Butterflies For Khloe

$16,165 of $15,000 goal

Raised by 277 people in 35 months
Hello Everyone I'd like you to meet "Khloe" and her beautiful parents Matt & Jess. We are hoping that you can help "This Beautiful Family" they are already feeling the financial crunch of travel expenses, loss of time from work so both parents can be by her side and they are going to need so much help in the months to come as there are so many unknowns with Khloe and her long road to recovery. (please read her story below) We need your HELP!

We will be having fundraising events (Butterflies For Khloe) but we are hoping by having a Go Fund Me page for Khloe and her family we can take off the burden of financial strain and they can be with their daughter & not worry about paying bills at home and for her ongoing care.

I had the pleasure of meeting this family back in the spring of 2015 as I did family photos for them. (I'm a photographer and now the spokesperson for this family and they could really use your help) I was instantly drawn to these people and quickly noticed they weren't just people behind the lens but a family that had a bond far beyond what I had ever seen. This is when I first met little Khloe, she was always smiling, content and happy and a perfectly "healthy baby" . The one thing I did take notice to instantly is when her mama put her down to get her photos taken she wasn't a baby I had to chase back and fourth and run after. This had been brought up by Khloe's parents at a number of doctors appointments and they were always told she's healthy, thriving, and a little bit of a pork chop with those big Gerber Baby cheeks and thighs to match. Drs. said she was a late crawler so perhaps she will be a late walker but other then that there was nothing to worry about! This went on for awhile the back and fourth with Drs., and in the mean time I met them again in early winter for a 2nd photo shoot. Again Khloe was not walking and now no longer even supporting herself in the standing position. Finally she was sent to a Pediatrician at the hospital in her home town of Peterborough Ontario Canada.

On December 24th 2015 Khloe's nervous parents sat in the hospital for hours while the Pedeatrician assessed Khloe and completed test after test. He then delivered the news no parent ever wants to hear. There is something seriously wrong with your baby, he was very concerned and said go home and have Christmas but Boxing Day you are to go to Sick Children's Hospital this is "Serious". Nothing any parent would ever want to hear let alone the day before Christmas.

So began Khloe's journey to Sick Kids Hospital in Toronto: Boxing Day 2015 Khloe was transferred to sick kids hospital for an urgent MRI to determine why she couldn't use her legs. After hours in the emergency department, doctors decided it would be best to admit Khloe and monitor her ongoing before her MRI. Preceeding her MRI, she had to have blood work. Being a baby, her veins were so hard to find after 3 attempts they decided to wait for the specialist team to conclude the blood work tests. Khloe had a specialist team come and start an IV on her. Khloe was put under anaesthetic and underwent an MRI on her spine and brain. December 27th we learned Khloe has what's called an "Arachnoid cyst". An Arachnoid cysts that developed in her spinal canal. This cyst is stretching 7 vertebra (T2-T9) in the middle of her back. The cyst is putting pressure on her spinal cord blocking the messages from her brain to her legs, making Khloe unable to use her legs. Khloes case is very "RARE" . Arachnoid cysts are hardly ever found in spinal canals. Neurologists and neurosurgeons met to determine what the best plan was. Back and forth to sick kids Khloe has had to have genetic DNA testing, never ending blood work, a EMG test (electromyography)- which is a way to test how her muscles and nerves are working together. Needles were placed into Khloe's muscles determining what muscles in her legs were functioning properly. She also had to undergo a nerve conduction study, this shows how well electrical impulses travel through the nerves of the body. Electric shocks were transferred through two pieces of tape attached to Khloe on different parts of her legs. Khloe has muscle wasting, and it was clear that messages aren't getting to her legs.

As Khloe is quickly beginning to lose any type of independent mobility, neurosurgeons have decided Khloe needs spinal surgery. Khloe's surgery is February 2.
Sadly on January 26th 2016, Khloe's surgery was cancelled and we found out the devastating news that she tested positive for SMA (Spinal Muscular Atrophy) and was unable to have this surgery. This was a huge set back and Khloe will need ongoing care with hopes of finding her the treatment she will need. Currently there is NO CURE for SMA and this disease can and has been fatal in babies and children. I will continue to keep this GFM page running, aqlong with all other fundraising events with hopes that we find a cure for Khloe and all the other now much needed support this family will greatly need . (Sorry for the late update to this area of the page) although the public has been kept up to date on Khloe's Facebook page which you can find here. 
https://www.facebook.com/Butterflies-For-Khloe-1548767008782750/

Thank-you to everyone for their incredible support, we are so grateful to every single person that donated and continue to support and donate to Khloe (Feb 15, 2016)
We reached our Goal of 15 000.00 you are all a Blessing!


Our goal is to raise as much as possible, to help Khloe and her family during this critical time. Thank-you Matt, Jess, Khloe
c/o Sheri Reed
Also very important a "TRUST ACCOUNT" has been set up in the name of Khloe A. Madgett and her daddy's name Matthew Madgett at the TD Canada Trust so at anytime you can go to any TD Canada Trust and make a donation this way also !!


+ Read More
This is the most incredible feeling, thank-you so much to every single person that helped during this last 20 days you made all my dreams come true by helping me help this family . I am beyond words of gratefulness what a perfect way to celebrate "Family Day" by reaching our goal to help this FAMILY!!! You are all so amazing and I feel beyond "Blessed" xoxo
WE DID IT~THANK-YOU!
+ Read More
So much has been going on SO MANY people to THANK!! "All of YOU" if it weren't for every single person that has donated or given something for our auction, other business's holding fundraisers for us or a business that has given their services, where would we be? Look at what this community has done! Just LOOK!! you are all HEROES you have dug into your pockets searched into souls and thought with your hearts and you made this dream of mine and idea come true! And for this I am GRATEFUL . When this all started I said to my daughter wouldn't it be nice if I could raise just 500.00 for them so they had gas money or parking money for Sick Kids and then my BIG dream was 1000.00 so that they could have a little extra to possibly be able to make up for a day or two's loss of work while going to the hospital . You don't know how many times I have cried and sobbed like a baby during all of this, how many times I have thought to myself how can this be possible and then HOW am I ever going to Thank all of these people for everything they have done for this family and for my little "Butterfly Khloe"? I have been thanked many times but its not me I didn't do this you did! I just asked that's all , you should be so proud of who you all are because even if you didn't give something like money or other type of donation, but you gave words of encouragement that goes a long way when you do something like this. When your tired or you feel like giving up you get someone sending you a letter at midnight saying "Hey your pretty special " you HELPED!! We are almost there, and we have so many more things going on big Bigger and BIGGER. We have our ongoing Boston Pizza right now collecting just write Khloes name on the back of your receipt and 10% goes to her, on Feb. 19th we have Chapters Day for Khloe and you can come meet the family so they can thank all of you, and starting March 1st we have our online auction with all the items that have been donated . I'm proud of you and Thank-you Much Love Sheri
Butterflies 4 Khloe "Thank-you From Me!
+ Read More
The family has asked me to Thank each and every single person that has donated and showed out pouring support they are beyond words to express their thankfulness.

Yesterday they made another trip to Sick Kids Toronto,
Sadly they received the worst news Khloes surgery has been cancelled
and after talking with a team of Specialist, Drs. and family counselors, they
were given the devastating news that their daughter Khloe tested positive for

SMA ~ Spinal Muscular Atrophy ~ There is no Cure.
Khloe will face many obstacles and challenges and so will her wonderful parents.
They are completely heart broken hearing this very sad news.
Please continue to support this family they will now need to spend every second with
their precious baby and need your support more then ever.

c/o : Sheri Reed
+ Read More
I just wanted to take this time to thank everyone that has donated to this family thus far. You are all truly incredible I'm beyond words to express my gratefulness this just continues to grow by the minute and I'm humbled as I am sure Jess, Matt and Khloe are. We would also like to share that the family did go to Sick Kids today and we will share more with all of you soon. Please know that we are still very much in need of support so continue to share the link and spread the word. This family really does need your prayers and your help more then ever now and I ask if you have any questions to please contact me so the family can have just a wee bit of time to take everything in from today's hospital visit. You can message me privately .
Much Love to you ALL for your generosity !
Thank-you all, Love Khloe & Family xo
+ Read More
Read a Previous Update
Shayna Glover-McGregor
34 months ago
2
2

Could you please get on touch with me when you are having the next fundraiser Id like to donate a basket!

+ Read More
Madelaine Mossor
34 months ago
1
1

Thank you Sheri for setting this up, I'm Khloe's aunt and since finding this have regularly checked in with it. My family and I appreciate all of the support from everyone. I don't live in town so it's hard to have my sister go through this without physically being there.

+ Read More
Kathy Lisle
35 months ago
1
1

Thanks for the update, Sheri. very sorry to hear this news because they are such a wonderful family. We've sent a cheque because I think 'fundme' keeps a small percentage of the money. It's good that they've set up the trust account too. Thanks for organizing all this - the family has enough to deal with and it's wonderful that you are such a huge support. kathy & harry

+ Read More
Natasha Anthony
35 months ago
1
1

I'm so sorry jess and Matt. .. I will help out as soon as I can. I'm praying for baby. Stay strong you guys. Your amazing!!! Xoxo

+ Read More

$16,165 of $15,000 goal

Raised by 277 people in 35 months
Created January 25, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
JA
$50
Jane Argent
27 months ago

Best wishes for the future.

ID
$100
ISAIAH DELCIANCIO
29 months ago

You are in our thoughts and prayers.

DL
$50
Denis Lagace
32 months ago
1
1

We are thinking of you and we wish you strength during these difficult moments. Denis Lagacé, Liette Lavigne and family

JM
$500
Jo-Anne McInroy
34 months ago
2
2

We are praying for good news. Jo and Jeff xoxo

Shayna Glover-McGregor
34 months ago
2
2

Could you please get on touch with me when you are having the next fundraiser Id like to donate a basket!

+ Read More
Madelaine Mossor
34 months ago
1
1

Thank you Sheri for setting this up, I'm Khloe's aunt and since finding this have regularly checked in with it. My family and I appreciate all of the support from everyone. I don't live in town so it's hard to have my sister go through this without physically being there.

+ Read More
Kathy Lisle
35 months ago
1
1

Thanks for the update, Sheri. very sorry to hear this news because they are such a wonderful family. We've sent a cheque because I think 'fundme' keeps a small percentage of the money. It's good that they've set up the trust account too. Thanks for organizing all this - the family has enough to deal with and it's wonderful that you are such a huge support. kathy & harry

+ Read More
Natasha Anthony
35 months ago
1
1

I'm so sorry jess and Matt. .. I will help out as soon as I can. I'm praying for baby. Stay strong you guys. Your amazing!!! Xoxo

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.