Reach Out For Ruby

Reach Out For Ruby

Beautiful little Ruby McLean, daughter of Mitch and Haley, was diagnosed with Spinal Muscular Atrophy (SMA) in September 2015 when she was 9 months old. SMA is a degenerative genetic condition that affects the nerves that control muscle movement. Ruby cannot walk, crawl, roll or sit independently. Slowly the condition will rob Ruby of the little movement and strength she has, including her ability to breath.

There is no cure.

Care for children with SMA is extensive and equipment is needed to achieve the best quality of life. Unfortunately the equipment can be extremely costly. Your kind donations will be used to help provide Ruby items such as bathing and feeding equipment, therapy, a breathing aid and build a ramp to allow access to and from their home in her wheelchair. Also to purchase a modified van to allow the family to take Ruby and all her equipment as currently they are unable to do so. Having access to this type of equipment will give Ruby the opportunity to experience things that many of us take for granted. 

Since diagnoses there has been an overwhelming and amazing amount of support from friends, family and the community which we will never be able to fully express our thanks for. Mitch and Haley wanted to some how keep everyone up to date with Ruby's progress, equipment that your donations have helped them purchase, ups and downs and everything in between so a Facebook page was created, Ruby McLean - Fighting SMA.

"Ruby is the most amazing cheeky little girl, our little Puddin, and she makes us so incredibly happy. We are grateful for every moment we have with her and fully believe that she has made us and everyone she meets, better, stronger and happier. Our lows may be low, but her cheeky grin makes it all worth it."

SMA affects 1 in 10,000 babies and there is no cure. 

If you are interested in reading more on this condition, visit SMA Australia