Simone's medical and travel fund!

$31,227 of $100,000 goal

Raised by 566 people in 39 months
My name is Burley Brewton and we live in Pembroke Pines,Fl.I am rasing  money for my daughter Simone Brewton. Simone was born with a rare syndrome called pseudo-Obstruction syndrome. This is a false blockage in the intestine which stopped the intestine from moving. This lead us to a six organ transplant. Now we are fighting to get to hospitals that has the capibilities to find access to her viens to at least be considered for a retransplant. We are seeking innovative techniques from doctors who will take on this challenge!
We are seeking funds for travel,a guardian who make these travels with her,food and board(lodging). We are in contact with UCLA,Cleveland Clinic  and Mount Sinai in New York!I am contacting other hospitals just in case we are unsucessful with any hospital! Simone is on medicade in the state of Florida. We seek treatment out of the state of Florida! We don't have insurance out of the state. I could put Simone on my insurance but, since I will have to take a leave,I would be out of work.  I had a brain tumor in Febuary. So,I used up all if my family leave act time. Right now ,a small bowel transplant at Cleveland Clinic in Cleveland is 790,000.00. Thats not the hospital stay. At UCLA,it is well over 1.5 million and over! Also,most of the hosptals require a family member to be at the hospital for this process. I will have to take a leave of absence without pay! The process is from six months to a year! Simone is on her last vein. It is a hippatic line through the liver!These funds are going to be used for medical cost. That's why the goal is so large. We are checking every possible way to get the funds to get to our goal. We just Had Janet Jackson put Simone's cause on Instagram! This means a lot to our family and me. Just like any father,I would like for my daughter to be here! We are trusting and believing in the Lord for healing and miracles! We would like for the Lord to use the hands of man to do his mighty work! Walk with us as the Lord orders our steps!
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We are setting up the memorial service for Simone. We will let people know when and where when the time comes. We has a family are going to make a few contributions. The Ronald McDonald House of Cleveland Ohio were the ultimate blessing to us! They were caring accommodating and gracious to not only us but to other families! If you would like to bless us in any way for the memorial,do so! The go fund me will be up but,only for a little while longer. Thank you people who actually helped us not only with your kind words and prayers but,you showed us by opening up your wallet and showed us with love and compassion! Not just saying things with your mouth but actually feeding the needy. Not just praying for us when we needed like being hungry but,showing us buy feeding us like Jesus did! Not just telling the word when I am hungry but filling our belly with prayers and food! For that I will be forever greatful to you. May the lord bless you in everything you do!
Can't wait to see you again! Daddy,misses you so much! Lord please take care of her until I get there!
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I would like to thank those who are still giving! I am amazed seeing the turn of events! Thank you for understanding that I am still not working. We are making arrangements to bring Simone home. I would like to tell my oldest daughter Bianca,that she was the perfect roll model for Simone! Simone looked up to Bianca! Bianca even though I am literally torn up,I am still your dad and,I won't forsake you! God has Simone and,he let me keep you! I want both of you here but God had other plans! I hope that I can be that shining light that you still look up to! I really,really, miss Simone but,so do you! I honor your sisterhood with Simone. It was and is still an a unbreakable bond! Even though you are watching me mourn, I ache for you and your mom! My love for you is stronger than ever! I love you b! Lord help heal my heart! Please! My pain is just to great! I thank all of you who took your time and followed Simone's plight and supported it even with a dollar! I am trying to make sense of all of this! I guess I'd better lean not to my own understanding! Thank you all and I truly love you all even in my brokenness!
I will always love you Mo!
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We are still in Cleveland waiting to move out. We help up the process until we could get some things straight like,where would I stay? Also,we get to Nebraska and they tell us the same thing Cleveland clinic is saying to us. So,I had them send the medical records before we leave. So,we will see. Wherever we go,we will have to fly to get there. I was trying to see if they could lower my price for the fuel but,I did not want to start a bidding war when Simone needs to be somewhere. So,thanks for donating! We are not quite there yet but,with the lords help we will make it. Thank you all!
Simone with her big cousin Junior and her friend!
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In the SICU at the hospital! Doing better! Infections need to be kept at bay. That's the issue with transplant patients. Taking it day by day! Literally! Still want to thank God! Everyday that I can talk to Simone is a gift! It's a gift to talk to anyone you love! Friends and family. Take the time out to hug the ones you love if you love them. So,back to another rehab place. Last place was a bust! Trust me! We need a rehab place the can take on acute patients! So,that's the latest update. Thanks to everyone! Thanks for the donations!
Okay,I'm listening!
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Read a Previous Update
Tammy Fairley
36 months ago
1
1

God Love u will be ok

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Patrice Lovett-Roberts
32 months ago

Because of Jehovah's promises and our Savior Jesus Christ we have a hope and look forward to the day as it states in the holy writing at Isaiah 33: 24 And no resident will say: “I am sick.”The people dwelling in the land will be pardoned for their error.. Praying for you and Simone for endurance.

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Kimberly Hltheducator Best Fuller
36 months ago

I pray that a miracle takes place in the life of Simone. I proclaim healing in the name of Jesus! Sending prayer for the family to have al the support they need.

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Tracy Capers Smith
36 months ago

Im keeping Simone in our prayer from the Capers family is the aruther of healing power an i believe that he will do what he needs to do in JESUS name Amen.

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Mzmizzy Mims
36 months ago

praying for recovery

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Jennifer Fields
36 months ago

God be with them!!;

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$31,227 of $100,000 goal

Raised by 566 people in 39 months
Created August 24, 2015
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$50
Anonymous
29 months ago
LM
$50
Lisa Macklin
30 months ago

I love you brother. Wish I could be with you today.

Tammy Fairley
36 months ago
1
1

God Love u will be ok

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Patrice Lovett-Roberts
32 months ago

Because of Jehovah's promises and our Savior Jesus Christ we have a hope and look forward to the day as it states in the holy writing at Isaiah 33: 24 And no resident will say: “I am sick.”The people dwelling in the land will be pardoned for their error.. Praying for you and Simone for endurance.

+ Read More
Kimberly Hltheducator Best Fuller
36 months ago

I pray that a miracle takes place in the life of Simone. I proclaim healing in the name of Jesus! Sending prayer for the family to have al the support they need.

+ Read More
Tracy Capers Smith
36 months ago

Im keeping Simone in our prayer from the Capers family is the aruther of healing power an i believe that he will do what he needs to do in JESUS name Amen.

+ Read More
Mzmizzy Mims
36 months ago

praying for recovery

+ Read More
Jennifer Fields
36 months ago

God be with them!!;

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