Saving AnnaMarie
Donation protected
First came Lyme, then came Endocarditis (heart valve infection caused by strep crossing Lyme supressed immune system), then came Chronic Inflammatory Response Syndrome CIRS ( severe mold illness). AnnaMarie is now suffering all of these concurrently. The physical as well as mental pain is exscrutiating. The treatments are complicated, dangerous, torturous, exorbitantly priced, and not covered by insurance.
AnnaMarie has gone from an aspiring and confident dancer in a renowned dance company, an avid hiker, a lover of all things nature, and a straight A and B student ..... to an extemely mentally and physically fatigued young lady that too often is bedbound, fearful of nature, a homebound student struggling to complete only two courses, insecure and suffering increasing social anxiety, and is fighting for her life.
After suffering the symptoms for over a year,
AnnaMarie was finally diagnosed with Lyme disease at age 7. The disease was treated improperly and remains in her body even now at age 15. During the years we searched for a Lyme Literate MD to treat AnnaMarie, she became more and more immune suppressed which has allowed viruses, bacteria, and parasites to cross the immunity barrier and attack her body systemically. EVERY organ, muscle and joint has been affected. Her blood has become so thick that she takes 325mg aspirin daily as well as blood thinning supplements. AnnaMarie has a mutation of the MTHFR gene which means her body is unable to remove biotoxins or environmental toxins without medical aid. Having unknowingly lived in a home harboring mold for two years, AnnaMarie's body stored mold spores carried through the ventilation system which brought her closer to death than the other diseases. The doctor was astounded and made it very clear that we are lucky to still have the chance to do what we can for AnnaMarie's life. Some of AnnaMarie's health issues can be eradicated but as of today, the Lyme and complications from the MTHFR mutation can only be brought to a life-long maintenance level.
What we are facing right now:
AnnaMarie's medical treatment- now on oxygen and at times dependant on a wheelchair, the doctor has been treating AnnaMarie with supplements and weekly IVs to improve her immune system before administering the most dangerous part of her treatment. A mediport has been implanted into her chest and daily treatments for fungemia has begun. AnnaMarie's body chemistry is being affected and weekly CBCs are run to make sure her organs don't shut down. Supplemental IV treatments are given to counterbalance chemistry changes. The out of pocket cost projection for the next 12 months=
Mediport placement = $3,876 (after insurance)
Doctor appt. @ 3 weeks $450 = $7,650 yr
Oxidative IV therapy @ weekly $150 = $7,800 yr
AutoImmune IV therapy @ weekly $250 = $13,000 yr
UVLrx blood therapy @2x/wk $560 = $29,120
Visiting nurse and Mold/Lyme/Hydration IV = $800 for 4 months (after Insurance)=$2,400 yr
Specialized prescription meds due to MTHFR = $unknown
Home-Mold spores have settled into all things pourous in our home and onto all surfaces. We are living apart while my husband painstakingly throws away all of our belongings with any kind of fiber, puts non-pourous items into storage that will slowly be treated for mold spore removal and brought back, and prepares our home for complete mold remediation. The remediators have removed the mold growth and now will address all walls, floors and ceilings with mold spore removal treatment. A build up of dead mold spores is just as deadly as living mold spores to AnnaMarie's body. Only then can we begin the slow process of rebuilding walls, all flooring, new beds and bedding, and lastly, furniture. The estimate for full remediation is
$12,700 (just to be able to get back into our home)
Although totals for one year are listed, treatment is projected to last 18-24 months followed by lifelong maintenance ptotocols. Frequent medical testing, special supplements, and pricey dietary changes are not listed. The immediate need to bring our family back together in our remediated home and continue treatment for the next two months is $23,956. We will continue doing what we can medically and will refurnish our home as we can.
AnnaMarie has tested well into the Genius IQ range, is empathic, and annoyingly observant :-)
She is aware of the financial picture and has asked that we just stop the treatments and let her go. She will understand the impossibility of even considering such a thing when she has a child of her own :-)
We want to thank you in advance for your time, support, and help. ANY amount is helpful and appreciated and, if you are not able to donate, passing this along to as many people as you can is equally helpful and appreciated :-)
Respectfully,
Mike, Karen, and
*AnnaMarie*
Harris
AnnaMarie has gone from an aspiring and confident dancer in a renowned dance company, an avid hiker, a lover of all things nature, and a straight A and B student ..... to an extemely mentally and physically fatigued young lady that too often is bedbound, fearful of nature, a homebound student struggling to complete only two courses, insecure and suffering increasing social anxiety, and is fighting for her life.
After suffering the symptoms for over a year,
AnnaMarie was finally diagnosed with Lyme disease at age 7. The disease was treated improperly and remains in her body even now at age 15. During the years we searched for a Lyme Literate MD to treat AnnaMarie, she became more and more immune suppressed which has allowed viruses, bacteria, and parasites to cross the immunity barrier and attack her body systemically. EVERY organ, muscle and joint has been affected. Her blood has become so thick that she takes 325mg aspirin daily as well as blood thinning supplements. AnnaMarie has a mutation of the MTHFR gene which means her body is unable to remove biotoxins or environmental toxins without medical aid. Having unknowingly lived in a home harboring mold for two years, AnnaMarie's body stored mold spores carried through the ventilation system which brought her closer to death than the other diseases. The doctor was astounded and made it very clear that we are lucky to still have the chance to do what we can for AnnaMarie's life. Some of AnnaMarie's health issues can be eradicated but as of today, the Lyme and complications from the MTHFR mutation can only be brought to a life-long maintenance level.
What we are facing right now:
AnnaMarie's medical treatment- now on oxygen and at times dependant on a wheelchair, the doctor has been treating AnnaMarie with supplements and weekly IVs to improve her immune system before administering the most dangerous part of her treatment. A mediport has been implanted into her chest and daily treatments for fungemia has begun. AnnaMarie's body chemistry is being affected and weekly CBCs are run to make sure her organs don't shut down. Supplemental IV treatments are given to counterbalance chemistry changes. The out of pocket cost projection for the next 12 months=
Mediport placement = $3,876 (after insurance)
Doctor appt. @ 3 weeks $450 = $7,650 yr
Oxidative IV therapy @ weekly $150 = $7,800 yr
AutoImmune IV therapy @ weekly $250 = $13,000 yr
UVLrx blood therapy @2x/wk $560 = $29,120
Visiting nurse and Mold/Lyme/Hydration IV = $800 for 4 months (after Insurance)=$2,400 yr
Specialized prescription meds due to MTHFR = $unknown
Home-Mold spores have settled into all things pourous in our home and onto all surfaces. We are living apart while my husband painstakingly throws away all of our belongings with any kind of fiber, puts non-pourous items into storage that will slowly be treated for mold spore removal and brought back, and prepares our home for complete mold remediation. The remediators have removed the mold growth and now will address all walls, floors and ceilings with mold spore removal treatment. A build up of dead mold spores is just as deadly as living mold spores to AnnaMarie's body. Only then can we begin the slow process of rebuilding walls, all flooring, new beds and bedding, and lastly, furniture. The estimate for full remediation is
$12,700 (just to be able to get back into our home)
Although totals for one year are listed, treatment is projected to last 18-24 months followed by lifelong maintenance ptotocols. Frequent medical testing, special supplements, and pricey dietary changes are not listed. The immediate need to bring our family back together in our remediated home and continue treatment for the next two months is $23,956. We will continue doing what we can medically and will refurnish our home as we can.
AnnaMarie has tested well into the Genius IQ range, is empathic, and annoyingly observant :-)
She is aware of the financial picture and has asked that we just stop the treatments and let her go. She will understand the impossibility of even considering such a thing when she has a child of her own :-)
We want to thank you in advance for your time, support, and help. ANY amount is helpful and appreciated and, if you are not able to donate, passing this along to as many people as you can is equally helpful and appreciated :-)
Respectfully,
Mike, Karen, and
*AnnaMarie*
Harris
Organizer
Karen Harris
Organizer
