Saving Sadie. Neuromuscular Disease

$8,180 of $15,000 goal

Raised by 171 people in 29 months
Tiffney Hopwood
on behalf of Blake Hickman
 KING, NC
A few months back, it was feared that Sadie was facing a life with cystic fibrosis. While progress had been seen initially to steer away from that, this quickly changed two days before Christmas. Sadie was aspirating when taking a bottle and had been unable to gain weight. She was taken to Wake Forest Baptist Medical Center. During a test before inserting the feeding tube, it was determined that Sadie has Spinal Muscular Atrophy Type 1. Most children that are faced with this diagnosis do not live past the age of two. This comes with an outlook of many hospital visits, medical supplies and a limited life expectancy. Sadie's mother, Logan, is seeking alternative treatments in New Jersey from Dr. Bach that specialize in gene therapy and isolating the SMN1 gene that have given Sadie this fatal deterioration of her muscles. Currently, Sadie is fighting RSV pneumonia and is awaiting the all clear to go home and begin her travels north.  Sadie is six months old and needs to have a long life ahead of her. Please help Sadie fight for her life.
7841509_1451162545.3313_funddescription.
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It is hard to update this site, so we are continuously posting updates on Sadies Facebook page. Saving Sadie.
Every dollar helps since we are having to be home from work but most of all we request prayers. We truly believe god has big plans for our girl and we want his healing more than anything. Thank you guys so much for the constant messages and love. We appreciate every single one of you!!!!!
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Update
As of Sept 20, 2016 Sadie has been freed from the diagnosis of SMA! We are praising God for that. She has undergone several surgeries and numerous hospitalizations. Sadie has had laser throat surgery and a GTube placed. She has fought, and won, against the flu, pneumonia, RSV, the Rhinovirus and many bouts with lungs collapsing. She is such a fighter. Her spirit is so beautiful and so contagious. Her smile can light up a room!
She has been accepted into the Undiagnosed Disease Network through Harvard University at Duke Medical. Now we journey back and forth to see specialist in the hopes that a diagnosis will come. We brace ourselves out of fear of the diagnosis, yet we are so blessed and Sadie is so at peace with what God is using her life for. She is a testament to Gods mercy, love and grace. Thank you for loving us and journeying with us
All Gods grace in one little face
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Sadie has been doing so great since surgery. She is now beginning to move her arms and turn her head! She also has a new little voice and has become extremely vocal. She looks so much better and is just plain happy. We may have to go back into surgery to fix the part of her throat that they were unable to fix during the first procedure. Other than that, Sadies future looks "normal". Praise God for every thought, prayer, and donation.
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We are just now able to update the page. Sadie is scheduled to have surgery on April 5th, she will undergo 3 procedures.
First, she will have a Supraglottoplasty in order to open up her airway. This will hopefully help her breathe easily and allow her to properly swallow.
Second, she will have a Gtube placed.
Third, she will be given a Nissen surgery to tighten the entry way to her stomach.

The recovery would normally be short and simple but because she has low tone and is prone to sickness... They expect the recovery time to double.

Keep us in your prayers this coming up week!
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Read a Previous Update
Ann Steelman
28 months ago
1
1

Praying for sweet baby Sadie. My heart goes out to each of you. Just keep believing and praising God. He makes no mistskes. He is there with your precious baby.

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Shannon McBride
29 months ago

Praying for Baby Sadie !

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Robin Ann Poston
20 months ago

My daughter has SMA, they told us the same thing, she wouldn't live to be 2. She's 10&1/2!!! And now there is a first ever treatment called Nusinersin (spelling?) it's AMAZING!!! Type 1's are standing, breathing and eating unassisted! There is a large network of SMA families! Many adults with type 1! And now the possibilities are endless! Sending prayers and hugs! To Sadie and family!

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Sara Warland
29 months ago

Prayers

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Jordanna Lembo
29 months ago

Don't lose hope! I know someone who has the most serious form of SMA, was given the same prognosis, but is now 21 years old and in college!

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$8,180 of $15,000 goal

Raised by 171 people in 29 months
Created December 26, 2015
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$25
Terri Silver
6 months ago

Praying for little Miss Sadie to heal in the name of sweet Jesus!

LI
$30
Lisa Ingle
12 months ago

Our prayers and hearts are with you.

CC
$20
Carrie Cochran
12 months ago

Prayers and good vibes for your sweet, beautiful Sadie <3

KC
$25
Ken Clifton
12 months ago

Prayers for sweet Sadie!

SP
$25
Sandra Pinnix
13 months ago

Walking with you, through prayer.

DD
$25
Danyel Detomo
13 months ago

Prayers for this little girl

Ann Steelman
28 months ago
1
1

Praying for sweet baby Sadie. My heart goes out to each of you. Just keep believing and praising God. He makes no mistskes. He is there with your precious baby.

+ Read More
Shannon McBride
29 months ago

Praying for Baby Sadie !

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Robin Ann Poston
20 months ago

My daughter has SMA, they told us the same thing, she wouldn't live to be 2. She's 10&1/2!!! And now there is a first ever treatment called Nusinersin (spelling?) it's AMAZING!!! Type 1's are standing, breathing and eating unassisted! There is a large network of SMA families! Many adults with type 1! And now the possibilities are endless! Sending prayers and hugs! To Sadie and family!

+ Read More
Sara Warland
29 months ago

Prayers

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Jordanna Lembo
29 months ago

Don't lose hope! I know someone who has the most serious form of SMA, was given the same prognosis, but is now 21 years old and in college!

+ Read More
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