Rylee's Road to Recovery
For those who don't know, Rylee has had her central line removed, her labs continue to amaze the doctors, and her cute little head is no longer bald. I was told that in the bathtub she can make a very "short but cute mohawk." Her little body did an amazing job recovering. So well, that she was allowed out of isolation at CHLA. Apparently that NEVER happens! Most kids that go to transplant are inpatient for months. Rylee knocked it out of the park in only 45 days! It is so exciting to say that Rylee isn't sick anymore! ***This doesn't mean Danielle isn't going to hassle you if you don't use your antibacterial gel.
There have been fevers, which are not uncommon, but all blood cultures have been negative. (That's good!) Her white blood cell count over the last 3 days have started to go up which is a sign that new healthy cells are growing. It is taking a toll on her little body. She is sleeping a lot now and can't talk much b/c of her throat hurting. They are monitoring exactly the fluids in and out to make sure that she peeing all the chemo out of her system and that she doesn't overload her heart w/ all the IV bags. it is a lot of fluid going in. keep them in your prayers.
help john fight cancer http://tinyurl.com/qjlhaft
So so happy you know she is doing better. I been thinking about her all week thank you for updates. Get better Rylee loves and kiss's
Would the storm an family be interested in a visit from my friend who just went through a bone marrow transplant? and is happy to visit with Rylee.
I'll be your donnor in a heart beat. Feel better pretty girl. God is always with you.
Get better pretty smile. I will be praying for you. To come home with mommy.
The girls and I are all praying for you. We know you will make it thru this even stronger.