Rolling with Marie
THANK YOU VERY MUCH, ALL PRIVATE DONORS. I HAVE TRIED TO WRITE EACH OF YOU INDIVIDUALLY BUT UNLESS YOU DONATED VIA FACEBOOK, THE BUTTON TO LET ME WRITE YOU IS MALFUNCTIONING. ONCE IT WORKS, I WILL WRITE YOU. I AM SO VERY, VERY TOUCHED BY ALL OF YOUR SWEET NOTES AND GENEROSITY.
Marie was paralyzed from the waist down at the tender age of 8- months- old due to physical abuse in her biological mother's home. She suffered over 14 fractures, burns and abrasions but came out of it all with an amazing, fighting spirit. DFCS removed her and placed her in my care as a foster parent. I fell in love with her chunky little face and decided to give her the life she deserved.
Marie was adopted at age one and so began our journey. At age 9, Marie is a funny & intelligent third grade girl. Like many girls, she loves animals, art and video games and she has a big, loving family. But unlike most children her age, she requires 24/7 medical oversight.
Marie needs a specialized wheelchair that is not covered by her health insurance: the Perimobil C400 VS Junior Stand Up Wheelchair. Also, she has been accepted into the Frazier Center Rehab in Kentucky for a trial study to help paralyzed persons. We are likely to make a number of trips up there to take advantage of their cutting edge program.
Marie used to always say that when she gets cured, she's going to throw a huge party. And boy we are all wishing for that day. And in the meantime, our goal is to keep her body in as best shape as possible so that the day there is a cure , Marie will be strong enough to stand up and walk. That's our dream.
She is speeding all over the house and even drove it into a restaurant without knocking over anything.
Thank you all for the help. Our goal has been reached.
Check out Marie's television interview.
Posted by Michele Surprenant
She has four weeks ahead of summer camps and then she's getting back surgery on June 22.
Thank you everyone for all your help. I've found a dealer (Mobility 4 Kids) that offers stand-up pediatric wheelchairs at a discounted price so I am working now on arranging to get her a new wheelchair. We'll post photos once she gets it.
She wants to use the standing wheelchair to reach the kitchen counter tops and "cook." Yikes....
I am so impressed and moved by your story! Marie is obviously a fighter, and she is so very fortunate to have been placed in your loving care, and then adopted by you! People like you Michelle restore my faith in humanity, especially in the face of such abject brutality. It is an honor for me to be able to donate to help Marie. I wish you both a wonderful life!
Hi Marie and Michele, I just read your story on ABC and I felt compelled to write and tell you that I have a SCI too. I was in a car accident when I was 6. I needed rods for scoliosis too. Sometimes that happens to kids with SCI when they start growing. When I was your age, I would have loved to know that there were other people with disabilities like mine, so let me tell you that I have a very full and happy life with kids of my own (and 2 dogs - one that also snores!); I will mark 39 years of living with a SCI this year. The standing wheelchair sounds great - weight-bearing exercise is excellent! :) Best of luck to you!
Contact your local Shriner's group. My parent's are involved with the Shrine and their chapter raises money every year for their wheelchair fund. Best of luck to you.
Heather, Wow, I'm so thrilled to hear from you. I always worry about her future and we have never met anyone who was injured so young like you and Marie. She read your message and asked me about you and was surprised you had rods too. Please 'friend" me on Facebook so that we can keep in touch. It's inspiring to see how good your life is.. with kids and pups. Let's be in touch.