Salt Air Jam For Cystic Fibrosis

$3,175 of $5,000 goal

Raised by 10 people in 16 months
Jeff Gilder
on behalf of Salt Air Foundation
 NORTH MYRTLE BEACH, SC
Salt Air Foundation, a 501(c)3 non-profit annually hosts Salt Air Jam, a music festival / fundraiser to raise money to offset medical expenses for people living with Cystic Fibrosis (CF). 
100% of net proceeds from concert tickets and donations will go into the charity fund at Salt Air Foundation to be used  for patient assistance and research.
Funds are needed immediatey to meet  our May 19th Salt Air Jam and May 20th Salt Air Scramble goals.
Here is an example of costs and challenges for a CF patients...My 7 year old grandson, Eli:
Meds:
Orkambi - $20321.55 (New CF drug that reverses CF at cellular level) not a cure
ZenPep - $2639.99 (Enzymes takes with every meal)
Qvar - $254.99 (Asthma/Allergy inhaler)
Ventolin - $71.99 (Asthm inhaler)
Miralax - $48.99 (Constipation)
Azithromycin - $71.99 (Antibiotic Bacteria in lungs forever)
Nexium - $497.99 (Acid Reflux)
Singulair - $132.99 (Asthma)
Pulmozyme - $3349.08 (Salt Air)
Flonase - $41.50 ( Allergies)
Allegra - $27.39 (Allergies)
Multivitamin - $31.86
Pediasure - $150

TOTAL - $27,640.31 per month
RespirTech Airway Clearance System - $15000

Eli takes around 35 pills everday.
(2) 30 minute nebulizer treatments with pulmozyme(salt air) daily
(2) 30 Airway Clearance treatments(Vest Therapy)
He weighs 50lbs but must eat over 2000 calories daily(same as adult)
+ Read More
Here is an example of patient needs. This is a normal month for my grandson, Eli.
Orkambi - $20321.55 (New CF drug that reverses CF at cellular level) not a cure
ZenPep - $2639.99 (Enzymes takes with every meal)
Qvar - $254.99 (Asthma/Allergy inhaler)
Ventolin - $71.99 (Asthm inhaler)
Miralax - $48.99 (Constipation)
Azithromycin - $71.99 (Antibiotic Bacteria in lungs forever)
Nexium - $497.99 (Acid Reflux)
Singulair - $132.99 (Asthma)
Pulmozyme - $3349.08 (Salt Air)
Flonase - $41.50 ( Allergies)
Allegra - $27.39 (Allergies)
Multivitamin - $31.86
Pediasure - $150


TOTAL - $27,640.31 per month



He takes around 35 pills everday.
(2) 30 minute nebulizer treatments with pulmozyme(salt air) daily
(2) 30 Airway Clearance treatments(Vest Therapy) RespirTech Airway Clearance System - $15000
He weighs 50lbs but must eat over 2000 calories daily(same as adult)
+ Read More
Be the first to leave a comment on this campaign.

$3,175 of $5,000 goal

Raised by 10 people in 16 months
Created April 12, 2017
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
MG
$50
Mike Gaenzler
15 months ago

Good luck to Matty and Sicily!!

ML
$50
Mitch & Ewa Laurance
15 months ago
1
1

With you all.....M&E

$50
Anonymous
16 months ago
1
1
DH
$100
Don Helmig
16 months ago
1
1

This is a noble endeavor

$100
Anonymous
16 months ago
1
1
Be the first to leave a comment on this campaign.
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.