Jason's Treatment & Medical Debt

$10,275 of $20,000 goal

Raised by 189 people in 31 months

Please help to save Jason Kinney’s eyes!


On his birthday, September 9th, 2015, Jason began a 21-day course of IV antibiotics via a PICC line in an attempt to reduce the size of an undiagnosed lung mass.


As a result, on October 3rd, 2015, Jason was rushed to the emergency room when a rash began to cover his entire body.
  He was diagnosed with Stephen Johnson’s Syndrome and was rushed by ambulance to an ICU Burn Unit in Tampa.  He spent 10 days there while the skin from his entire body burned from the inside out and continued to slough off.


The Steven Johnson’s Syndrome has left Jason’s eyes severely damaged and his only chance to save his eyes is to have specialty lenses called “Prose Lenses” created by the Bascom Palmer Eye Institute of Boston and Miami .  This will require the family to travel to Miami so that Jason can see the corneal specialist 3 times a day for a week while the lenses are customized and overnighted back and forth daily from Boston.



Needless to say, it has been a rough year, and although Jason’s medical expenses have far exceeded his out-of-pocket maximum and the lenses are expected to be covered by insurance, the medical bills leading up to this point have become burdensome and have left the family struggling to afford the upcoming full week’s travel to and stay in Miami.


The donated funds will allow the family to make the flight to and from Miami, hotel arrangements around the corner from the institute where Jason will need to go 3 times daily, the rental car to make the commute as well as the other expenses associated with the trip.

Thank you in advance for your support of Steven Johnson’s Syndrome and saving Jason’s eyes.  Our family is forever grateful.



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Steven Johnson Syndrome stole my life. How many more of these voicemails will I get “The doctor would like you to call ASAP regarding your lab work!” Randi handles all of the call now just because I can’t deal with it anymore! Our campaign has been dormant so we actually hired a firm to try to spread the word so that we can meet or exceed our goal. Things are so tough for us financially that we are barely making it. We desperately need your donations and your shares! PLEASE HELP US TO REACH OUR GOAL AND SPREAD THE WORD ABOUT OUR CAMPAIGN! WE DESPERATELY NEED YOUR HELP!

With and Appreciation,
Jason & Randi Kinney

“Be kind, because everyone you meet is fighting a battle you know nothing about.” - Wendy Mass

*Please note that this is an automated message from GoFundMe. Updates are shared with all donors, supporters, and followers. If you have received in error, please disregard.*
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Dear, Friends & Family. Thank you for your continued support in trying to get our campaign off of the ground again! We desperately could use all the help that we could get because we are completely upside down financially. The costs for Jason’s treatment is astronomical and Randi has an MRI coming up that will be expensive due to our crappy insurance. SO between rolling medical debt, on top of our mortgage and normal monthly bills, we are BARELY making it. That being said, we are praying with all we have for a miracle and die our campaign to take off and that we hit or even exceed our goal! That would be a true blessing. I feel guilty all of the time for losing my salary but Randi reminds me that it was out of my control and not my fault. But you know how it is when something happens and you are the reason that your family is struggling. So I am asking you, PLEASE DONATE (IF YOU ARE ABLE!) AND PLEASE SHARE WITH ALL OF YOUR SOCIAL MEDIA OUTLETS! LIKE I SAID, WE ARE BARELY HOLDING ON AND WE NEED YOUR HELP!! WITH LOVE & APPRECIATION, JASON & RANDI

“Be kind, because everyone you meet is fighting a battle you know nothing about.” - Wendy Mass

*Please note that this is an automated message from GoFundMe. Updates are shared with all donors, supporters, and followers. If you have received in error, please disregard.*
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‪CALLING ALL FRIENDS & FAMILY! An executive from King Koil finally reached out to us after MONTHS of contacting them nearly daily! They are making it possible for Randi to meet with the specialist (hopefully this week) who was present when the “Harmony” mattress was made & he will be working with her to EITHER FIND OR CREATE a mattress like the elusive “HARMONY” that I have been searching nonstop for to help with my dreaded neuropathy!!

Randi & I slept on the King Koil Spine Support “Harmony” and it was the most comfort that my body has felt since being released from the ICU Burn Unit after surviving Steven Johnson Syndrome. I DESPERATELY NEED THIS MATTRESS! Words cannot explain what it would do (positively) for my quality of life. I actually cried on the day we left because I could not take the mattress home with me. We DID make sure to take photos of the tag and make it our life’s mission to own one. NOW THE OPPORTUNITY IS IN OUR FACE AND FINANCES ARE THE OBLY THING STANDING IN OUR WAY!

THIS IS A ONCE IN A LIFETIME OPPORTUNITY!!

GETTING THIS MATTRESS WILL DRASTICALLY IMPROVE MY QUALITY OF LIFE! UNFORTUNATELY, RANDI AND I WILL HAVE TO PAY AT LEAST THE WHOLESALE PRICE, WHICH WE HAVE NO IDEA WHAT IT MAY BE, ESPECIALLY IF THEY END UP BUILDING A SPECIAL MATTRESS FOR US!! WE ARE ALREADY UPSIDE DOWN FINANCIALLY AND WERE DENIED MY CBD PAIN OIL FOR THE ENTIRE QUARTER JUST BECAUSE RANDI MADE 2 TYPOS ON THE QUARTERLY APPLICATION BUT THAT IS A WHOLE NOTHER STORY!! WE ARE IN A FINANCIAL NIGHTMARE AND WE NEED YOUR HELP! PLEASE, WE NEED YOUR HELP MAKING THIS DREAM COME TRUE! THIS IS SO IMPORTANT TO US! PLEASE, DONATE AND SHARE IF YOU CAN! KING KOIL suggested that we turn to social media and trying to jumpstart this campaign again because they want this to happen as well! SO, PLEASE, HELP US MAKE THIS DREAM COME TRUE!! LOVE, JASON & RANDI ❤️

“Be kind, because everyone you meet is fighting a battle you know nothing about.” - Wendy Mass

*Please note that this is an automated message from GoFundMe. Updates are shared with all donors, supporters, and followers. If you have received in error, please disregard.*
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I had to have ANOTHER STAT surgery on my back yesterday 7/25/2018 with less than 24 hour notice! Between my nerve endings being damaged from when the Steven Johnson Syndrome burned my skin completely off from head to toe, and my recent back surgery, I am in complete agony! Laying on our $1500 mattress intensifies my pain! When I recently slept on the King Koil “Harmony” for a week, it was the BEST SLEEP AND MOST RELIEF I have had since being released from the ICU Burn Unit. I definitely NEED to find a way to obtain the King Koil “Harmony” mattress or if they are not manufacturing still, then the closest one to it!! We won’t be able to make this happen without your help! Since I am disabled now, our income has been cut in half and there is no way that we can afford the mattress that I DESPERATELY NEED! PLEASE HELP!!!! My QUALITY OF LIFE and my LIFE PERIOD, DEPENDS on it! We REALLY need your help!!! PLEASE DONTATE & SHARE of you can!! Thank you all in advance!!

With Love,
Jason & Randi Kinney

“Be kind, for everyone you meet is fighting a battle you know nothing about.” - Wendy Mass

*Please note that this is an automated message from GoFundMe. Updates are shared with all donors, supporters, and followers. If you have received in error, please disregard.*
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Read a Previous Update
Tea Rose
30 months ago

My thoughts and prayers are with you. Hang in there!

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$10,275 of $20,000 goal

Raised by 189 people in 31 months
Created February 15, 2016
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$100
Anonymous
2 days ago
$50
Anonymous
29 days ago
AB
$15
Amanda Black
6 months ago

We miss you Jason! Keep kicking butt!

ME
$25
Mary Beth Erskine
6 months ago

I think of you often, Jason, and keep you and your beautiful family in my prayers.

MM
$25
Maureen Moore
6 months ago

My thoughts and prayers are with you in hopes that you will receive the meds, treatment and resources you need!!

$50
Anonymous
13 months ago
$100
Anonymous
24 months ago
1
1
Tea Rose
30 months ago

My thoughts and prayers are with you. Hang in there!

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