Kaleb's Medical Fund

$4,160 of $50,000 goal

Raised by 87 people in 39 months
My name is Janelle until recently my life have changed drastically because my 8 year old son was diagnosed with a very rare brain disease called Adrenoleukodystrophy (ALD). On the day of diagnosis was the very first day I have ever heard of this disease. Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18 000 people. It most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain's neurons -- the nerve cells that allow us to think and to control our muscles. The most devastating form of ALD appears in childhood, generally between the ages of four and ten years old. Normal, healthy boys suddenly begin to regress. At first, they simply show behavioral problems, such as withdrawal or difficulty concentrating. Gradually, as the disease ravages their brain, their symptoms grow worse, including blindness and deafness, seizures, loss of muscle control, and progressive dementia. This relentless downward spiral leads to either death or permanent disability, usually within 2 to 5 years from diagnosis.
 At first I was in denial and refuse to believe that this could happen to my beautiful boy, my heart is broken in a way that it could never be mended. Right away I started doing research and found that there are treatments that can slow the progression of the disease however it cannot be cured as of yet (I HAVE HOPE) there are clinical trials going on however because it is a very rare disease funding to study this disease is very limited. I now find myself in a tough situation as medical treatment for my son is very expensive and therefore I am asking for help to possibly save my little boy's life just a bit longer in hopes that a cure can be found. He is in need of a BONE MARROW TRANSPLANT  as he is borderline for any help, because once the disease progresses to a certain extent nothing else can be done, he needs this among other medical needs. All I am asking for is a bit more time with my boy. I will be forever gratefull and thankfull to everyone for there help and support. Thank You and God Bless!!!
+ Read More
Enjoying his time as sheriff for the day.
+ Read More
He is so strong and resilient, as a mother all the pain I feel can't compare to what he has to face and endure. I pray for strength, for blessings and for healing most of all for him and for my entire family. I also pray for all the other families that are faced with this journey we now face. Through God all things are possible. Thank you to all who are beside us who have supported us and who continue to do so may god bless you all.
Kaleb just woke up from anesthesia all he wanted was mommy.
+ Read More
Read a Previous Update
Greg Slocum
37 months ago

Hi Janelle, look up holistic cures, especially alkaline diets to help raise his pH levels. Its worth a try!

+ Read More

$4,160 of $50,000 goal

Raised by 87 people in 39 months
Created January 20, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
SF
$25
Suzan Fausset
38 months ago
1
1

God Bless that precious little boy and his family, Pray for a miracle.

TW
$200
Trixie Warner
38 months ago

To the family, I am praying for a miracle. May God be with you all. Blessings to you. Trust God. Trixie

TB
$10
Tiah Biah
38 months ago

My hopes and thoughts are with little Kaleb and you Janelle. May you both and your family find the resources you need to help prolong his chances. Wishing you the best. Be greatly blessed.

$20
Anonymous
38 months ago
$5
Anonymous
38 months ago
$50
Anonymous
38 months ago
$20
Anonymous
38 months ago
Greg Slocum
37 months ago

Hi Janelle, look up holistic cures, especially alkaline diets to help raise his pH levels. Its worth a try!

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.