SawyerStrong
Donation protected
Our son Sawyer, was born January 25th, 2018. Sawyer was born 3 weeks early and due to pregnancy complications and was delivered via cesarean section(C-Section) at 9:11 am. He was a tiny little guy, weighing in at 5lbs 9oz, but Sawyer and Cassie were both healthy after the surgery and we welcomed him into the world and our family. Look at him! How could we not!!!
#SAWYERSTRONG
As part of our pregnancy testing we had been tested for Cystic Fibrosis (CF)and both of us were carriers of the CF gene. This meant that Sawyer had a 25% chance of having Cystic Fibrosis and we were praying that the 75% chance of him only being a carrier of the gene would be the outcome. Unfortunately, after 2 inconclusive tests we received the news that Sawyer did in fact have Cystic Fibrosis. Cystic fibrosis(CF) is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
Of course, this news was devastating to us. We held our sweet little boy (who had not gained more than a pound in the weeks leading up to the diagnosis) and cried.
#SAWYERSTRONG
The uncertainty of this diagnosis struck fear in our hearts and brought a rush of emotions and fear into our lives as parents. Luckily, we were referred to Chapel Hill Children’s Hospital for an appointment the following week.
At Chapel Hill we met our CF team and immediately started treatments. Because of the pancreatic symptoms of CF Sawyer wasn’t gaining weight, so we immediately started Enzyme Therapy. The enzymes must be taken with every meal for the duration of Sawyers life. Thankfully the Cystic Fibrosis Foundation (https://www.cff.org/) and other research organizations around the world have funded extensive research and developed therapies such as enzyme supplementation. Without these enzymes, Sawyer would essentially starve due to digestive deficiencies.
Sawyer...well he has been SawyerStrong. Since his diagnosis we have been to 4 visits at Chapel Hill Children's Hospital to monitor his symptoms and evaluate his treatment plan. The effects of his therapy and medications have been amazing. Sawyer is still a little guy but he is starting to get that cute baby fat and the medical staff is excited to see his progress at every appointment.
#SAWYERSTRONG
As Sawyer grows, more complications will emerge and more treatments will be necessary. Thank God we live in a time and place where medical treatments are accessible, progressive and effective. As recently as 20 years ago children were dying by elementary age because of this disease but there is now hope for families and children with CF.
There are many new therapies and treatments that bring hope to all those living with CF but unfortunately these treatments aren’t without major costs. The average annual medical cost for a patient with moderate CF symptoms is $25,000 and there are many other costs incurred with possible hospitalization and travel to appointments. Unfortunately, some of the promising treatments can be upwards of $250,000 per year. We have been blessed with health care coverage through Matt’s job, but high deductibles, insurance co-payments and travel costs are becoming a financial strain on our family. Therefore, we humbly ask for your donations in an effort to relieve the financial burdens of this disease.
#SAWYERSTRONG
We have a goal of $50,000 to be able to ensure all Sawyers medical needs are met over the next 3-5 years as our family adjusts to the financial demands associated with treatment of this disease. We will be placing these funds in an interest-bearing savings account and only using the funds for expenses directly related to medical costs. The following examples are the types of expenses which we currently have or will be incurring as part of his therapy plan in the near future. The Enzymes are very expensive and the cost will be increasing as his dosage increases with size. He will also require nebulizer treatments in the future and a vibrating vest to help alleviate his pulmonary symptoms. Sawyer also has monthly doctor appointments with our CF team at Chapel Hill and extra appointments with our Pediatrician to monitor symptoms. As you can see these expenses have added up quick and will increase over the years as his therapy advances to treat symptoms. We will also be donating 10% of the funds raised to the Cystic Fibrosis Foundation for the betterment of their cause. (To donate directly to CFF.org instad of our campaign please use the hyperlink below: https://secure2.convio.net/cffh/site/Donation2;jsessionid=74EF1DA9F9D559FFE65DCB760E0F8CDD.app212a?1761.donation=form1&df_id=1761&_ga=2.196755247.285521845.1526435844-1260193440.1526006914)
We are just starting our journey as parents and caregivers for a child with CF and we need all the help we can get. We have committed to raise Sawyer to live and THRIVE with this disease instead of living in-spite-of this disease, thus #SawyerStrong has become our moto. We thank you for your time to hear our story and we encourage you to research more about CF. Your donations are appreciated beyond words.
#SAWYERSTRONG
Sincerely,
Sawyer, Cassie and Matt Crumpton.
Matt is a Engineering Technologist at Duke Energy. He is currently pursuing his B.S. at East Carolina University. He served our country as a Combat Medic in Afghanistan in 2004-2005.
Cassie is full time mom for Baby Sawyer. She is a graduate from UNCW and was as substitute teacher until a few weeks before Sawyer was born. She says Mother's Day was one of her most proud days ever in her life!
Thank you for you donations to our family. We will continue to update Sawyers medical treatments and spread awareness of Cystic Fibrosis and our support for The Cystic Fibrosis Foundation.
#SAWYERSTRONGAs part of our pregnancy testing we had been tested for Cystic Fibrosis (CF)and both of us were carriers of the CF gene. This meant that Sawyer had a 25% chance of having Cystic Fibrosis and we were praying that the 75% chance of him only being a carrier of the gene would be the outcome. Unfortunately, after 2 inconclusive tests we received the news that Sawyer did in fact have Cystic Fibrosis. Cystic fibrosis(CF) is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
Of course, this news was devastating to us. We held our sweet little boy (who had not gained more than a pound in the weeks leading up to the diagnosis) and cried.
#SAWYERSTRONGThe uncertainty of this diagnosis struck fear in our hearts and brought a rush of emotions and fear into our lives as parents. Luckily, we were referred to Chapel Hill Children’s Hospital for an appointment the following week.
At Chapel Hill we met our CF team and immediately started treatments. Because of the pancreatic symptoms of CF Sawyer wasn’t gaining weight, so we immediately started Enzyme Therapy. The enzymes must be taken with every meal for the duration of Sawyers life. Thankfully the Cystic Fibrosis Foundation (https://www.cff.org/) and other research organizations around the world have funded extensive research and developed therapies such as enzyme supplementation. Without these enzymes, Sawyer would essentially starve due to digestive deficiencies.
Sawyer...well he has been SawyerStrong. Since his diagnosis we have been to 4 visits at Chapel Hill Children's Hospital to monitor his symptoms and evaluate his treatment plan. The effects of his therapy and medications have been amazing. Sawyer is still a little guy but he is starting to get that cute baby fat and the medical staff is excited to see his progress at every appointment.
#SAWYERSTRONGAs Sawyer grows, more complications will emerge and more treatments will be necessary. Thank God we live in a time and place where medical treatments are accessible, progressive and effective. As recently as 20 years ago children were dying by elementary age because of this disease but there is now hope for families and children with CF.
There are many new therapies and treatments that bring hope to all those living with CF but unfortunately these treatments aren’t without major costs. The average annual medical cost for a patient with moderate CF symptoms is $25,000 and there are many other costs incurred with possible hospitalization and travel to appointments. Unfortunately, some of the promising treatments can be upwards of $250,000 per year. We have been blessed with health care coverage through Matt’s job, but high deductibles, insurance co-payments and travel costs are becoming a financial strain on our family. Therefore, we humbly ask for your donations in an effort to relieve the financial burdens of this disease.
#SAWYERSTRONGWe have a goal of $50,000 to be able to ensure all Sawyers medical needs are met over the next 3-5 years as our family adjusts to the financial demands associated with treatment of this disease. We will be placing these funds in an interest-bearing savings account and only using the funds for expenses directly related to medical costs. The following examples are the types of expenses which we currently have or will be incurring as part of his therapy plan in the near future. The Enzymes are very expensive and the cost will be increasing as his dosage increases with size. He will also require nebulizer treatments in the future and a vibrating vest to help alleviate his pulmonary symptoms. Sawyer also has monthly doctor appointments with our CF team at Chapel Hill and extra appointments with our Pediatrician to monitor symptoms. As you can see these expenses have added up quick and will increase over the years as his therapy advances to treat symptoms. We will also be donating 10% of the funds raised to the Cystic Fibrosis Foundation for the betterment of their cause. (To donate directly to CFF.org instad of our campaign please use the hyperlink below: https://secure2.convio.net/cffh/site/Donation2;jsessionid=74EF1DA9F9D559FFE65DCB760E0F8CDD.app212a?1761.donation=form1&df_id=1761&_ga=2.196755247.285521845.1526435844-1260193440.1526006914)
We are just starting our journey as parents and caregivers for a child with CF and we need all the help we can get. We have committed to raise Sawyer to live and THRIVE with this disease instead of living in-spite-of this disease, thus #SawyerStrong has become our moto. We thank you for your time to hear our story and we encourage you to research more about CF. Your donations are appreciated beyond words.
#SAWYERSTRONGSincerely,
Sawyer, Cassie and Matt Crumpton.
Matt is a Engineering Technologist at Duke Energy. He is currently pursuing his B.S. at East Carolina University. He served our country as a Combat Medic in Afghanistan in 2004-2005.
Cassie is full time mom for Baby Sawyer. She is a graduate from UNCW and was as substitute teacher until a few weeks before Sawyer was born. She says Mother's Day was one of her most proud days ever in her life!
Thank you for you donations to our family. We will continue to update Sawyers medical treatments and spread awareness of Cystic Fibrosis and our support for The Cystic Fibrosis Foundation.
Organiser
Cassie Crumpton
Organiser
Wilmington, NC
