Rylee's Road to Recovery

$69,431 of $70,000 goal

Raised by 1,256 people in 48 months
Krystin Mack-Ledger
on behalf of Danielle Totman
 TORRANCE, CA
4590962_1431732580.9869_funddescription.

4590962_1431898229.3785_app.png

+ Read More
Jan 27th-This will be my last update on Rylee because tomorrow morning at 8am Danielle, Kelli, and Rylee will be flying to Texas. The long awaited move has come. Due to her strict diet and that she can't be around a bunch of germs, she can't fly commercial air. So she will be flying on a private 7-passenger plane which donates their services. It's called Angel Flight.
For those who don't know, Rylee has had her central line removed, her labs continue to amaze the doctors, and her cute little head is no longer bald. I was told that in the bathtub she can make a very "short but cute mohawk." Her little body did an amazing job recovering. So well, that she was allowed out of isolation at CHLA. Apparently that NEVER happens! Most kids that go to transplant are inpatient for months. Rylee knocked it out of the park in only 45 days! It is so exciting to say that Rylee isn't sick anymore! ***This doesn't mean Danielle isn't going to hassle you if you don't use your antibacterial gel.
+ Read More
The big day finally came! She got to leave the hospital for the last time. No more hospital beds. No more vital signs in the middle of the night and now Kelli and Ry can be sisters again. Giggling and playing.
The nurses made a poster for her
+ Read More
I apologize for not updating in a while but there wasn't much to share. But now we are excited because there are words of DISCHARGE! Yes, earlier than expected too. Rylee is doing amazing. She has been weened off most IV MEDS. she is finally eating. They are allowing her out of her room to ride her scooter and just today she got a special gift from Make a Wish...an American Girl Doll. The only hiccup is her magnesium level. They are still having to replace it with IV mag. They are hoping orals will work because then her central line can be removed!! Otherwise she will be home with IV mag and her line.
Her little wish came true!
+ Read More
Oct 13th. Rylee had amazed all the CHLA staff w/ her surprising amount of energy and that fact that she still had any interest in food. Danielle was taking it one day at a time that no side effects from the chemo and transplant would hit. Then they did. Little Rylee now has mucusitis, which is the shedding of the lining of her throat and tummy. It causes a lot of pain. She is on round-the-clock morphine and TPN for nutrition.
There have been fevers, which are not uncommon, but all blood cultures have been negative. (That's good!) Her white blood cell count over the last 3 days have started to go up which is a sign that new healthy cells are growing. It is taking a toll on her little body. She is sleeping a lot now and can't talk much b/c of her throat hurting. They are monitoring exactly the fluids in and out to make sure that she peeing all the chemo out of her system and that she doesn't overload her heart w/ all the IV bags. it is a lot of fluid going in. keep them in your prayers.
Rylee naps w/ her 6 double IV pumps
The pumpkin decorating princess
+ Read More
Read a Previous Update
Steve Wells
48 months ago
7
7

Thank you from the bottom of my heart for all the support. I got to sit Rylee on my lap today-- pure Joy!

+ Read More
Steve Wells
48 months ago
4
4

Anonymous and all, your hearts are an open book before our creator and I am confident He will use your gifts in a mighty way. Thank you.

+ Read More
Nicole Wells
48 months ago
3
3

Everyone's generosity is so overwhelming! Such a blessing! Thank you!

+ Read More
Becki Wells
48 months ago
3
3

I am humbled by the outpouring of love and support for our family. God sees our tears and hears our prayers .

+ Read More
Shannon Ross
48 months ago
1
1

Get better Rylee!! We are all praying for you!!

+ Read More
Sophie Lily
43 months ago

help john fight cancer http://tinyurl.com/qjlhaft

+ Read More
Eleanor Mateo
46 months ago

So so happy you know she is doing better. I been thinking about her all week thank you for updates. Get better Rylee loves and kiss's

+ Read More
Sharon Kennedy
47 months ago

Would the storm an family be interested in a visit from my friend who just went through a bone marrow transplant? and is happy to visit with Rylee.

+ Read More
Eleanor Mateo
47 months ago

I'll be your donnor in a heart beat. Feel better pretty girl. God is always with you.

+ Read More
Eleanor Mateo
48 months ago

Get better pretty smile. I will be praying for you. To come home with mommy.

+ Read More
Christi Teachenor
48 months ago

The girls and I are all praying for you. We know you will make it thru this even stronger.

+ Read More

$69,431 of $70,000 goal

Raised by 1,256 people in 48 months
Created May 15, 2015
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$50
Weston Luke
38 months ago (Monthly Donation)
$25
Anonymous
39 months ago (Monthly Donation)
$50
Weston Luke
39 months ago (Monthly Donation)
$300
Anonymous
40 months ago
$25
Anonymous
40 months ago (Monthly Donation)
$50
Weston Luke
40 months ago (Monthly Donation)
$100
Anonymous
41 months ago
$25
Anonymous
41 months ago (Monthly Donation)
$50
Weston Luke
41 months ago (Monthly Donation)
KT
$30
kenric toliver
42 months ago
Steve Wells
48 months ago
7
7

Thank you from the bottom of my heart for all the support. I got to sit Rylee on my lap today-- pure Joy!

+ Read More
Steve Wells
48 months ago
4
4

Anonymous and all, your hearts are an open book before our creator and I am confident He will use your gifts in a mighty way. Thank you.

+ Read More
Nicole Wells
48 months ago
3
3

Everyone's generosity is so overwhelming! Such a blessing! Thank you!

+ Read More
Becki Wells
48 months ago
3
3

I am humbled by the outpouring of love and support for our family. God sees our tears and hears our prayers .

+ Read More
Shannon Ross
48 months ago
1
1

Get better Rylee!! We are all praying for you!!

+ Read More
Sophie Lily
43 months ago

help john fight cancer http://tinyurl.com/qjlhaft

+ Read More
Eleanor Mateo
46 months ago

So so happy you know she is doing better. I been thinking about her all week thank you for updates. Get better Rylee loves and kiss's

+ Read More
Sharon Kennedy
47 months ago

Would the storm an family be interested in a visit from my friend who just went through a bone marrow transplant? and is happy to visit with Rylee.

+ Read More
Eleanor Mateo
47 months ago

I'll be your donnor in a heart beat. Feel better pretty girl. God is always with you.

+ Read More
Eleanor Mateo
48 months ago

Get better pretty smile. I will be praying for you. To come home with mommy.

+ Read More
Christi Teachenor
48 months ago

The girls and I are all praying for you. We know you will make it thru this even stronger.

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.