Shirley Anne's Heart

$17,613 of $20,000 goal

Raised by 143 people in 30 months
Donna Arquilla Link
on behalf of Brianna Rodriguez
 TACOMA, WA
My daughter and her husband (Brianna and Joseph Rodriguez) are expecting their first child, a sweet baby girl named Shirley. During their routine 20 week anatomy scan the doctor noticed that something was wrong with little Shirley's heart. After several doctor's appointments and ultrasounds she was diagnosed with a very rare congenital heart defect called truncus arteriosus. There are only 300 cases of this particular condition in the United States per year.
Shirley will need open heart surgery a few days after she is born and will be in the NICU for several weeks post surgery. The length of her hospital stay will vary depending on how strong she is at birth, and how quickly she recovers from surgery. Shirley will also need multiple  follow-up surgeries to correct her heart throughout her life.
Brianna will be quitting her job a month before Shirley comes in order to keep up with all the doctor's appointments required for her pregnancy. Joseph will be taking several weeks off work after she is born to be with his family in the hospital. They will be staying in Seattle while Shirley is in the NICU at Seattle Childrens Hospital. All the funds will go towards whatever medical bills they will be responsible for, lost time at work and living accomodations in Seattle.
Brianna and Joseph attended the University of Puget Sound together and graduated in 2014. They began dating only a few months afterward and were married the following year. They are so excited about having children and can't wait to welcome precious Shirley into their family.
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Shirley's story was on the news last night here in Seattle! Thanks everyone for the continued support! I'm attaching the news clip in case you missed it!

http://q13fox.com/2017/03/07/couples-home-ransacked-while-theyre-at-hospital-with-newborn-who-had-heart-surgery/

https://www.facebook.com/JamieTompkinsNews/videos/1654648284551398/?pnref=story
This is the story that Q13 Fox did.
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Update from Joseph and Brianna

Shirley had surgery today and it went very well. This is a huge milestone in her treatment and the first of multiple surgeries needed throughout her life. Thank you all for the amazing support we are so blessed to have an amazing community of people that love us. Thank you for your prayers as well. Brianna and I have had a lot of peace during this whole process and we believe that God has granted us that during this very uncertain time.
If you want more thorough updates please visit her website.
https://www.shirleysgrandadventure.com/
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Shirley is here! Photos and info on the blog!
https://www.shirleysgrandadventure.com/
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An update from Joseph and Brianna

Hello!
Brianna's due date is tomorrow!!! We are so excited about Shirley's arrival! If Shirley doesn't come before the 26th Brianna will be induced. So by this time next week she will certainly be born.
We published a blog/website to keep people informed about her condition. Shirley will need multiple surgeries throughout her life and we are using this as a way for people to follow her progress long term.
Copy and past this URL to be directed to her blog:
https://www.shirleysgrandadventure.com/news/
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Read a Previous Update
Tammy Porter
30 months ago
2
2

Love and prayers will be continued for your sweet little family and precious baby girl.

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$17,613 of $20,000 goal

Raised by 143 people in 30 months
Created December 28, 2016
Donna Arquilla Link
on behalf of Brianna Rodriguez
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JF
$50
Jeff Facey
17 months ago

I was blessed with healthy grandbaby's, Shirley needs a bit of help, I can't not help.

JA
$25
Jake Abbott
18 months ago

It was so great to meet your family, I am looking forward to watching Shirley grow up! Thank you for sharing your message of hope! Happy Holidays to you all!

DH
$5
David Haws
20 months ago

My daughter has a similar heart defect. What a worry. Wish the best.

RC
$200
Roger Cason
21 months ago
1
1

She's beautiful and truly blessed.

JD
$600
Jacob Dreste
26 months ago
2
2
JS
$315
Jonathan Strong
26 months ago
1
1

We love you guys!

$50
Anonymous
27 months ago
2
2
$300
Anonymous
27 months ago
2
2
RW
$100
Ramey and Lisa Wilson
27 months ago
2
2

Can't wait to meet your sweet girl!

Tammy Porter
30 months ago
2
2

Love and prayers will be continued for your sweet little family and precious baby girl.

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