Scott's Sarcoma Solution

£120,690 of £120,000 goal

Raised by 3,296 people in 1 month

Look closely at my photo...can you spot it? I am holding a fake right arm that my gorgeous, talented girlfriend Becky made me for my Halloween costume last October. We were dressed as Jack the Pumpkin King  (Becky) and Sally the humanoid ragdoll (me) from the film, A Nightmare Before Christmas. Even though I no longer have a right arm, that didn't stop Becky from coming up with the perfect Halloween costume as we celebrated just the two of us in our first home together. 

My name is Scott and I am 25 years old. In April 2018, during the second year of my PhD studies at St. Andrews University, I was diagnosed with Osteosarcoma (Bone Cancer) of the right proximal humerus (shoulder). In August 2018 I had my right arm and shoulder amputated in Birmingham Royal Orthopedic Hospital as the cancer was not suppressed by the only known curative chemotherapy drugs that are available for Osteosarcoma. Here is a photo of me at the Musgrave Disability Centre in November after receiving a shoulder prosthetic (I chose a shoulder as an arm would be too heavy for longboarding).

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So now a year after my diagnosis, the cancer has metastasized (spread) to my lungs and my oncologist has advised that any further treatment would be life-extending only. I have exhausted all possible curative treatments available to me on the NHS.

I have thoroughly researched potential curative options outside of the NHS and I will be pursuing private drugs and treatments not yet available on the NHS, but are licensed and have been shown effective in other countries. These treatment packages cost up to £55,000 at a time with an indefinite monthly follow up care of up to £4000, as well as travel and accommodation costs incurred during treatment visits.

Time is not on my side and I will be hoping to raise enough funds to begin the first round of treatment by the end of April.

As well as raising funds for my further treatment, I hope to raise awareness for this rare disease. Osteosarcoma, or osteogenic sarcoma, is a rare type of bone cancer. Osteosarcoma is considered an orphan disease whose rarity means there is a lack of a market large enough to gain support and resources for discovering treatments for it. Osteosarcoma usually develops in growing bones. It‘s most common in teenagers and young adults, especially in young males. Any bone in the body can be affected, but the most common sites are the arms or legs, particularly around the knee joint. 

You can find more information on Osteosarcoma on the Macmillan website: https://www.macmillan.org.uk/information-and-support/bone-cancer/understanding-cancer/types-of-bone-cancer/osteosarcoma.html#241797

I understand this is a huge amount of money to ask from people. But raising these funds mean I have a chance to continue living my life with my wonderful girlfriend, family and friends. I can't thank you enough for your support.

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Hello everyone! It's been a while - I hope you are all well and happy. We are now less than £500 away from our target - pretty unbelievable! I wanted to say an absolutely massive thank you to everyone who has donated, big and small, and to all the friends, family and strangers, from all over the world, who have supported me with this. It is pretty humbling to see all the efforts people have gone to, and the time they have taken out of their lives, to help raise funds and spread the word. Thanks to all of you I am now able to explore a number of different treatment options, which wouldn't have been possible without all of your support. After a very busy month I am now spending some quiet time with Becky and her family in Edinburgh. Thank you so much for allowing us to hold on to some hope :) Peace.
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Here's a photo Becky took of me enjoying the sun in Tollymore Forest yesterday - one of my favourite places to be :) We are past £110K now and I am blown away by the support that keeps coming in from everyone - hoping for some good news to share with you all very soon. Peace.
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We have just hit £100k!!! I really can't thank you all enough. Big shout out to all the events that have been going on this week and coming up - you are all amazing humans. Please keep sharing my story as much as you can - we are so close. Happy Sunday everyone :)
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We've made it past the £90k mark! Massive love and thanks to 2616 donors. Becks and I are so grateful for all the love and support - makes a huge difference. We hope everyone's having a lovely long weekend in the sun. We are :) Peace x
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£120,690 of £120,000 goal

Raised by 3,296 people in 1 month
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