Send Bernie Home

$90,727 of $150,000 goal

Raised by 1,628 people in 9 months
Created January 17, 2018

Meet Bernie Dalton, my voice student and friend. He doesn’t have much time left. Bernie is currently in a nursing home, separated from his community of support, where he is struggling emotionally and physically. We need to bring Bernie home to his loved ones to spend the time he does have left with his family and friends. To do this, we need to pay for home care, which is extremely expensive. Home Care Assistance has graciously donated $5,000 of services towards home care, which gives us a big boost, but we'll need nearly $300,000 to make sure Bernie is well taken care of. Now, we need your help to pay for the rest, so Bernie can live the remainder of his time with dignity!

My name is Essence Goldman and I am a singer/songwriter and voice coach. Bernie and my story began 2 years ago. Bernie is a down-to-earth, kind hearted, devoted single father to a beautiful 16 year old daughter named Nicole. When I first met Bernie, he was a dedicated surfer who had a passion for music and writing songs. In 2016, Bernie reached out to me for voice lessons. Bernie showed up to each lesson filled with inspiration, songs to share, and was eager to learn healthy vocal techniques to expand his range and build his confidence as a singer. Two months after starting voice lessons, Bernie’s voice mysteriously disappeared. We could not figure out why. Bernie saw a neurologist, and after a series of tests, he was diagnosed with the most aggressive form of ALS - Bulbar Onset (Lou Gehrig's Disease). The life expectancy for people with Bulbar onset ALS is 1-3 years. Bernie was shocked and devastated. He was only 47.


I wanted to help raise money so Bernie could take his daughter on a trip while he still could, but Bernie had a different idea. Bernie wanted to make a record of his songs. He wanted to leave a musical legacy for his future grandchildren that he would likely not live long enough to meet. He wanted them to know who he is, he wanted them to know his views of the world, and convey his advice for living in the lyrics he wrote. We launched a Go Fund Me campaign, and the outpour of love and support from family and friends made it possible for us to record an album of Bernie’s songs.

Bernie had a vision, but since ALS had already robbed of him of his ability to speak or sing, he asked me to be his voice. In the early recording sessions, Bernie was able to walk and he even drove himself to the studio in his pickup truck. He was able to sit with us in the studio and give feedback using hand signals and write notes on a dry erase board to indicate his approval or disapproval of what we were playing. I will tell you this: two thumbs up from someone who can't speak means a lot. But due of the aggressiveness of the disease, in 6 short months Bernie lost the ability to walk, move his arms, swallow, and travel, and we had to share our final recordings with him in the nursing home. Bernie’s album, “Connection,” is now complete and will be released with the band name Bernie and The Believers.

Now that the album is finished, our goal has changed.

Bernie is currently living in a nursing home because his family cannot afford the costs of home care. There have been numerous reports of Bernie not receiving proper care. The type of care Bernie requires is mind bogglingly expensive. ($12,000 per week!) Bernie is struggling, both physically and emotionally at the nursing home and desperately wants to be home with his family, enjoying the time he has left with his loved ones.


Throughout his life, Bernie has touched many people with his kindness, humor and generous spirit. Now, he deserves to be given proper medical care and he deserves to spend his remaining days in the peace of his own home, surrounded by loving friends and family. We are launching a brand new campaign to raise funds for Bernie’s end of life care. The support of the community has helped Bernie's dream of making an amazing record come true, but now he needs us more than ever. Nothing is more important to us than bringing Bernie home for his final days. We believe it is possible that with the help of friends, family, community, and beyond, we can share Bernie’s story far and wide and raise the money needed for Bernie’s home care. Please give what you can today, and share Bernie’s story wherever you can. Help Bernie get the proper care that he deserves. You can make the difference and give Bernie dignity and peace in his remaining days.  

Let’s show Bernie our love.

With gratitude,
Essence Goldman
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Dear Friends,

We are about to kick off our Bernie & The Believers Tiny Desk/East Coast Tour! Flying out TODAY!

The LIVE Tiny Desk Concert taping is Tuesday 10/16 at 1pm EST and will air shortly thereafter. We have a show in NY on 10/18 and 2 shows in Pennsylvania 10/19! Guests are allowed so let me know if anyone wants to attend the live taping at NPR Headquarters in DC. I can’t begin to express how proud I am to be part of this project and what an honor it is to be the voice of Bernie Dalton- sharing his message of courage and love through music. The band has been rehearsing like a mother and we are buzzing with adrenalin and excitement. I’m thrilled to be making music with Daniel Berkman on drums and cello, Jonathan Kortyon keys and organ, Kevin Glaz on guitar, Paul Smith-Stewart on bass, Adrienne Biggs on violin, Jeff Bordes on trumpet, Bob Regent on banjo, and Olivia Normann-Smith on harmonies. I’ve written a statement about the project. It was supposed to be one minute. It’s not. I had a major breakthrough writing it. I read it to the Tiny Desk creator and host Bob Boilin and he became very emotional and didn’t ask me to change anything or shorten it so it remains. I hope I can hold it together when I tell the story at Tiny Desk. Deep breath We were going to do 4 songs but with there’s time considerations so we had to cut one. My personal favorite, but this isn’t about me. It’s about Bernie and his powerful message to us all— and my only wish is to channel him in the most pure way possible.

Our Itinerary:
Tuesday Oct 16 Washington D.C.
NPR Tiny Desk Concert
Guests Welcome for taping.
Message us if you'd like to attend.

Thursday Oct 18 NYC
For Location + Tickets Go To:
SofarSounds.com/Cities/NYC/Events/20811

Friday October 19 Danville, PA
TWO HOMETOWN SHOWS!
Hilltop Bar & Grill
115 Liberty Valley Road
Danville, PA
(Donations Accepted)
7-8:30 & 9-10:30

We actually have a night with no shows... Wednesday 10/17.. If anyone out there on the East Coast would like to host Bernie & The Believers for a house concert let us know! You name the place! Have van, will travel - it would be a blast :)

We haven’t quite met our funding goal yet. In other words, we have enough money to get most of us to the East Coast and back (but not all of us) and not enough to eat or compensate the talented musicians for the time they are taking away from their jobs and families. We are in the final stretch here and WE NEED YOUR SUPPORT! If you haven’t donated yet— please donate today if you can! And if you already have, please know we are filled with heartfelt gratitude. None of this would have been possible without you. We know it. And we thank you.


PLEASE DONATE HERE!
https://www.gofundme.com/bernie-and-the-believers-on-tour

With Love,

essence, Bernie & The Believers

www.BernieAndTheBelievers.com
www.essencemusic.com
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Dear Friends and Supporters of Bernie,

I have spent several full days at Bernie’s bedside in the past week trying to get statements from him for NPR Tiny Desk & The BBC. Both are doing features on Bernie's music and story. It hasn’t been easy for Bernie to communicate using his eye gaze device but progress has been made. We had a wonderful woman named Amy Roman step in to assist. She’s patient, compassionate and kind. An angel. One of the things we asked Bernie was to describe how it felt to surf. He replied: ‘Time stops.’ He became emotional. He misses being in the ocean everyday. But when we spoke of his music and people hearing it now all over the world his face lit up like the sun. Time also stops with music. Of all the things I’ve ever done in my life I feel truly called to share his songs and story of courage through music. I don’t know why this happened or how I got involved to this degree but this feels meaningful to me. I realize if anything had gone differently in my life and my music before this I might not have met Bernie. There are no accidents. So proud to be bringing his music, our collaboration, to the East Coast to play a live filmed concert for National Public Radio's Tiny Desk in Washington D.C. on 10/16! We also have shows confirmed in NYC on 10/18 and in Bernie's hometown of Danville, PA on 10/19. More dates TBA. Flights are booked. Van is booked. Air BnB in DC booked. We are still accepting donations to the ‘Keep Bernie’s Dream Alive’ Go Fund Me to help make this financially feasible. We have not reached our goal yet and would be truly grateful for your help. If you can donate, please do. It is making a difference in Bernie’s life to share his music. It lifts his spirits everyday. ALS is a horrible, unforgiving disease. Perhaps Bernie’s story can help raise awareness and bring more attention and funding to research that will make a difference for others. That is my wish. Thank you all for your continued support.

With Love and Gratitude,
essence

DONATE HERE:
https://www.gofundme.com/bernie-and-the-believers-on-tour
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Dear Friends,

I'm thrilled to tell you that Bernie & The Believers have been invited to perform a highly esteemed
Tiny Desk Concert at NPR headquarters in Washington D.C. on Tues, October 16!!! We need your help funding the trip there and back. We are launching a new Go Fund Me today to keep Bernie's Dream Alive by sharing his music far and wide while at the same time raising awareness for ALS in hopes that a cure can be found for this awful disease. Your kindness and generosity made this album possible and you have also made it possible for Bernie to receive the ALS specific care that his advanced condition requires. We thank you from our hearts. We would be deeply grateful if you would make a DONATION to this new campaign today to help us keep this train going by bringing Bernie's music to Washington DC (and beyond) to perform a live filmed set for an official Tiny Desk Concert. We will be doing a full week of East Coast dates bringing Bernie's songs to his hometown of Danville, Pennsylvania and beyond. Please help us keep Bernie's dream alive and take Bernie & The Believers on the road for an East Coast Tour!

DONATE here:
https://www.gofundme.com/bernie-amp-the-believers-on-tour
Here's the full story:

Bernie Dalton is a songwriter and single father living with Bulbar Onset- ALS (Lou Gerhig’s Disease.) He currently resides in a San Francisco hospital and has a traeceostomy and a ventihilator machine that helps him breath. He has lost all mobility and communicates with his eyes using an eye gaze device, like Stephen Hawking. He has a feeding tube that bypasses his stomach and goes directly to his intestines because his digestion has been compromised by this unforgiving disease. Before Bernie was diagnosed with ALS, he was my voice student.

My name is Essence Goldman and I am a singer-songwriter and voice coach. Bernie responded to an ad I had on Craigslist, when at 46 years old, he decided to pursue his lifelong dream of making an album of his own songs. After 2 short months of lessons, tragedy struck. Bernie’s voice mysteriously disappeared. Months passed and it did not return. After a series of tests, Bernie received an unthinkable diagnosis. He was given a 1-3 year prognosis. Bernie was a devoted single father to a 15 year old daughter. He was an athlete. And he was an avid surfer. When he lost the ability to speak and sing, he asked me to be his voice.

I gathered a team of talented musicians and together we put music and melody to his words. Bernie produced and directed from the couch signaling thumbs up and thumbs down during the writing and recording process. Last year I Iaunched a Go Fund Me Campaign and funds were raised to make an album of songs that he wrote for his daughter’s future children, that he knew he would likely not live long enough to meet. Songs that express his views of the world, his values, his advice for living for future generations. Through generous support and donations from the community, Bernie & The Believers recorded and released “Connection” in February 2018. The project received national attention and Bernie's story and music was featured on NPR’s All Things Considered and All Songs Considered. The SF Chronicle published a front page feature story and filmed an emotional documentary. Your support made this possible!

Bernie & The Believers are thrilled to announce we have been invited to perform a Tiny Desk Concert at NPR in Washington D.C. on Tuesday, October 16! We are planning an East Coast Tour that will include Bernie’s hometown in Pennsylvania among many other stops. Bernie’s image and his lyrics will be projected on a screen in real time from his hospital room behind the band as we perform his songs. We are partnering with the ALS Foundation to bring visibility and attention to this horrible disease that will, hopefully, lead to a cure someday. It will be an unforgettable musical triumph over ALS.

Bernie and the band need your support to make this trip possible. We have come this far with your support, and we would be deeply grateful if you’d be kind enough to help us keep this train going. There are many expenses in bringing Bernie’s music on the road. Flights, a rental van, meals, accomodations, and modest pay to make it possible for the band to take time off from our other paying jobs. The generous money that was raised in the first "Bernie's Song" Go Fund Me campaign was used to create the amazing album and video that have brought national attention to the Bernie and The Believers project as well as giving Bernie a meaningful reason to keep living. The additional funds raised in the "Send Bernie Home" campaign have provided Bernie with medical care that is not normally available for ALS patients at this advanced stage. It is very important that the tour back East takes place and is well funded. These ongoing events keep Bernie's hope alive and improve the quality of his life.

Despite Bernie's grim prognosis, he has all of his mental and emotional faculties in place. He is a courageous fighter and he presses on. He lives for his daughter and he lives for his music. We want to give Bernie the joy, satisfaction, and sense of accomplishment knowing his music is reaching a national audience by playing a Tiny Desk Concert. It is a huge honor for me to sing these songs.

This cause is greater than all of us. In the spirit of healing and music, please give what you can, and please, if you feel moved by Bernie’s courage and music, share this far and wide. Thank you from the bottom of our hearts for your support. We are grateful beyond measure.

With Love and Music,

essence, Bernie & The Believers

www.essencemusic.com
www.BernieAndTheBelievers.com
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Dear Friends, I’m sitting here stunned with tear streaked cheeks trying to remember how this all happened. The San Francisco Chronicle published an epic feature on Bernie and The Believers yesterday! (See link below) Brilliantly and beautifully written by Aidin Vaziri, it includes a deeply moving 12 minute video documentary created by Manjula Varghese, with photos by Guy Wathen, I was brought to tears many, many times, reading/viewing. This is a good example here of life happening when you’re busy making plans. Deep thanks to the magical music makers who made this record possible: Roger Rocha, Daniel Berkman, David Simon-Baker, Erma Kyriakos. And thank you to the people who believed from the start and keep believing: Mike Regan, John Cuniberti, Craig Morton, Elaine King Elaine King Mossner, Perry Serpa, Karin Conn, Lena Dalton Lena Dalton Sutcliffe, Lisa Wilson, Karen Koons Karen Koons Thomas, Bob Laul, Laura Santos, Steve Adams, Howard Sapper for giving me the courage to persist.. And thank you to the thousands of people who contributed from far and wide, and those who continue giving. Wow. Wow. Wow. The universe blessed me by bringing Bernie Dalton into my life. #Believe

https://www.sfchronicle.com/entertainment/article/How-a-grim-ALS-diagnosis-created-beautiful-music-12897983.php#photo-15522963
SF Chronicle Feature & Documentary!
SF Chronicle Feature & Documentary!
SF Chronicle Feature & Documentary!
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Raised by 1,628 people in 9 months
Created January 17, 2018
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