£143,696 of £224,000 goal

Raised by 139 people in 10 months
This is Maddis new fundraising page as her previous page with Just Giving ended and the funds were transferred to Sheffield University to support Gene Therapy research for Spastic Paraplegia Gene 15. All donations to this page will also go to Sheffield University to carry on funding for a cure against SPG15.
Maddi has been battling through this diagnosis since July 2016 while her walking is deteriorating quite quickly. She will carry on fighting until a cure is found. 
Spastic Paraplegia Gene 15 is a progressive illness known to cause paralysis in all four limbs and also abnormalities on the brain, in addition it affects the peripheral nervous system, impairing vision and hearing. I have researched more to find out about this awful disease and also know it can cause serious breathing and choking problems aswell as juvenile parkinsons.
Please can you help by donating, we can't just give up when she has been given a chance of a possible cure. Maddi deserves a chance of having to live her life without being disabilities and having no quality of life due to this awful disease.



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HELP US SAVE MADDI has reached 63% of its goal. Thanks to many of you for helping our campaign. Please read our urgent appeal update and follow us on Facebook #saveourmaddi
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We are now more than half way there at reaching our goal to cover research for Gene Therapy. For SPG15. This can allow us to have more hope for a successful treatment for Maddi and others with this horrendous disease.
As Maddi is showing progression it is very distressing to watch her suffering these symptoms. She is only 16 so it is very sad to watch, look at her lovely smile I can not bare to see it disappear.
PLEASE HELP WHERE YOU CAN TO REACH OUR GOAL FOR TREATMENT. Thank you all so much for all your help.
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Please take a look at the blog created by Craig Smith at
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Currently we are waiting for Sheffield and any news on the research update for gene therapy as a hopeful cure. Tragically there is no funding into research for this condition because it's so rare, so WE have to keep raising these funds. We have £91,000 to go.
It's important for Maddi to keep being as physically strong as possible as the slightest slip she could be on a downward spiral so it has been tough and lately we are living on a knives edge. There has been no offer of any drugs to help slow the disease process which adds more stress to our situation.
SPG15 is a horrible disease and will rob Maddi her quality of life at this young age.
Thank you for your support and please keep sharing our story
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Read a Previous Update
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£143,696 of £224,000 goal

Raised by 139 people in 10 months
Created April 7, 2017
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1 month ago
2 months ago
Amy Farrugia
2 months ago

Thinking of you and your family my love, I know what you're going through x

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