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Rick Cusick Needs Your Help

$23,989 of $25,000 goal

Raised by 199 people in 8 months
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It's been well over a month since I did a medical update or pitched the Go-Fund-Me page. I decided to give it a break until I had a real update to give. I went to the doctor's on Thursday and now have some answers, most of which are very good. The Hep C seems to be cured - still have cirrhosis but w/out the Hep there's a good chance my lifetime will be extended somewhat and I don't need a transplant at this time. That said, I still have weakness & fatigue and my memory issues have gotten worse. Probably have to live with the fatique and weakness - That's okay - but I have to go to a neurologist this week for the memory loss... and then go into the hospital for hernia surgery soon as I can schedule the surgeon. There's more but that's the gist of it. The Big Stuff is mostly cool. But the memory thing - Hepatic encephalopathy - isn't going away. (Comically, it took me 3 trys the other night before I remembered I was making dinner. Burned two meals, one after the other, until I got it right.) . I am $1700 away from reaching my goal. Please help me reach that If you can donate comfortably. Any amount helps. Thanks in advance for your support.
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I've been taking this new drug, Mavyret for about 5 weeks now and I went to my doctor this week to get the first comparitive test results. HOLY CRAP! THERE'S NO MORE HEP C IN MY BLOOD! It was there three weeks ago but it's gone now! I still have many challenges ahead but any road that leads to a transplant cure starts with the words "There is no more HEP C in your blood!" and I heard those words this week! "It's working," the doctor said. I have seven more weeks of Mavyret to go before we do a transplant evaluation. One step at a time. I still need your financial help to get through this period. So please donate if you can and share this post as much as possible. To those of you who have already given in so many ways, you should know that I believe that I wouldn't be here hoping today without your help. The situation this winter was a lot dicey than Iet on. We're past that now. This is turning around. I can feel it! Prime example: this week I played music and sang for the first time in 5 months! My voice was as strong as ever! I thought I was never going to sing like that again. t's spring! Time for rebirth! Thanks for everything.
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Hi Everyone, I was going to do an update a few days ago, but fate intervened. I live on the second floor of a house and my daughter had to go to Baltimore for a week. Early Thursday morning the doorbell rang - My fancy medicine was due to e delivered again so I got out of bed, hurried to the door, got to the landing and my legs gave out, just buckled, and I rolled down the stairs like a sack of potatoes. I'm okay but I got pretty banged up. Four or five lacerations and a skinful of bruises. I have no bounce back left so I've been on the couch slowing mending for a few days. That which does not kill me makes me more annoyed.
So I didn't post the update I wanted to post, about going through this shit mentally and spiritually as well as physically, about being lucky and refusing to feel sorry for yourself… but I'm still on the couch licking my wounds. I'll post that update in a day or two. In the meantime, the Eternal Begathon - which I hate! Hate!, Hate! - continues. I had to increase the goal amount again because I made the first one up without thinking. I'll need help getting through the next ten weeks while I wait for the Mavyret to kick in… But this week's immediate financial crisis is brought to you by Public Service Electric & Gas {"Making Things Work For You!!") where the winter bills have piled up and the shut off notice comes due this week. Please donate if you can and share this post among your friends. I really do hate the Begathon shit, but I am overwhelmed and sustained by the extraordinary show of love and support that I have found on this forum. It almost makes getting cirrhosis worth it… Almost.
I love, love, love you all! Please never forget that. r
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"Do I Look Like The Kind of Guy That Has A Plan?"

Well, The Joker really did have a plan, didn't he? So it should come as no surprise that I have one too. Let's hope mine works out better than his.
The complicating factor for me is that five months ago, when I was diagnosed with late stage cirrhosis I asked the obvious question and I was told "Without treatment? A year, maybe two." Treatment was a $90,000. miracle drug which I didn't think my insurance would cover so, yeah… You do the math. Tick… tick… tick…
Then I got accepted for a brand new analogue of the meds at half the price, and I've been taking Mavyret for about two weeks now, two out of twelve weeks total. I've been having either symptoms or side-effects or both, I'm not sure which is which. It's been a lousy week. One thing which is definitely a symptom is my rapidly eroding thought process. I was tested for and am now diagnosed with the onset of septic encephalopathy, which is rapidly getting worse and is scary as shit: memory loss and a loss of cognition approaching dementia because of the late stage complication. I put my daughter on the New York bus the other day, stowed her suitcase underneath, kissed her goodbye and watched the bus leave. After a two-minute walk home, I called the bus company and asked when the bus was coming. Didn't remember what happened until I called Dylan and she told me she was on the bus.
So there's ALOT riding on this treatment. I'm in a race between my meds kicking in or the disease taking over and doing its thing in the near future. I'm told that if the meds work out (90% chance), it will control the cirrhosis and give me more time (3 to 5 years maybe) to look for a transplant; and if the meds work it will cure the Hep C that is the cause of the cognition problem. I also have high-end alternative treatments at my ready disposal which I believe in completely; but I have to take this carefully, step-by-step. I'll write more about this unspoken choice people like myself are commonly faced with: an immediate life or death decision between conventional and alternative cures, a mutually-exclusive decision. What would you do? I'll tell you this. You really don't know what you would do until the choice is real.
So that's the plan, and I have ten weeks to get to the next step, whatever that is. I can't work during this period for several reasons (Dementia! Really?)… so I still need to ask for your financial help while I go through this. There is an end in sight. Even if it's bad news, I am eligible for Social Security and Medicare in July. I'll know my prognosis long before that. I'm just jumping from lily pad to lily pad until I get to a solid spot.
So if you CAN donate, PLEASE DO. The assistance is sorely needed. The wolves are at the door. But if you can't, i understand. then please share this post as much as you can. And Stay Tuned. I'll be updating more regularly on these subjects with some interesting observations. I've learned that stopping learning can kill you. And please know I love you all. Thanks for all the help.
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$23,989 of $25,000 goal

Raised by 199 people in 8 months
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DR
$500
Daniel Roos
4 days ago
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Zack Lapid
7 days ago
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7 days ago
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8 days ago
SB
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RM
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8 days ago
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1 month ago
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$55
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