Skyla and Jayde's Journey

$33,998 of $62,000 goal

Raised by 137 people in 30 months
Twins Skyla and Jayde, who are almost 4 years old,  are amazing little angels who both have cerebral palsy. They are quadriplegic and require wheelchairs. 

The family of 6 has out grown their minivan and are in urgent need of a full size passenger van with a wheelchair lift. The outstanding $62,000 would allow them to purchase the vehicle they need in order to transport the twins to their many daily appointments such as therapies, specialists, school and to be able to participate in family activities on a day to day basis.

Please take the time to watch this short video and read their story.
8877145_1455934203.0725_funddescription.Skyla
8877145_1455935113.8726_funddescription.Jayde


Skyla and Jayde spent a total of 104 days in the NICU after birth and were then finally strong enough to go home. Alex, Desiree and all of their 4 children could finally be a family. For the next two years there were numerous 'red flags' that presented as early signs of motor challenges. They were not meeting typical milestones. Sitting, crawling, standing and walking were not achieved at this point and at the age of two the dreadful diagnosis was made;  Skyla and Jayde were BOTH diagnosed with spastic quadriplegia (a type of Cerebral Palsy affecting all four limbs) and severe dystonia (movement disorder). 

Both girls have difficulties with movement against gravity, which includes holding their head up for longer periods of time. They are completely dependent on their caregivers for all their needs, including mobility, self-care, eating (both have feeding tubes), toileting and bathing.  As their friends, we would like to share their inspiring story that demonstrates the twins and their entire family’s strengths and struggles to ensure the girls fully participate in all aspects of life, in their home and community with their family and peers.  

Coming up to four years, we have witnessed this amazing family's love and support for each other and a small village of friends and family who provide the love and emotional support that have nurtured these girls into extraordinary children.  Skyla and Jayde are very bright and each girl has their strengths such as their smile, sense of humor, cheekiness, love of books and love of water.  The girls use manual wheelchairs and are now also transitioning to power wheelchairs and are attending local preschool with their peers in one of the neighborhood schools.  Despite their challenges, these girls are eager to learn, their laughs are infectious, and they work so very hard everyday.  I am honored to be a big part of their lives.
 
Being a single income family, it is hard to imagine just how much the family struggles financially. All of the specialized equipment and alternative therapies come with a very high price tag (times two) and as much as we appreciate the government and some charitable foundation assistance the family receives, it just isn't enough.
 
As Skyla and Jayde grow, the next step will be to install an elevator which will transport them upstairs to their bedroom and accessible bathroom. A lift/tracking system will be in place to maneuver the girls from their bedroom into the shower and bathtub.

I ask you from one mom and dad to another, one family to another, please read, share, donate this story with your friends, family and co-workers to help support this family in giving Skyla and Jayde the necessities they need and therefor the opportunities in life that they very much deserve.

Thank you from the bottom of our hearts for joining us on Skyla and Jayde's amazing journey.
+ Read More
Our van has now been adapted for our girls' wheelchairs. They are now able to use the lift to get in and out of the van and their wheelchairs are strapped through the flooring to the frame of the vehicle. Sidewinder did an amazing job and the last week has been such a life changer for our family. Skyla and Jayde absolutely love traveling in their wheelchairs and our family can now be altogether comfortably and safe.
We are so grateful for every ounce of support that we have been given. Thank you again and again
+ Read More
I'd like to gladly inform everyone that we have purchased our Van. We cannot express our gratitude enough for all your support and well wishes. Although we haven't reached our goal, we are incredibly thankful for all we have received.
Warm Regards,
Desiree & Alex
+ Read More
We have almost reached $26000 to date and are so incredibly thankful for everyone's support and contributions!

Old Abbey Ales is hosting a fundraiser on Sunday, June 19th (Father's Day) in support of the van campaign. Please feel free to join us for a drink and good eats! You can purchase tickets through the link below. Thank you all again so much and we hope to see you if you're able to make it on Father's Day!!!

http://www.country1071.com/2016/06/13/old-abbey-ales-charity-hog-roast/

https://www.facebook.com/events/1731793183770112/
+ Read More
We just want to thank everyone from the bottom of our hearts for all your support and well wishes to our family. We are so appreciative of all your contributions In helping us reach our goal.
March is Cerebral Palsy Awareness month, please continue to share Skyla and Jayde's Journey as well as spreading awareness of CP.
Thank you again,
Des and Alex
+ Read More
Read a Previous Update
Ej Barnes
29 months ago

Hi, i would contact variety and may they could help your family out. If you haven't already contacted them.

+ Read More

$33,998 of $62,000 goal

Raised by 137 people in 30 months
Created February 19, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
MS
$50
Ms. Steiner
19 months ago (Offline Donation)

Thank you so very much Ms. Steiner. Kim and Doug, please Thank your Mom for her support and kindness and wish her a Merry Christmas for us

$100
Anonymous
20 months ago
KS
$100
Kimberly Steiner
20 months ago

this is from my mother, Verna Eyers, I am donating via credit card on her behalf

JE
$500
Jack Eyers
21 months ago

From our family in Winnipeg we wish you all the best

KA
$2,000
Kiwanis Club of Abbotsford
23 months ago (Offline Donation)
YC
$500
Yale Key Club
23 months ago (Offline Donation)
HD
$150
Hugo DeGroot
24 months ago (Offline Donation)
HD
$150
Hendrick DeGroot
24 months ago (Offline Donation)
Ej Barnes
29 months ago

Hi, i would contact variety and may they could help your family out. If you haven't already contacted them.

+ Read More
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.