Jason's Treatment & Medical Debt

$10,285 of $20,000 goal

Raised by 190 people in 33 months

Please help to save Jason Kinney’s eyes!


On his birthday, September 9th, 2015, Jason began a 21-day course of IV antibiotics via a PICC line in an attempt to reduce the size of an undiagnosed lung mass.


As a result, on October 3rd, 2015, Jason was rushed to the emergency room when a rash began to cover his entire body.
  He was diagnosed with Stephen Johnson’s Syndrome and was rushed by ambulance to an ICU Burn Unit in Tampa.  He spent 10 days there while the skin from his entire body burned from the inside out and continued to slough off.


The Steven Johnson’s Syndrome has left Jason’s eyes severely damaged and his only chance to save his eyes is to have specialty lenses called “Prose Lenses” created by the Bascom Palmer Eye Institute of Boston and Miami .  This will require the family to travel to Miami so that Jason can see the corneal specialist 3 times a day for a week while the lenses are customized and overnighted back and forth daily from Boston.



Needless to say, it has been a rough year, and although Jason’s medical expenses have far exceeded his out-of-pocket maximum and the lenses are expected to be covered by insurance, the medical bills leading up to this point have become burdensome and have left the family struggling to afford the upcoming full week’s travel to and stay in Miami.


The donated funds will allow the family to make the flight to and from Miami, hotel arrangements around the corner from the institute where Jason will need to go 3 times daily, the rental car to make the commute as well as the other expenses associated with the trip.

Thank you in advance for your support of Steven Johnson’s Syndrome and saving Jason’s eyes.  Our family is forever grateful.



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Steven Johnson Syndrome has once again turned my body against itself. My Neurologist told me & Randi this week that I have to have an extensive test done because she believes that I have Narcolepsy with Cataplexies. I am so tired of being kicked when I am already down! And this campaign seems worthless and we get more hurtful comments than we do good & donations. People can be so cruel. If they swapped places with us they would be damn sorry! This photo is how it started before covering my entire body and having my skin slough off. I wish I would have died.
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Jason had to have another CT of his chest as he has had pneumonia for over a month despite finishing two rounds of antibiotics and a round of steroids. We followed up with his Pulmonologist yesterday. Jason’s right lung mass is still there, but he has something “brewing” in his left lung. The doctors are very concerned about it, so they have put him on a strong dose of antibiotics for the next 30 days! And a side note, Jason’s Primary Internal Medicine doctor called with concerns regarding Jason’s recent labs and ordered a STAT ultrasound of his liver, which he had done today. It’s always something, but we take it one day at a time, that’s all we can do!

Family & Friends, as you know, Jason’s medical treatment on top of our normal living expenses (mortgage, power, insurance, etc.) has snowballed and we really would like to flip ourselves out of the red and into the green. Jason stresses about this constantly and that doesn’t help him at all, especially while not having an immune system and being weak all of the time. He blames our debt problem in losing his job and becoming disabled which was completely out of his control.

So we ask all of you to PLEASE DONATE IF YOU CAN & also SHARE AS MUCH AS YOU CAN SO THAT WE CAN SPREAD THE WORD OF JASON’S CAMPAIGN & HIS INCREDIBLE MEDICAL JOURNEY!

Thank you all in advance!
With Love & Appreciation,
Randi & Jason Kinney

“Be kind, because everyone you meet is fighting a battle you know nothing about.” - Wendy Mass
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Steven Johnson Syndrome stole my life. How many more of these voicemails will I get “The doctor would like you to call ASAP regarding your lab work!” Randi handles all of the call now just because I can’t deal with it anymore! Our campaign has been dormant so we actually hired a firm to try to spread the word so that we can meet or exceed our goal. Things are so tough for us financially that we are barely making it. We desperately need your donations and your shares! PLEASE HELP US TO REACH OUR GOAL AND SPREAD THE WORD ABOUT OUR CAMPAIGN! WE DESPERATELY NEED YOUR HELP!

With and Appreciation,
Jason & Randi Kinney

“Be kind, because everyone you meet is fighting a battle you know nothing about.” - Wendy Mass

*Please note that this is an automated message from GoFundMe. Updates are shared with all donors, supporters, and followers. If you have received in error, please disregard.*
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Dear, Friends & Family. Thank you for your continued support in trying to get our campaign off of the ground again! We desperately could use all the help that we could get because we are completely upside down financially. The costs for Jason’s treatment is astronomical and Randi has an MRI coming up that will be expensive due to our crappy insurance. SO between rolling medical debt, on top of our mortgage and normal monthly bills, we are BARELY making it. That being said, we are praying with all we have for a miracle and die our campaign to take off and that we hit or even exceed our goal! That would be a true blessing. I feel guilty all of the time for losing my salary but Randi reminds me that it was out of my control and not my fault. But you know how it is when something happens and you are the reason that your family is struggling. So I am asking you, PLEASE DONATE (IF YOU ARE ABLE!) AND PLEASE SHARE WITH ALL OF YOUR SOCIAL MEDIA OUTLETS! LIKE I SAID, WE ARE BARELY HOLDING ON AND WE NEED YOUR HELP!! WITH LOVE & APPRECIATION, JASON & RANDI

“Be kind, because everyone you meet is fighting a battle you know nothing about.” - Wendy Mass

*Please note that this is an automated message from GoFundMe. Updates are shared with all donors, supporters, and followers. If you have received in error, please disregard.*
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Read a Previous Update
Tea Rose
32 months ago

My thoughts and prayers are with you. Hang in there!

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$10,285 of $20,000 goal

Raised by 190 people in 33 months
Created February 15, 2016
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$10
Anonymous
1 month ago
$100
Anonymous
2 months ago
$50
Anonymous
2 months ago
AB
$15
Amanda Black
7 months ago

We miss you Jason! Keep kicking butt!

ME
$25
Mary Beth Erskine
8 months ago

I think of you often, Jason, and keep you and your beautiful family in my prayers.

MM
$25
Maureen Moore
8 months ago

My thoughts and prayers are with you in hopes that you will receive the meds, treatment and resources you need!!

$50
Anonymous
14 months ago
Tea Rose
32 months ago

My thoughts and prayers are with you. Hang in there!

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