Jason's Treatment & Medical Debt

$10,410 of $20,000 goal

Raised by 191 people in 40 months

Please help to save Jason Kinney’s eyes!


On his birthday, September 9th, 2015, Jason began a 21-day course of IV antibiotics via a PICC line in an attempt to reduce the size of an undiagnosed lung mass.


As a result, on October 3rd, 2015, Jason was rushed to the emergency room when a rash began to cover his entire body.
  He was diagnosed with Stephen Johnson’s Syndrome and was rushed by ambulance to an ICU Burn Unit in Tampa.  He spent 10 days there while the skin from his entire body burned from the inside out and continued to slough off.


The Steven Johnson’s Syndrome has left Jason’s eyes severely damaged and his only chance to save his eyes is to have specialty lenses called “Prose Lenses” created by the Bascom Palmer Eye Institute of Boston and Miami .  This will require the family to travel to Miami so that Jason can see the corneal specialist 3 times a day for a week while the lenses are customized and overnighted back and forth daily from Boston.



Needless to say, it has been a rough year, and although Jason’s medical expenses have far exceeded his out-of-pocket maximum and the lenses are expected to be covered by insurance, the medical bills leading up to this point have become burdensome and have left the family struggling to afford the upcoming full week’s travel to and stay in Miami.


The donated funds will allow the family to make the flight to and from Miami, hotel arrangements around the corner from the institute where Jason will need to go 3 times daily, the rental car to make the commute as well as the other expenses associated with the trip.

Thank you in advance for your support of Steven Johnson’s Syndrome and saving Jason’s eyes.  Our family is forever grateful.



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Our campaign is going at a slow rate, but we appreciate every little bit of your support as the medical debt continues to climb. Our insurance is not wanting to pay for Jason’s monthly infusions that he needs every month to survive due to a national shortage of his IVIG. There are also a number of medications that are now not covered or if they are, it’s barely, and we have to pay out of pocket. Jason still has his full body neuropathy 24/7 and he seldom gets relief. He has been crippled in bed more often lately. Jason is struggling mentally more than he had been because we lost his Grandmother on Christmas Day. She meant the world to him and due to his heath condition we were unable to travel from FL to CT for her funeral. This is weighing on him heavily which increasing the intensity of his anxiety and depression. So with everything going on, we still need to have our campaign growing because at the end of the day, the creditors do not care what is going on in our personal lives and bills need to be paid. SO, PLEASE DONATE AND SHARE!!
With Love, Randi &
Jason Kinney
Steven Johnson Syndrome Survivor & U.S. Navy Veteran
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[UPDATE 12/28/2018]

We one day hope to find a sponsor to support our GoFundMe campaign for our medical debt & my treatment. Our insurance stopped paying for the IVIG infusions that I need every month to stay alive for the rest of my life. Then Randi hurt her back & has to have an $500 MRI!
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UPDATE: 12/22/2018 Thank you to Diane M. For the most recent donation. We are so ecstatic to have our campaign moving again! Jason will be finally having his infusion on Jan 2nd after going without it for 2 months due to a national shortage and insurance not wanting to cover cost. Then on Jan 4th Jason has to undergo ANOTHER procedure due to gastrointestinal issues. We ask that everyone please share our campaign and Jason’s story with all of your social media circles. All donations are GREATLY APPRECIATED more than you could know during this challenging time. Your support is so important as Jason continues his medical journey and fights to live one day at a time! With Love & Appreciation, The Kinney Family {Photo: Jason’s therapy dog, Charlie, who stays right at Jason’s side}
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Steven Johnson Syndrome has once again turned my body against itself. My Neurologist told me & Randi this week that I have to have an extensive test done because she believes that I have Narcolepsy with Cataplexies. I am so tired of being kicked when I am already down! And this campaign seems worthless and we get more hurtful comments than we do good & donations. People can be so cruel. If they swapped places with us they would be damn sorry! This photo is how it started before covering my entire body and having my skin slough off. I wish I would have died.
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Read a Previous Update
Tea Rose
39 months ago

My thoughts and prayers are with you. Hang in there!

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$10,410 of $20,000 goal

Raised by 191 people in 40 months
Created February 15, 2016
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CF
$25
Christopher FUNKO
3 months ago
DM
$100
Diane Miller
5 months ago
$10
Anonymous
8 months ago
$100
Anonymous
8 months ago
JS
$20
Jamie Shearer
9 months ago
$50
Anonymous
9 months ago
MD
$10
Moe De
12 months ago
AB
$15
Amanda Black
14 months ago

We miss you Jason! Keep kicking butt!

ME
$25
Mary Beth Erskine
15 months ago

I think of you often, Jason, and keep you and your beautiful family in my prayers.

MM
$25
Maureen Moore
15 months ago

My thoughts and prayers are with you in hopes that you will receive the meds, treatment and resources you need!!

Tea Rose
39 months ago

My thoughts and prayers are with you. Hang in there!

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