Saving Baby Nate
Meet baby Nate, my one-year-old cousin.
Nate is battling a rare disease called Langerhans Cell Histiocytosis (LCH), which affects only 1 in 200,000 children. Sadly, this means that the chance of survival is low for Nate.
LCH is divided into three groups - unifocal, multifocal uni system and multifocal Multisystem. Unfortunately, Nate has multifocal multisystem disease which has rapidly progressed in his tiny body, the Doctors have confirmed that there are tumours in all his organs and now also in his bone marrow. In order to fight the disease that is in so many parts of his body, Nate is currently undergoing chemotherapy 4 times a day.
As well as the chemo, they are administering Nate with some additional crushed medicine but unfortunately every time they administer it, it is blocking his tiny nasal gastric tube and as a result, the tube needs to be changed regularly. This is a very traumatic experience for everyone. There is an alternative liquid medicine Nate can have but it is very expensive and comes out of Nate's parent's pocket as the hospital will not supply it. Each bottle cost $100.
Baby Nate has been hospitalised for three months now and the Doctors have not given any end date to his hospitalisation. He is one of three children and for his parent's Alan and Kristy, maintaining a mortgage, providing food, paying for general bills and maintaining the 'normal' for the other little ones has been very hard.
On behalf of the whole family, if anyone could assist little Nate and his parents through this heartbreaking and tragic time, we would be forever grateful. We need help to ensure we get to see our baby boy grow up happy and healthy.
Please help us save baby Nate.
Watch the Ten Eyewitness News report in full here:
Our brave and beautiful son has spent the last three months in hospital.
He is currently having chemotherapy for 6 hours a day.
He has had 10 blood transfusions and 7 albumin (protein) transfusions.
Nate has not yet learned to stand up, babble or reach other milestones babies his age should.
He has had countless procedures and daily blood tests.
When he is feeling ok, Nate loves music. He dances to Drake "one dance" and the wiggles. He likes to wave goodbye to the doctors when they come in each morning, to hurry them out of the room again.
The only good that has come of all this is YOU and your support.
So many people have assisted our family during this time of despair and uncertainty.
We have watched in tears and awe as so many have contributed to gofundme page initiated by our beautiful cousin Sophie Bailey.
There are not enough words to express our gratitude.
We are humbled and overwhelmed by your generosity.
For those who have donated, provided meals, visited, messaged, prayed or even thought of our son......we thank you.
We will never forget what you have done for us.
You have taken from your family to give to ours, and for that, we thank you.
All our love Kristy and Alan.
You are so brave & strong (just like your mummy & daddy!) keep fighting little man. We all love you x