Remington Walls

$17,912 of $40k goal

Raised by 269 people in 1 month
Janeen Salzgeber  LAND O LAKES, FL
Think about what you had for breakfast, lunch and dinner today? Has there ever been a time when all you could eat would be a single flavor medically prescribed drink to sustain your life? I think most of us would say no. Remington Walls would say yes. Every single meal or snack, of every single day for the last 13 years he has had the same drink. He has been diagnosed with a rare disease called Eosinophilic Esophagitis (EoE) in which he is allergic to all foods. His reality is that he cannot eat any food other than this single flavored “amino acid elemental formula”. Over the 13 years since his diagnosis, the family has tried food trials, all with the same result…Remington will vomit, cough, gag and experience pain till the point where he has to be hospitalized. Remington has lived this life since he was 4, taking his prescribed drink every 2 hours.
Imagine how this would change your everyday life. How would Thanksgiving dinner, Christmas dinner, Sunday brunches, a spontaneous stop at McDonald’s drive-through or a shopping trip, (without planning ahead, making sure you have enough nutrition packed and chilled with you to allow for that). I write all this not for any pity for this family because that is the last thing they would want for them or their son. They have exhibited such determination and strength as a family to make a difference for others affected with this same disorder along the way.
Mike & Stephanie, Remington’s parents, have brought Rem up to look beyond the obstacles in his life and persevere to live normal in a not so normal reality. His focus has been playing baseball, preparing himself for college and working part time at Publix. But normal stops at food. Rarely will you find the family dining out or making a fast food run. Food is not the focus with this family because they realize there is much more to life than that now.
In spite of coping with this disease and managing all of the medical expense they encounter with their trips to Cincinnati Children’s Hospital Eosinophilic Clinic, the Walls have been able to financially take Remington’s condition on themselves, with the help of insurance coverage. Up until now.
The reason for this post:
This year, however, the insurance company is no longer covering Remington’s formula. After 12 years the coverage is no longer available. Of course, Stephanie and Mike are continuing to present their case to change that ruling by the insurance company and to now work on changing legislation that would mandate insurance companies cover life sustaining elemental formula for all that need it. However, in the meantime, Remington’s nutrition remains uncovered by any insurance. You might be thinking – how much could a little juice box cost? The estimated costs for Remington’s only source of sustenance is $2,500.00 a month through a home health care provider or $1,900.00 if ordered directly from the manufacturer. For most Americans that is a mortgage payment. That’s a hefty price tag over the course of a year.
As a family, they did not want to start a “Go Fund Me” project. However, as their friends, we can see this family is trying to cope with a financial hardship that will not be sustainable.
As their friends, we are asking if you would pledge whatever you are able to help the Walls cover a very “not so normal” expense. If you can’t financially support this project, please pray for provision and help us spread the word- share Rem’s story, post it, tweet it, text it. The family is working on trying to change the legislation to mandate such coverage of elemental formula for all. If you are interested in helping with the legislation efforts we ask that you pray for guidance, encouragement and determination as they proceed down this path. To learn more about eosinophilic disorders, please visit HYPERLINK "http://www.apfed.org" www.apfed.org. You can see Remington’s story on HYPERLINK "http://www.apfed.org" www.apfed.org, click on resources, then on patient stories and scroll to the bottom. Thank you and God Bless.
+ Read More
Stephanie Walls
1 month ago

Our family is so incredibly awed by your generosity. We have been moved to tears by your overwhelming support! This was a battle we were not able to carry or fight ourselves and so we thank you from the bottom of our hearts for your encouragement! Pride sometimes has a way of interfering when help is needed. Through your graciousness, we are humbled! We are just in the beginning stages of pursuing legislation that will hopefully mandate coverage however, this will be a long road to travel. We ask that you keep posting, tweeting, texting, chatting it up so together we can ALL make a difference! Thank you for your love, it's been an amazing inspiration to our family!

+ Read More
Penny McGu
1 month ago
4
4

Sorry, your family is dealing with this. Your friends and family need to take to Twitter and share your news story and make sure all your friends and family use the #AnthemBlueCrossBlueShield and #frontiercommunications. You need to get the insurance companies attention, I have seen this work before. Hashtagging your local lawmakers in the post is a good idea also. Good Luck

+ Read More
Jim Salzgeber
1 month ago
3
3

I'd like to challenge ALL HEALTH CARE PROFESSIONALS to contribute to this. Please keep sharing!

+ Read More
Lindsey Nichole Gricoski
1 month ago
3
3

I can only donate a small amount now but my next paycheck I will donate more!!

+ Read More
Kloee Cirasuolo
1 month ago
2
2

Everyone please donate! Anything counts❤

+ Read More
Jeremy Brant
1 month ago
2
2

I would recommend the family look into reimbursement programs such as these, if you haven't already: http://www.neocate.com/reimbursement/other-reimbursement-programs/

+ Read More
Stephanie Walls
1 month ago
1
1

We wanted to give an update to our insurance battle. To clarify, our insurance company is NOT covering our son’s formula. Currently, we have a reprieve, because a private source has agreed to help pay for the formula for just the remainder of this year. Our family is once again speechless and so thankful by your outpouring of support! We believe that we are to be the voice for the voiceless in our pursuit to change legislation regarding elemental formula. We are not able to take this fight on alone and your generosity has helped us gain a much needed peace. Our mission as a family is to not allow any other family to suffer at the hands of big corporations any longer. There is no comparison for a dollar amount to ever be placed on a life. Every life is precious no matter the cost to insure. God has truly brought us to our knees so that we may glorify Him in this mission. When we felt completely helpless and hopeless, your generosity reinforced that we were on the right path. We have much to learn in terms of legislative efforts but again we have been blessed in the contacts that have been made so far. We are just an average American family and like most of you, we believe in God, hard work, integrity and speaking out against what is wrong. Please continue to share our story and most importantly pray.

+ Read More
Janeen Salzgeber
1 month ago
1
1

IF YOU HAVE A TWITTER ACCOUNT!!! Please tweet this to the following: Gov Rick Scott Pam Bondi Justin Senior, Secretary at Florida's Agency for Health Care Administration Richard Corcoran Gus Bilirakis Marco Rubio On your mark, get set, GO!

+ Read More
Adam DeLuca
1 month ago

I work for the company that makes your Splash. Please contact me so I can provide some additional resources that may help.

+ Read More
Janeen Salzgeber
26 days ago

Just a little request for a HUGE God…in the weeks leading up to the start of this Go Fund Me campaign two “regular” parents were trying to figure out how the heck to feed their kid- and they were totally and utterly at a loss. They prayed. In just days, things began to change. Over the very short time that Remington's story has been told publicly, God had paved roads and opened doors that Stephanie and Mike didn’t even know they would need. They give it all to God’s amazing power of provision and wisdom. God is helping to move mountains. I received counsel from a sister in Christ, who herself, had already been through a similar struggle, “There is nothing that our God cannot accomplish with a snap of His finger, this is just like busy work for Him. All he wants is to be glorified throughout this and His will to be obeyed”. So, I’m boldly calling to all believers in Jesus Christ, to raise this family up in prayer, just as soon as you read this post. Please pray for the path to be made clear and straight, not just for Rem, but of all who need elemental formula. Also pray that God will use “regular” people to help. I encourage everyone to keep one eye on this story and be ready to be amazed because God’s going move a mountain and we will glorify the Lord. Romans 5:1-5

+ Read More
Janeen Salzgeber
1 month ago

Weekend challenge: Skip the Mc! Prayerfully povide for Remington Walls by skipping your trip through McDonald's this weekend. Please see his story & donate at: http://allergicliving.com/2017/03/17/teen-with-eoe-allergy-denied-coverage-for-formula-his-only-nutrition-source/ be blessed by blessing others!

+ Read More
Janeen Salzgeber
1 month ago

Jeremy - Thanks so much for the suggestion. For some families the neocate.com is part of their solution. However, for Remington's family, they don't meet the requirements for this source of help. Every situation is different, so I really appreciate your suggestion of additional resources. Be Blessed!

+ Read More

$17,912 of $40k goal

Raised by 269 people in 1 month
Created March 3, 2017
MS
$10
Michelle Spreadbury
25 days ago
1
1
NH
$10
Nick Harborne
25 days ago
1
1
CM
$20
Cintra Marks
25 days ago
1
1
$10
Anonymous
25 days ago
1
1
LD
$10
Luis Diaz
26 days ago
1
1

I'm skipping McDonald's tomorrow. You need this more than I. Wish you many blessings and success in life.

AM
$100
Anneli Metrosky
26 days ago
1
1

Go Gators!

JR
$100
Joe Ricardo
26 days ago
SH
$50
Susan Harrison
26 days ago

Wishing you well and keeping good thoughts for you and your family.

$50
Andrew Nappi
26 days ago
$50
Anonymous
27 days ago
1
1
Stephanie Walls
1 month ago

Our family is so incredibly awed by your generosity. We have been moved to tears by your overwhelming support! This was a battle we were not able to carry or fight ourselves and so we thank you from the bottom of our hearts for your encouragement! Pride sometimes has a way of interfering when help is needed. Through your graciousness, we are humbled! We are just in the beginning stages of pursuing legislation that will hopefully mandate coverage however, this will be a long road to travel. We ask that you keep posting, tweeting, texting, chatting it up so together we can ALL make a difference! Thank you for your love, it's been an amazing inspiration to our family!

+ Read More
Penny McGu
1 month ago
4
4

Sorry, your family is dealing with this. Your friends and family need to take to Twitter and share your news story and make sure all your friends and family use the #AnthemBlueCrossBlueShield and #frontiercommunications. You need to get the insurance companies attention, I have seen this work before. Hashtagging your local lawmakers in the post is a good idea also. Good Luck

+ Read More
Jim Salzgeber
1 month ago
3
3

I'd like to challenge ALL HEALTH CARE PROFESSIONALS to contribute to this. Please keep sharing!

+ Read More
Lindsey Nichole Gricoski
1 month ago
3
3

I can only donate a small amount now but my next paycheck I will donate more!!

+ Read More
Kloee Cirasuolo
1 month ago
2
2

Everyone please donate! Anything counts❤

+ Read More
Jeremy Brant
1 month ago
2
2

I would recommend the family look into reimbursement programs such as these, if you haven't already: http://www.neocate.com/reimbursement/other-reimbursement-programs/

+ Read More
Stephanie Walls
1 month ago
1
1

We wanted to give an update to our insurance battle. To clarify, our insurance company is NOT covering our son’s formula. Currently, we have a reprieve, because a private source has agreed to help pay for the formula for just the remainder of this year. Our family is once again speechless and so thankful by your outpouring of support! We believe that we are to be the voice for the voiceless in our pursuit to change legislation regarding elemental formula. We are not able to take this fight on alone and your generosity has helped us gain a much needed peace. Our mission as a family is to not allow any other family to suffer at the hands of big corporations any longer. There is no comparison for a dollar amount to ever be placed on a life. Every life is precious no matter the cost to insure. God has truly brought us to our knees so that we may glorify Him in this mission. When we felt completely helpless and hopeless, your generosity reinforced that we were on the right path. We have much to learn in terms of legislative efforts but again we have been blessed in the contacts that have been made so far. We are just an average American family and like most of you, we believe in God, hard work, integrity and speaking out against what is wrong. Please continue to share our story and most importantly pray.

+ Read More
Janeen Salzgeber
1 month ago
1
1

IF YOU HAVE A TWITTER ACCOUNT!!! Please tweet this to the following: Gov Rick Scott Pam Bondi Justin Senior, Secretary at Florida's Agency for Health Care Administration Richard Corcoran Gus Bilirakis Marco Rubio On your mark, get set, GO!

+ Read More
Adam DeLuca
1 month ago

I work for the company that makes your Splash. Please contact me so I can provide some additional resources that may help.

+ Read More
Janeen Salzgeber
26 days ago

Just a little request for a HUGE God…in the weeks leading up to the start of this Go Fund Me campaign two “regular” parents were trying to figure out how the heck to feed their kid- and they were totally and utterly at a loss. They prayed. In just days, things began to change. Over the very short time that Remington's story has been told publicly, God had paved roads and opened doors that Stephanie and Mike didn’t even know they would need. They give it all to God’s amazing power of provision and wisdom. God is helping to move mountains. I received counsel from a sister in Christ, who herself, had already been through a similar struggle, “There is nothing that our God cannot accomplish with a snap of His finger, this is just like busy work for Him. All he wants is to be glorified throughout this and His will to be obeyed”. So, I’m boldly calling to all believers in Jesus Christ, to raise this family up in prayer, just as soon as you read this post. Please pray for the path to be made clear and straight, not just for Rem, but of all who need elemental formula. Also pray that God will use “regular” people to help. I encourage everyone to keep one eye on this story and be ready to be amazed because God’s going move a mountain and we will glorify the Lord. Romans 5:1-5

+ Read More
Janeen Salzgeber
1 month ago

Weekend challenge: Skip the Mc! Prayerfully povide for Remington Walls by skipping your trip through McDonald's this weekend. Please see his story & donate at: http://allergicliving.com/2017/03/17/teen-with-eoe-allergy-denied-coverage-for-formula-his-only-nutrition-source/ be blessed by blessing others!

+ Read More
Janeen Salzgeber
1 month ago

Jeremy - Thanks so much for the suggestion. For some families the neocate.com is part of their solution. However, for Remington's family, they don't meet the requirements for this source of help. Every situation is different, so I really appreciate your suggestion of additional resources. Be Blessed!

+ Read More
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now

Pledge now, give later.

Pledge Now
You won't be charged for this pledge. We'll let Janeen know that you have pledged support.
Thank you!
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.