Raising for Rene
Donation protected
Mystery illness
Full of life and humour was this vibrant marketing executive, sports journalist and father, Rene Stoby, until that joy was ripped away by a mystery illness two years ago.
Rene started experiencing muscular spasms, which slowed down his mobility and affected his speech. The muscle spasms were extremely painful and it especially affected his left arm, which started seizing in an almost right angle.
Doctors in Guyana were baffled at first but then diagnosed Parkinson's Disease and then later ASL or Lou Gehrig’s Disease.
In July of 2017; however, he was seen by doctors at Montefiore Medical Center in New York. After over two weeks in hospital and many tests, Parkinson's and ALS were ruled out; however, the doctors could not make a certain diagnosis.
Rene has since lost the ability to walk properly on his own, has completely lost the use of his left arm, and his speech is now completely gone.
His mental faculty; however, is in perfect order and he is able to communicate via text/WhatsApp messages.
His condition continues to deteriorate and we fear the worst...Rene is more worried about his 6- year-old son, who amazingly has been so loving to his dad despite seeing him in that condition.
We are now desperate to have Rene taken overseas at a specialty hospital in search of a diagnosis/treatment.
The costs for evaluation and personalised treatment will be around US$12,000.
We pray that you find it in your heart to help this young man come up with the required amount to get the urgent medical attention required to possibly return his good health and jovial personality.
His family, friends, and most importantly, his 6-year-old son Javier, will be most grateful for any assistance rendered to help him reach his target.
Full of life and humour was this vibrant marketing executive, sports journalist and father, Rene Stoby, until that joy was ripped away by a mystery illness two years ago.
Rene started experiencing muscular spasms, which slowed down his mobility and affected his speech. The muscle spasms were extremely painful and it especially affected his left arm, which started seizing in an almost right angle.
Doctors in Guyana were baffled at first but then diagnosed Parkinson's Disease and then later ASL or Lou Gehrig’s Disease.
In July of 2017; however, he was seen by doctors at Montefiore Medical Center in New York. After over two weeks in hospital and many tests, Parkinson's and ALS were ruled out; however, the doctors could not make a certain diagnosis.
Rene has since lost the ability to walk properly on his own, has completely lost the use of his left arm, and his speech is now completely gone.
His mental faculty; however, is in perfect order and he is able to communicate via text/WhatsApp messages.
His condition continues to deteriorate and we fear the worst...Rene is more worried about his 6- year-old son, who amazingly has been so loving to his dad despite seeing him in that condition.
We are now desperate to have Rene taken overseas at a specialty hospital in search of a diagnosis/treatment.
The costs for evaluation and personalised treatment will be around US$12,000.
We pray that you find it in your heart to help this young man come up with the required amount to get the urgent medical attention required to possibly return his good health and jovial personality.
His family, friends, and most importantly, his 6-year-old son Javier, will be most grateful for any assistance rendered to help him reach his target.
Organizer
Reuben Stoby
Organizer
Parking, NY
