Rachael's Road to Recovery
> Many times eating disorders originate from past trauma or abuse and the feeling of being out of control. It's NOT about food or even looking desirable. Often it's just the opposite. Starving to look unattractive can be a strong defense mechanism to help protect themselves, by providing a false sense of security. Subconsciously, an anorexic will want to look as unattractive as possible to protect themselves from sexual attention due to traumatic or abusive instances. It’s been a long, hard road, thus far, for Rachael and her dedicated husband, Rod, trying to find the right solutions that best suit Rachael’s needs in overcoming her long, vicious battle with Anorexia. With the compassion and knowledge of her treatment team in Southern California (which consist of multiple specific medical professionals) and the influence of eating disorder specialist Peggy Claude Pierre, Rachael has found herself in great healing hands after a long struggle to find even the smallest success over the past 10+ years. Rachael has fought to find her own path to her freedom from her eating disorder and wants to share all that she has encountered so other patients have access to other unique research options.
Going through so many different eating disorder facilities, she found them unable to transition her properly back into the real world, Rachael was left feeling as if she was a product of what is known as "recycle therapy," meaning she was unintentionally groomed to fail and repeat treatment due to the lack of knowledge and know how that exists in this field; so many treatment centers have a very linear view due to the lack of funding and support and the fact that food is used as a reward or punishment.
Rachael's family has been told to say goodbye more times than they can count but each time, by the grace of God, Rachael has miraculously recovered. However, this was not possible without some challenges physically, mentally and financially. Over time, she has had multiple organs fail, lost her ability to walk as well as use of her hands and arms and has had her body atrophy so badly she couldn’t move her mouth to speak. Although Rachael is far from recovered at this time due to biological failures, (stomach flu, pancreatitis and a distended gall bladder) she is now finding strength through motivating and helping others through her own experiences.
She is completely committed to her recovery, but now she can see a bigger picture, helping others in need and creating awareness and education for the disease. "We need to bring eating disorders out of the shadows and into the spotlight. " says Farrokh. She would not be alive today, if it wasn’t for donations and prayers from friends, family, and strangers all over the world. Rachael’s Road to Recovery is a progressive non profit organization that is designed to help educate, motivate, and finance eating disorder victims and spread awareness of this deadly disease. Our team is not only trying to save Rachael's life, we hope that through her journey, she can help and motivate others suffering as well in whatever hardships life uses to challenge them. Join us in helping others by starting a movement to solve the complexities of what eating disorders represent and not be a host to this parasite any longer.
Hi Rachael. I am a nurse at the Eating Disorder Treatment Center at the Johns Hopkins Hospital in Baltimore, Maryland. This facility takes the sickest of the sick, as we have the capability of caring for those who are medically compromised with severe anorexia. You are not a hopeless case! We can help you! Please call the admissions office at the Center for Eating Disorders! I have been there for 27 years and we have seen hundreds of cases like you. Let us help you, please!
Some of the comments here are so heartwarming, and some are making my blood boil. I'm an RN with professional and personal experience with eating disorders. For those of you out there who are asking for information which has not been shared with you- simply go contribute your $ somewhere else or offer your support in other ways. You are here voluntarily and are free to leave the same way. For those who seem to need more education re: EDs and their treatment in the US: 1) Anorexia is NEVER a personal choice. It is a brain-based, biological illness. 2) Rachael's family or husband or Rachael herself are not at fault for her condition. How exactly does that position constructively help recovery?! 3)It is absolutely correct that there are only a few inpatient treatment facilities in this country that can/will care for a patient with as complex physical/psychiatric needs as Rachael. And yes, the best outcomes are from the one in Co. I believe they are looking at. 4) Insurance provided by commercial companies or the government is not mandated to provide care at just any facility the patient chooses. Further, there are often VERY steep co-pays, and VERY steep out-of-pocket maximums. As in 20%-30% of all services up to 30,000 OR MORE per year. Any bills that are totally rejected by insurance ( as plenty are, I assure you ), become the patient's responsibility legally . 5) a patient in Rachael's condition will require at LEAST 6-12 months of inpatient care, and likely will need outpatient therapy for years after that, if she survives. She will need very close psychiatric care probably permanently, and psychiatry has become a "boutique" business- cash only. 6) it doesn't end with successful treatment. I can promise you Rachael already has severe osteoporosis and significantly diminished cardiac capacity. She will need long-term rehab for these conditions. We would have no problem spending what- 200,000-300,000- half a million?- on cancer treatment. As a matter of fact, in this country, we frequently do. But on an equally ( if not more so ) PSYCHIATRIC disorder, we balk and criticize and ask intrusive questions and offer to "help" inappropriately. Donate, and/or say something supportive, or go away. Rachael, keep fighting! My warrior daughter in NJ has got your back!!!
Please let us know what the hospital facility is that Rachael wants to go to. If we know the facility, we can reach out to all sorts of colleagues, associates, and friends, and possibly pull strings to get her there on a full scholarship! This information would be SO HELPFUL! It would also help the skeptical among us to get clarity around this story, and better understand why there is only ONE provider in the nation that will actually help Rachael. PLEASE SHARE THE FACILITY'S NAME HERE. Thank you!
Amazing, they've raised well over their $100,000 mark - and not a single thank you, just the clock ticking to raise more. How long will you leave it up, til you reach $200,000? $300,000? Sad that you had 10 yrs to help your wife, and she help herself, and now you want strangers to pull you both out of the hole you've dug for yourselves?!? Unbelievable. I've had Anorexia & Bulimia (back in the 80s/early 90s when they had NO idea what to call the combination of both) -- I CHOSE NOT TO EAT, I THEN CHOSE TO EXPEL IT ONCE I DID IT. No one forced me. I finally realized I was responsible for my own health....NO ONE else, I grew the h'll up and realized my issues were NO ONE'S fault, but my own. She begs for help, when all the while SHE IS THE ONLY ONE THAT CAN HELP HERSELF. It's clearly evident she doesn't give a hoot about herself, otherwise, she wouldn't be a skeleton w/skin. I don't feel sorry for the choices she made, no one twisted her arm, even her "personal trainer" husband. Who I do feel so sorry for, is those that get suckered into donating, and then KEEP donating after the initial $100,000 is raised. I think if she meant serious business about getting help, and stopping the refusal of professionals, it would've happened LONG before she hit "40 something pounds". My sympathy tank is empty today, she's past the point of recovery, it's just a matter of time before EVERY organ fails (I'm talking days/maybe few weeks) -- and, I bet this site will still be up.
I was in treatment with Rachael at Monte a few years ago. Seeing this and knowing her, this girls got fight!! Rachael and Rod I do not know what your beliefs are, but The Lord redeemed me from this horrible disease and I have been in full recovery for about 2 years! Watching this made me cry, bc I have watched and seen a motivated Rachael on her walk in recovery!! Sweet girl I wish I had funds, but I have something that is much better than money and that is Jesus. I will be in prayer for whatever He wants and if that is funds, I pray they come pouring in!! It may be hard to believe how amazing of a person you are! I know you a little outside of this disease and have seen your heart!! Please be strong and I support you 100%.
You've met your goal and yet you are still collecting donations and have not made single update to give thanks to the thousands of people that dug into their own pockets to fix your mistake. Developing an ED is not a choice, but refusing treatment until the point that you weigh less than 50 pounds IS a choice, and as an adult, you should not only know better, but should not be putting your hand out and expecting other people to come to the rescue and clean up this mess you created for yourself.
It's time to stop donating people. I'm not cold and unfeeling, but they have reached their goal. They have gotten national attention, and have offers from multiple hospitals. They have not given a single thanks to anyone for their support or prayers. I send my prayers to Rachel for the help she needs, but the donations need to stop- as they being collected unnecessarily and greedily at this point. It's always sad when someone takes advantage of a situation- it may not have been the goal in the beginning, but it IS what it has become.
This DEFINATELY sounds like a financial scam to me. My husband is an M.D. and says that she has many options for free healthcare. You're money is most likely going towards a greedy person or persons that are out to rip you off. If you'd like a list of phone numbers where your "wife" would be immediately accepted as an inpatient, please e-mail me at: firstname.lastname@example.org. These people have most likely conned MUCH more money out of people than they're stating. If NO hospital will accept her, why do you need money? I am in no way, shape or form belittling this disease, I'm just attempting to make generous, hard working people realize that they're going to "GoFundMe" someone drugs, a new car, gambling money or support a lazy person. Organized crime is even scamming people through charities such as "GoFundMe" as it's an easy way to make a LOT of money by tugging on the heart strings of those who REALLY want to help someone in need.
I must say I am baffled. My lawsuit, Harlick v. Blue Shield, changed California law so that insurance companies are now required to cover residential and inpatient treatment for eating disorders. If Rachael does not have private insurance, there are programs that accept Medicare-Med-Cal. She could also simply show up at an ER and they could not, by law, turn her away... And, as other commentators have pointed out - why did this woman not take charge of getting better before she reached this state? In addition, by posting videos of herself in this state - showing as much cleavage as possible, she is only feeding the disease, sensationalizing it, and increasing stigma as well as stereotypes re: women with long-term anorexia - most of whom never get anywhere near such a low weight. I can't help but wonder if there is a selfish aim underlying this. A desire to get on TV, for example... Also, girls and women with milder forms of AN will see this video and think, "I'm not a good anorexic... I need to try harder..." There are so many things wrong with the way you are going about this and the way the media is covering it. Again, as a California resident - you have PARITY in coverage for your illness - and have for the last four years - due to my lawsuit. What is going on here?
I suffer from Anorexia as well have been in and out of treatment. I think what you are doing is HORRIBLE! Your pics, your videos, asking for money. You have the capability of getting financial aid at the Acute Center, I know I checked into it. You've had the opportunity to get better prior to getting this low of wt. Why the hell did anyone in your family not put you into a medical facility? This angers me. I'm fighting for my life everyday with this disease. And saying you don't make the minimum weight limit is BS and misleading! And the pics and video's are triggering for those with ED's
For those who "don't understand why the money is needed" - Have you ever had someone who is severely ill before? I'm guessing not. Rachael cannot go to this facility alone, she needs her husband close by. Accommodation for her husband costs money. Her husband will have to eat, and live. Whilst having no income. This too, costs money. Travel to and from the facility, costs money. Extra therapies cost money. Long term rehabilitation costs money. Even whilst they are away from home - there are still the rent/mortgage/utility bills to pay at home.... so their costs have almost doubled, whilst their income has gone to zero. My heart goes out to you Rachael, I truly hope that this can all be pulled together in time. Rod, you are a wonderful man. Being a carer for someone so ill is heartbreaking.
I'm not understanding What this money is for? She should be eligible for Medicaid and all facilities have financial assistance. I'm also not understanding why her husband or family let her condition get so bad before making her get help. Not trying to be negative but when are people going to start taking responsibility for themselves instead of asking for handouts.
I dont understand what the money is for. No one can help her. She certainly didn't want help and couldn't get better at 50 pounds, at 60 pounds or even 70. She wont be around much longer whether you get a bunch of money or not. I mean there's therapy sure, but if she hasn't improved by this point, she wont. I have never heard of someone going this low in weight. All organs must be on the brink of shutting down. The heart muscle can't go on much longer. If you remember Karen Carpenter, everyone finally thought she was getting better, but she was still hiding her process of eliminating food. The heart can only take so much. IF, and that's a strong IF, by some chance there was a complete turnaround, I do not believe this woman would live much longer anyways. The body is too damaged. The gofundme is up well over $156,000. Is that for rent? Are you in debt because of your wifes illness? Medical expences? What? The husband says "she will be seeing her final days if we dont take action". Sir, she already IS seeing her final days. There's not much more you can do. She has to make the choice to get better, but I'll bet any doctor will tell you there's not much of a chance she can resume a normal life if she were to gain weight. It's way past just gaining weight. I'm not sure why the public has to pay for this. She's going to die. Soon. Sounds mean? Maybe, but you are getting a ton of money for free.
They have financial assistance, at this Facility that someone posted she needed to go too, so I do not understand why she has to wait for funding? Time is of the essence. The Page says; Enrollment Services at Denver HealthCharity Care & Financial Assistance for Patients Financial challenges or a lack of health insurance should not prevent you from receiving care. Here at Denver Health, we are here to provide you with all of the resources to understand your options for receiving care and we will guide you through the process. http://www.denverhealth.org/for-patients-and-visitors/billing-and-insurance/charity-care-and-financial-assistance
I love you both more than you can know. I've been struggling so hard with this, "your road to recovery".. I've struggled hard and prayed so long. I love you but I have loved you Rachael for so many years. I've known your Family since you were in 2nd grade. Ranna has been a friend to me for 30 plus years. I have loved your Family that many years. But I find myself in turmoil as there has been so many tears and so much pain for years for you to get better. I was there when we thought you were almost gone several times now in the last few years. I've cried, I've had everyone pray and now we are here again. Please everyone who doesn't understand, please dont comment. Rachael I want you to live and be happy but I am not seeing this here. When Rod put up his post to save you it felt like a live or die situation. I'm not seeing you in treatment. I'm not seeing you in Colorado. What I am seeing is videos for you to go on the Dr. Phil show. What is that? I love you so much but help me understand..
Wow no "thank you"s at all? No updates? I did read an article saying she is NOT going to treatment even after all the donations because she believes it "is not safe"...... Wow, just wow...... http://ktla.com/2015/05/23/at-40-pounds-o-c-woman-battling-anorexia-receives-help-after-desperate-plea-on-social-media/
My sister passed away on May 30, 2014 from complications due to anorexia nervosa. She was 5'2" and 73 pounds when she died. She was in the hospital for 15 days. We found her unconscious on May 15, and she barely woke up after that. She suffered almost fatal ammonia levels from her liver, as well as liver, kidney, and heart failure. The night before she was taken off the ventilator, she had a massive stroke. Now, explain to me again how Rachel is 30 pounds lighter and 5 inches taller, and only has "at home care." Explain to me how you're going to say in your initial plea that you are going to take her to Denver, when it is stated in this article (http://ktla.com/2015/05/23/at-40-pounds-o-c-woman-battling-anorexia-receives-help-after-desperate-plea-on-social-media/) that she has an ED doctor who is going to "bring the hospital to her." Explain to me how she even has a doctor when the initial plea stated that no healthcare worker would see her because of a liability. Explain to me how she has suffered multiple organ failure and is not currently in a hospital on life support. Explain to me how she SURVIVED multiple organ failure if a hospital refuses to treat her. And finally (though I probably haven't hit everything), explain to me how you and your wife are exploiting her illness for financial gain. I hate to say this, because I don't want to see anyone die, but there is little to no chance she will ever survive. People, if you want to do some good for anorexia nervosa, you need to donate to the National Eating Disorder Association (NEDA), a place that not only helps families, but also educates about these diseases. Please do not give these people anymore of your money or time. If she was on death's doorstep when this fundraiser started 24 days ago, then she is just waiting for death to answer the door now. I'm sorry for your impending loss, but you are doing nothing more than increasing stigma and triggering millions of others that currently have this disease.
Even if she gets everything paid for by the facility that still doesn't mean she doesn't need help....her husband isn't working they are going to need money for mortgage, bills, counseling after she's released, purchasing insurance to cover medical bills, etc. I have not personally struggled with anexoria but I have been a recovering drug addict for 7 years now and I know all about addiction to things, receptors in your brain changing forever, diseases, etc. this is real she cannot help it!! If you don't understand it then research it, if you don't like the picture she used then don't look at it! That picture truly shows just exactly how much help she needs!!