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Roll for Rob Round 2

$23,443 of $30,000 goal

Raised by 326 people in 14 months
Created July 17, 2017
Hello from the Pontes Family! We are excited to be continuing our journey in Rob’s ALS treatment. He will soon undergo an experimental treatment and we are so hopeful once again.  As you may know, in the last year Rob has been living at a rehab hospital in New Bedford, MA. Insurance has decided to stop paying for him to be there. Medicaid has not been approved, however, Medicare has picked up a few odds and ends for his stay there. Rob still has outstanding medical bills in the thousands of dollars while he waits for his Medicaid coverage and this treatment is not covered by insurance.

Here are a few updates on his progression from this devil of a disease: We are delighted that Rob can now communicate better with the help of technology donated to him, but his speech is slurred now and it’s hard to communicate the “old-fashioned way”. Hard is an understatement. He now types with his eyes, yes, his eyes. Rob loves going outside in the sun when he can, in his wheel chair. Most people ask what he can do now. We say he can’t do too much. He can’t walk, he can’t move his arms, legs, fingers, hug or squeeze his kids, and the list goes on. What we say he CAN do is still joke and laugh. For that, we are happy. Each smile he gives is an indication that he, too, has hope for the future and for this treatment.
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On behalf of Rob and his Family, we would like to reach out to thank everyone who has donated to Roll For Rob.

From Rob and his family: Hello everyone. Once again, I am overwhelmed with the outpouring of love and support. To be able to thank each of you individually would take forever, but to me and my family, that is actually an amazing thing. It is amazing because it is a reminder that when life gives you an insane amount of awfully sour lemons, there is a community of people who come together to support a good friend and his family to help make the biggest pitcher of lemonade ever. Just knowing that you care goes beyond words. Thank you so very kindly for your support in this ALS journey. We can’t begin to tell you how much we appreciate your donations to Roll For Rob. "
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Roll for Rob Round 2
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$23,443 of $30,000 goal

Raised by 326 people in 14 months
Created July 17, 2017
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TW
$20
Travis Wright
1 month ago
EM
$10
Evan Mansolillo
2 months ago
AS
$1,000
Andy Schrock
2 months ago
KH
$50
KATE HIGGINBOTHAM
3 months ago
CT
$20
Chris Thvedt
3 months ago
LL
$25
Levie LaParle
3 months ago
MR
$50
Mark Renard
3 months ago
HE
$20
Hazen Emerson
3 months ago
EA
$100
ELIZABETH ALLANCORTE
3 months ago
$100
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3 months ago
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