Wichita area, we would love to see you out for the first ever Moebius event at Freddy's on East 13th street. Mention Moebius syndrome at the register and 15% of their sales will be donated to the Moebius Syndrome Foundation. We hope to see you out!
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We are truly blessed with all of the love and support around us. From our family to our friends to strangers who don't know us from Adam. Your contribution is truly appreciated and we could not be more grateful! We are working on an event for world awareness day on January 24th! There is still time to order an Ava shirt here:

Thank you, thank you , THANK YOU!
Just hangin out!
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$5,910 of $10,000 goal

Raised by 75 people in 42 months
Created November 5, 2015
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3 months ago
Audrey Hogan
4 months ago

I want your beautiful Ava to smile and melt hearts everwhere.

Vicki McNickle
4 months ago

Ava’s story touched me.

4 months ago
Jacob Knudsen
4 months ago

She looks sweet, but bullying will never stop in this world! Sadly! Not much I could give but hope it helps a little! Marry Christmas ❤️

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