Imagine how this would change your everyday life. How would Thanksgiving dinner, Christmas dinner, Sunday brunches, a spontaneous stop at McDonald’s drive-through or a shopping trip, (without planning ahead, making sure you have enough nutrition packed and chilled with you to allow for that). I write all this not for any pity for this family because that is the last thing they would want for them or their son. They have exhibited such determination and strength as a family to make a difference for others affected with this same disorder along the way.
Mike & Stephanie, Remington’s parents, have brought Rem up to look beyond the obstacles in his life and persevere to live normal in a not so normal reality. His focus has been playing baseball, preparing himself for college and working part time at Publix. But normal stops at food. Rarely will you find the family dining out or making a fast food run. Food is not the focus with this family because they realize there is much more to life than that now.
In spite of coping with this disease and managing all of the medical expense they encounter with their trips to Cincinnati Children’s Hospital Eosinophilic Clinic, the Walls have been able to financially take Remington’s condition on themselves, with the help of insurance coverage. Up until now.
The reason for this post:
This year, however, the insurance company is no longer covering Remington’s formula. After 12 years the coverage is no longer available. Of course, Stephanie and Mike are continuing to present their case to change that ruling by the insurance company and to now work on changing legislation that would mandate insurance companies cover life sustaining elemental formula for all that need it. However, in the meantime, Remington’s nutrition remains uncovered by any insurance. You might be thinking – how much could a little juice box cost? The estimated costs for Remington’s only source of sustenance is $2,500.00 a month through a home health care provider or $1,900.00 if ordered directly from the manufacturer. For most Americans that is a mortgage payment. That’s a hefty price tag over the course of a year.
As a family, they did not want to start a “Go Fund Me” project. However, as their friends, we can see this family is trying to cope with a financial hardship that will not be sustainable.
As their friends, we are asking if you would pledge whatever you are able to help the Walls cover a very “not so normal” expense. If you can’t financially support this project, please pray for provision and help us spread the word- share Rem’s story, post it, tweet it, text it. The family is working on trying to change the legislation to mandate such coverage of elemental formula for all. If you are interested in helping with the legislation efforts we ask that you pray for guidance, encouragement and determination as they proceed down this path. To learn more about eosinophilic disorders, please visit HYPERLINK "http://www.apfed.org" www.apfed.org. You can see Remington’s story on HYPERLINK "http://www.apfed.org" www.apfed.org, click on resources, then on patient stories and scroll to the bottom. Thank you and God Bless.
Our family is so incredibly awed by your generosity. We have been moved to tears by your overwhelming support! This was a battle we were not able to carry or fight ourselves and so we thank you from the bottom of our hearts for your encouragement! Pride sometimes has a way of interfering when help is needed. Through your graciousness, we are humbled! We are just in the beginning stages of pursuing legislation that will hopefully mandate coverage however, this will be a long road to travel. We ask that you keep posting, tweeting, texting, chatting it up so together we can ALL make a difference! Thank you for your love, it's been an amazing inspiration to our family!
Sorry, your family is dealing with this. Your friends and family need to take to Twitter and share your news story and make sure all your friends and family use the #AnthemBlueCrossBlueShield and #frontiercommunications. You need to get the insurance companies attention, I have seen this work before. Hashtagging your local lawmakers in the post is a good idea also. Good Luck
We wanted to give an update to our insurance battle. To clarify, our insurance company is NOT covering our son’s formula. Currently, we have a reprieve, because a private source has agreed to help pay for the formula for just the remainder of this year. Our family is once again speechless and so thankful by your outpouring of support! We believe that we are to be the voice for the voiceless in our pursuit to change legislation regarding elemental formula. We are not able to take this fight on alone and your generosity has helped us gain a much needed peace. Our mission as a family is to not allow any other family to suffer at the hands of big corporations any longer. There is no comparison for a dollar amount to ever be placed on a life. Every life is precious no matter the cost to insure. God has truly brought us to our knees so that we may glorify Him in this mission. When we felt completely helpless and hopeless, your generosity reinforced that we were on the right path. We have much to learn in terms of legislative efforts but again we have been blessed in the contacts that have been made so far. We are just an average American family and like most of you, we believe in God, hard work, integrity and speaking out against what is wrong. Please continue to share our story and most importantly pray.
Weekend challenge: Skip the Mc! Prayerfully povide for Remington Walls by skipping your trip through McDonald's this weekend. Please see his story & donate at: http://allergicliving.com/2017/03/17/teen-with-eoe-allergy-denied-coverage-for-formula-his-only-nutrition-source/ be blessed by blessing others!
I work for the company that makes your Splash. Please contact me so I can provide some additional resources that may help.
Jeremy - Thanks so much for the suggestion. For some families the neocate.com is part of their solution. However, for Remington's family, they don't meet the requirements for this source of help. Every situation is different, so I really appreciate your suggestion of additional resources. Be Blessed!