Shans Treatment Fund

739 330 € of 500k € goal

Raised by 30,026 people in 6 months
LT
Leona Tynan  n/a
Shan has a rare cancer multi system histiocytosis x (LCH) She was diagnosed in may 2015 and has went through 5 failed treatment protocols. She has had treatment between Ireland and Texas and instead of improving more systems have become involved. Last week after a much needed family holiday Shan found herself back in hospital after we got home very unwell and having a supra pubic catheter fitted to relieve the extreme pressure and pain her body was under giving us all a very scary few days. She has started yet another chemo and is still an inpatient. We have discussed her current health with her primary care physician in Texas Children's Hospital Dr. Kenneth Mc Clain and it has been decided that her best chance to beat this is to get her back to Texas for a period of approximately four months in order to find a combination that her body will respond to and get her to the healthy vibrant 18 year old she deserves to be. This comes at a huge price and after much negotiation the quote has come in at $527,000. The need to get her back is urgent and we have a provisional date of September 28th. We can't do this alone and need your help. Any donation even €1 is one step closer for Shan. I refuse to give up on my child and let her suffer a day longer than necessary. I'm pleading with you all to please help my daughter get this treatment and help in any way possible to raise the necessary funds #teamshan #histiowarrior #neverevergiveup
https://m.facebook.com/Histiocytosis-x-journey-for-Shan-Histio-Warrior-teamshanhw-858392617568280/
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 31K shares on Facebook
Update 12
Posted by Leona Tynan
14 days ago
   Share
https://youtu.be/K6w7kv2iFMI

Thank you all so much for your incredible support every donation is a step closer to target and getting Shans life back xx we can't thank you all enough! We are blown away by all you are doing to help, I wish we could thank each and everyone of you individually you have no idea how much your support means to us xx Please keep sharing and help Shan to fight this monster
Thank you
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Update 11
Posted by Leona Tynan
25 days ago
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1
1
Today we are back at Beaumont for Shans chemo infusion, she's doing okay other than feeling exhausted and the usual nausea. She had severe nausea up until last week but with a few tweaks in her anti sickness meds she is coping so much better we haven't updated the page since our return from America and this is because we had been very hopeful of a response from our health minister Simon Harris. Despite an urgent request for funding and a report outlining how urgent and necessary Shauntelle's care in America is in order to save her life we have still not even received an acknowledgment of receipt. There is no possible way that this has not been seen by our minister for health as we have sent the report repeatedly over the last few weeks. Should we not receive a response by the end of this week we will publicly release a copy of our correspondence and the report from Dr. Mc Clain in Texas Childrens hospital. This is not just another child, this is my child and no child should have to suffer like this and fight for their life without the help and support of our government! Too many people are being ignored and swept aside with no regard! Enough is enough, every dollar that has paid for Shans treatment to date is thanks to all of you and we will be forever grateful, we are going to struggle again after we return from Shans next trip in Feb if we can't get any government help as in march 29th Shan has been told that she will need to stay in Texas for a minimum of 12 months in order to help her beat this. We have no idea how we are going to be able to fund this but we will not give up! Money won't be the reason that my child doesn't survive, I won't let it We need your ongoing support more than ever, if you can host an event, donate or share shans go fund me we would be so grateful we will update you all further later this week xxx #teamshan #histiowarrior #neverevergiveup

www.gofundme.com/shanstreatmentfund
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Update 10
Posted by Leona Tynan
1 month ago
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I want to apologise that we haven't updated very much during this trip, we were hit with some very difficult news and what is to be a very challenging year in front of us when we arrived and at the moment we as a family are trying to absorb it all. Shan received her second week of Etoposide yesterday and is still taking two other daily chemos at a high dose which has been beyond tough, she is extremely nauseated but she's still managed to get out for a dinner or two and spend some time with the wonderful friends we have made here in Houston. As you can see this is all very exhausting on Shan and she is being closely monitored during infusions to make sure that she doesn't have an adverse reaction which can happen at any stage during the first few infusions and requires immediate counter active medications. Some areas of Shans histio have been responding well to chemo but unfortunately internal areas are up to now non responsive and worsening with new areas found so we need to hit it hard and we are hoping the addition of Etoposide will do this. Dr. Mc Clain and the team here at Texas Childrens are working extremely hard to get Shan on the right combination and responding and we are beyond grateful that with your help we have been able to get Shan the best care she could possibly receive. There has been very sad news in the last week and a child lost his battle in his fight with this monster which has saddened us greatly We are not giving up and while we have a lot to face and deal with for 2017 we have every faith that Shan will win this fight! We are beyond grateful for your support, without it we couldn't possibly make this journey We will update you as soon as we have had the time to absorb everything and have more information on the specifics of her new treatment protocol and care. We would really appreciate if you could continue to share Shans story and where possible donate or support an event. A donation as small as €5 makes a difference, that's less than the cost of a coffee and a sandwich but will insure that my daughter gets the expert care she needs and it doesn't cost her life Thank you all for your kind messages of love and support we appreciate it so very much xx #teamshan #neverevergiveup
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Update 9
Posted by Leona Tynan
2 months ago
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Hey guys, apologies if we haven't been very quick to respond in the last week, life has been hectic with travel back and forth to hospitals especially now as Shan has had a weekly overnight infusion added to her treatment! She is tolerating it pretty well but we have run in to some big issues with her bowel and this will be the priority when we return to Texas next week. Right now the plan is to keep her stable and avoid further progression before the new trial becomes available. As the time between our return home and Shans next trip on December 28th has been so short we have tried to enjoy as much family time as possible so haven't been as active on the page and we hope you all understand xx we got some great news last week and through Tesco Ireland won a trip to visit Lapland! This was an incredible day for us all and really made Christmas extra special for Shan and her younger brother and sister it's not easy having to leave them so often for weeks on end so any time at home with them is precious especially at this time of the year xx we would like to thank you all for your endless support this year, without you all Shan couldn't continue to get the care she needs and for this we are eternally grateful xx please keep sharing and merry Christmas to you all here's hoping that 2017 will be Shans year
www.gofundme.com/shanstreatmentfund
A fantastic day in Lapland ❤️
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 31K shares on Facebook
Read a Previous Update
Meagan Foley
13 days ago

Hi Shan, Prayers to you and your family from Austin, TX. I was the Texas Rose of Tralee in 2007 and serve as the Co-Chair of the Texas Center now. Some friends of mine sent me your video; our Irish communities here are pulling and praying for you! Love from the Texas Rose family, Meagan

+ Read More
David Byrne
13 days ago

Really hoping you can not only hit your goal but go well beyond it. I have shared it on all of my social media accounts as well as tagged the Ellen Show in it and hopefully my fellow geeks following my movie Review accounts will help both spread the word and donate. Best of luck hitting that goal.

+ Read More
Lianne Marie
13 days ago

I hope you smash your target lovely girl.. your in my prayers.. I shared your posts with Conor McGregor he's a wonderful man with a heart of gold I hope he gets to read your story .. sending you all the luck and love in world beautiful xxxx

+ Read More
Waseem Yousaf
12 days ago

Watching your video this morning brought tears to my eyes because i know the pain my own beloved Grandmom suffered with cancer. I wish i could do more but i will try my best to reach out to my community, my workplace and to all of my friends to step forward and help you. Today is Valentines Day and for me to love humanity and loving those in need is valentines and i request to all to come forward and help you. It is now our fight and i am sure we all will win it. God Bless you !

+ Read More
Patrice Thornton
12 days ago

Aspen Pharma Trading Ltd will be doing the RunAMuck Challenge on March 11th and have decided to raise as much funds as possible for you Shan. Your story has touched us all and we are 100% behind you :) We will also be raising funds via our own GoFundME page & sponsorship cards & donation buckets in the run up to the RunAMuck event :) Fingers Crossed we can raise some much needed funds for you Shan. Your bravery is inspirational :) We will let you know how much we raise and arrange payment to you as soon as possible.

+ Read More
Nicôle Stewart
13 days ago

I wish I could have given more beautiful ❤ my fingers and toes are crossed for you! You are such a brave young woman and i hope you get the money that is needed! Lots of love to you Xox

+ Read More
Gary Flannery
13 days ago
8
8

The general public within Ireland are a very special bunch of people. Our country has its faults, but in our strengths we have many!! Keep going everyone!! #teamshan

+ Read More
Andrea Rock Massey
13 days ago
6
6

I hope you raise all the money you need, I've donated what I can and will look into holding some kind of fundraiser. I'll keep you in my prayers.... Xxxx

+ Read More
Olivia Cosgrove
2 months ago
5
5

You are so very brave. It takes real courage to talk about that....and reading those words will make a difference to someone else who feels like that. Lots of love to you xxxx

+ Read More
Gillian Duggan White
12 days ago
4
4

This fundraiser has restored my faith in humanity. I am so proud to be Irish today! :D Go get yourself well Shan. ♥

+ Read More
Marguerite Hanley
13 days ago
4
4

You are the bravest person i know right now Shan. We'll get you there and we'll keep sharing your story ♥

+ Read More
Christy McNeil
11 days ago
3
3

I have seen your video and just wanted to tell you your story is being shared far and wide! I live in Alabama (United States) and have donated. I hope you far exceed your goal so you can just focus on getting better. I am praying for you and your family! #beatcancer #teamshan

+ Read More
MaryAnn Gambino
11 days ago
2
2

TAKE DANDELION ROOT TEA DAILY AND VITAMIN B17 THEY ARE WHOLEISTIC CANCER KILLERS. MY SISTER IN LAW WAS GIVEN FOUR MONTHS TO SURVIVE WITH STAGE 4 LUNG CANCER AND DID HER CHEMOTHERAPY AND RADIATION AND ABOVE AND HAS ONE SMALL NODE LEFT.

+ Read More
Lianne Clancy
11 days ago
2
2

We've got your back shan ❤ I've shared your video here in oz to an Irish in Perth page with 13,000members..i hope you double your target so your family can visit you?! Love from Australia xx

+ Read More
GR Winston
11 days ago
2
2

Fuck this Texas hospital for sticking such a heft price tag on a family. I'm over joyed to see the outpouring of support for Shan but to negotiate $527,000 is complete bull shit. No doctor should ever be putting a price tag on a childs life and that's exactly what they are doing.

+ Read More
Trish Buckley
12 days ago
2
2

Hi Shan, what a wonderful girl you are xx just reading the comments below everyone is so proud of what you did, I know its hard, what you did took so much courage but the response is amazing. You have gone global and you have touched so many people. Now you go Kick Cancer's ASS and we look forward to your next utube video xxxxxxxxxxxxx

+ Read More
Joana Rusan
13 days ago
2
2

lots of love and hugs Shan,and don`t worrie,people are so good,we will get there ♥ ♥ ♥ you will go to Texas ♥ xxxxx

+ Read More
Mareka Mcevoy
13 days ago
2
2

Hello love please try to stay strong you will get ther I have shared your go fund me page a couple of hrs ago and people have shared it to I have also shared it to a page belonging to the chat shoe host Ellen DeGeneres hopefully she will get to see it.. I wish u all the best love and you get 5he treatment you need if I could I would give you every red cent best wishes shan keep strong and the people of ireland will do all will can to help xxx

+ Read More
Claire-Marie Murphy
11 days ago
1
1

Imagine if you hit the million mark, wow that would be amazing! Here's hoping that you do! Best of luck beautiful lady & loving the pink eyeshadow in your latest video!

+ Read More
Brianna Stiklickas
12 days ago
1
1

Hey Shan, you stay strong! You stay strong for your mother, your father, your brother and your sister but most importantly you need to stay strong for yourself! I expect you to live a long beautiful life filled with happiness and love so stay strong! You can fight this! I will be praying for you through this journey! You are an inspiration and a light! Remember to keep on smiling An do keep on swimming because you are in Gods hands and what is better than that! God can really perform miracles in our lives and I know he has one up his sleeve especially for you! I mean look at the campaign already! How is that not a miracle! God may not always give what we want but he WILL give you what you need! Texas may seem scary but trust me it's a lot of fun there, and the food is great! (You really need to try some Texas BBQ and the Mexican food!) Be positive and keep your head up, we are all here to support you and we are all here routing you on! “ …Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you." Deuteronomy 31:6 remember, I want you to live a long life so BE STRONG!

+ Read More

739 330 € of 500k € goal

Raised by 30,026 people in 6 months
Created August 25, 2016
LT
Leona Tynan  
JC
5 €
Jeevan Cheema
2 hours ago
NH
20 €
Nuala Halliden
3 hours ago
EB
5 €
Eddie Breen
5 hours ago
PM
100 €
Paula Mannion
9 hours ago

Sending Prayers and well wishes to you x

OF
10 €
Olivia Frost
11 hours ago
CN
10 €
Catriona Nolan
16 hours ago

Fair play to Fiona donating your hair for this great cause x

SU
20 €
Sara Usher
17 hours ago

Wishing you all the best ❤️

20 €
Anonymous
19 hours ago
SC
20 €
Sheila Clancy
1 day ago
50 €
Anonymous
1 day ago
Meagan Foley
13 days ago

Hi Shan, Prayers to you and your family from Austin, TX. I was the Texas Rose of Tralee in 2007 and serve as the Co-Chair of the Texas Center now. Some friends of mine sent me your video; our Irish communities here are pulling and praying for you! Love from the Texas Rose family, Meagan

+ Read More
David Byrne
13 days ago

Really hoping you can not only hit your goal but go well beyond it. I have shared it on all of my social media accounts as well as tagged the Ellen Show in it and hopefully my fellow geeks following my movie Review accounts will help both spread the word and donate. Best of luck hitting that goal.

+ Read More
Lianne Marie
13 days ago

I hope you smash your target lovely girl.. your in my prayers.. I shared your posts with Conor McGregor he's a wonderful man with a heart of gold I hope he gets to read your story .. sending you all the luck and love in world beautiful xxxx

+ Read More
Waseem Yousaf
12 days ago

Watching your video this morning brought tears to my eyes because i know the pain my own beloved Grandmom suffered with cancer. I wish i could do more but i will try my best to reach out to my community, my workplace and to all of my friends to step forward and help you. Today is Valentines Day and for me to love humanity and loving those in need is valentines and i request to all to come forward and help you. It is now our fight and i am sure we all will win it. God Bless you !

+ Read More
Patrice Thornton
12 days ago

Aspen Pharma Trading Ltd will be doing the RunAMuck Challenge on March 11th and have decided to raise as much funds as possible for you Shan. Your story has touched us all and we are 100% behind you :) We will also be raising funds via our own GoFundME page & sponsorship cards & donation buckets in the run up to the RunAMuck event :) Fingers Crossed we can raise some much needed funds for you Shan. Your bravery is inspirational :) We will let you know how much we raise and arrange payment to you as soon as possible.

+ Read More
Nicôle Stewart
13 days ago

I wish I could have given more beautiful ❤ my fingers and toes are crossed for you! You are such a brave young woman and i hope you get the money that is needed! Lots of love to you Xox

+ Read More
Gary Flannery
13 days ago
8
8

The general public within Ireland are a very special bunch of people. Our country has its faults, but in our strengths we have many!! Keep going everyone!! #teamshan

+ Read More
Andrea Rock Massey
13 days ago
6
6

I hope you raise all the money you need, I've donated what I can and will look into holding some kind of fundraiser. I'll keep you in my prayers.... Xxxx

+ Read More
Olivia Cosgrove
2 months ago
5
5

You are so very brave. It takes real courage to talk about that....and reading those words will make a difference to someone else who feels like that. Lots of love to you xxxx

+ Read More
Gillian Duggan White
12 days ago
4
4

This fundraiser has restored my faith in humanity. I am so proud to be Irish today! :D Go get yourself well Shan. ♥

+ Read More
Marguerite Hanley
13 days ago
4
4

You are the bravest person i know right now Shan. We'll get you there and we'll keep sharing your story ♥

+ Read More
Christy McNeil
11 days ago
3
3

I have seen your video and just wanted to tell you your story is being shared far and wide! I live in Alabama (United States) and have donated. I hope you far exceed your goal so you can just focus on getting better. I am praying for you and your family! #beatcancer #teamshan

+ Read More
MaryAnn Gambino
11 days ago
2
2

TAKE DANDELION ROOT TEA DAILY AND VITAMIN B17 THEY ARE WHOLEISTIC CANCER KILLERS. MY SISTER IN LAW WAS GIVEN FOUR MONTHS TO SURVIVE WITH STAGE 4 LUNG CANCER AND DID HER CHEMOTHERAPY AND RADIATION AND ABOVE AND HAS ONE SMALL NODE LEFT.

+ Read More
Lianne Clancy
11 days ago
2
2

We've got your back shan ❤ I've shared your video here in oz to an Irish in Perth page with 13,000members..i hope you double your target so your family can visit you?! Love from Australia xx

+ Read More
GR Winston
11 days ago
2
2

Fuck this Texas hospital for sticking such a heft price tag on a family. I'm over joyed to see the outpouring of support for Shan but to negotiate $527,000 is complete bull shit. No doctor should ever be putting a price tag on a childs life and that's exactly what they are doing.

+ Read More
Trish Buckley
12 days ago
2
2

Hi Shan, what a wonderful girl you are xx just reading the comments below everyone is so proud of what you did, I know its hard, what you did took so much courage but the response is amazing. You have gone global and you have touched so many people. Now you go Kick Cancer's ASS and we look forward to your next utube video xxxxxxxxxxxxx

+ Read More
Joana Rusan
13 days ago
2
2

lots of love and hugs Shan,and don`t worrie,people are so good,we will get there ♥ ♥ ♥ you will go to Texas ♥ xxxxx

+ Read More
Mareka Mcevoy
13 days ago
2
2

Hello love please try to stay strong you will get ther I have shared your go fund me page a couple of hrs ago and people have shared it to I have also shared it to a page belonging to the chat shoe host Ellen DeGeneres hopefully she will get to see it.. I wish u all the best love and you get 5he treatment you need if I could I would give you every red cent best wishes shan keep strong and the people of ireland will do all will can to help xxx

+ Read More
Claire-Marie Murphy
11 days ago
1
1

Imagine if you hit the million mark, wow that would be amazing! Here's hoping that you do! Best of luck beautiful lady & loving the pink eyeshadow in your latest video!

+ Read More
Brianna Stiklickas
12 days ago
1
1

Hey Shan, you stay strong! You stay strong for your mother, your father, your brother and your sister but most importantly you need to stay strong for yourself! I expect you to live a long beautiful life filled with happiness and love so stay strong! You can fight this! I will be praying for you through this journey! You are an inspiration and a light! Remember to keep on smiling An do keep on swimming because you are in Gods hands and what is better than that! God can really perform miracles in our lives and I know he has one up his sleeve especially for you! I mean look at the campaign already! How is that not a miracle! God may not always give what we want but he WILL give you what you need! Texas may seem scary but trust me it's a lot of fun there, and the food is great! (You really need to try some Texas BBQ and the Mexican food!) Be positive and keep your head up, we are all here to support you and we are all here routing you on! “ …Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you." Deuteronomy 31:6 remember, I want you to live a long life so BE STRONG!

+ Read More
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