Melissa's Disney Adventure
Donation protected
My name is Melissa I was born with a rare condition called Angelman Syndrome (AS).
AS is a complex genetic disorder which affects every aspect of my life. I have delayed development, and intellectual disabilities. I am 14 years old but still have no concept of danger and don't have the skills needed to complete everyday tasks most people take for granted. I need help with eating and toileting. I need 24 hour care and will do so for the rest of my life.
I have problems with movement and balance I also have seizures (epilepsy) I have a very poor sleep pattern and can sometimes have as little as 3 hours sleep each night. The most frustrating part for me is I cannot speak.
I have a bucket list of things I would like to do and on my list is a holiday somewhere special in the sun for me, my brother and my mum. It would be such a treat for us all as we have had a pretty rough few years, mum does all she can but some things are just out of reach.
A holiday is an expensive thing and with my condition my travel insurance is also expensive.
Thank you so much for your support and generousity, it is much appreciated.
Melissa x
http//melissassmile.co.uk
AS is a complex genetic disorder which affects every aspect of my life. I have delayed development, and intellectual disabilities. I am 14 years old but still have no concept of danger and don't have the skills needed to complete everyday tasks most people take for granted. I need help with eating and toileting. I need 24 hour care and will do so for the rest of my life.
I have problems with movement and balance I also have seizures (epilepsy) I have a very poor sleep pattern and can sometimes have as little as 3 hours sleep each night. The most frustrating part for me is I cannot speak.
I have a bucket list of things I would like to do and on my list is a holiday somewhere special in the sun for me, my brother and my mum. It would be such a treat for us all as we have had a pretty rough few years, mum does all she can but some things are just out of reach.
A holiday is an expensive thing and with my condition my travel insurance is also expensive.
Thank you so much for your support and generousity, it is much appreciated.
Melissa x
http//melissassmile.co.uk
Organizer
Melissas Smile
Organizer
