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Quinn Brett Recovery Fund

$4,371 of $25,000 goal

Raised by 66 people in 12 months
Last fall we started a crowdfunding page with YouCaring for Quinn, and GoFundMe has since acquired YouCaring.  As a result of the acquisition, and in response your overwhelming and continued support for Quinn in her recovery, we are creating this new crowdfunding page for Quinn.
 
On October 11, 2017, Quinn was climbing the Nose (a 2,900 ft tall route) on El Capitan in Yosemite with her friend Josie. Just under halfway done, Quinn took a big fall while completing a section known as the Boot Flake. She fell an estimated 120 ft and landed in a two-foot-wide gap between a protruding piece of rock, called the Texas Flake, and the main cliff face.  Josie, an experienced technical rescue professional with extensive backcountry medicine experience, immediately notified Yosemite Search and Rescue and facilitated Quinn’s rescue.  

Tom Evans, a Yosemite valley photographer, captured Quinn’s rescue and reported it on his blog:

http://elcapreport.com/content/elcap-report-101117-special-edition-texas-flake-rescue 

Quinn survived the accident with significant injuries; the most significant being a severe spinal cord injury that left her paralyzed from the waist down. 

Since October Quinn has worked HARD, with community support bolstering her determination, to recover.  Click THIS LINK  to see some photos and videos of some of her recent accomplishments.  
 
We continue to raise funds for Quinn to help pay for the long-term expenses related to her care and recovery.

If you prefer to do a direct donation that will avoid the small surcharge that GoFundMe takes, please contact her brother at Cory4Quinn@gmail.com and he will pass along Quinn's paypal information.  All funds raised will be directly applied to Quinn's care. 

Our fundraising goal is based on the current known out of pocket expenses, but it is probable that it will increase once we know more about her long term care plan and associated expenses.
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Update....its been awhile. I find myself slightly resistant with social media and that spills over onto my blog and here. I struggled with that shit before my injury, trying to be a sponsored athlete, not understanding why my achievements weren't enough. Duh, doing cool shit doesn't sell products. ANYWAY. I play the game still. I feel that there is a section of the Universe that ACTUALLY truly cares about my progress; mentally and physically. I appreciate you all and will do my best to keep them coming. I am feeling 180 stronger then last year at this time. My arms are sore and shoulders tired but from over playing as I like to do. My mind is also tired of over planning and trying to do all the things, work, play, email, socialize, and even read a book or two. Currently reading one by Michael Sanford, WAKING and another on attachment theory. Yup. Well at least I have the headspace to enjoy a book instead of that perpetual treading water feeling that I had for the first 9 months or so. Those days still happen from time to time, mostly on the strong nerve pain days. I would LOVE to figure that out. I have tried to detect in many ways or resolve in equally as many. Nothing that helps or really hinders as far as I can tell besides perhaps the mind. Pushing the pain away, not allowing it to exist...even though it is there.
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I was driving up today from my weekly "Denver Day" extravaganza. I still do Physical Therapy at Craig. If I have time in my day, lately I have been adding onto my schedule a "walking" session in an Exoskeleton.

Today, I walked.

After wards I had a CT scan, blood work and some other finishing work for a clinical trial I started participating in while I was still an inpatient at Craig. The study gives either a placebo or a drug they think might help slow down the impending Osteoporosis that us Spinal Cord Injury folk are plagued with.

We sit.

Our muscles don't squeeze the bone. Two things that go against our bones natural tendency to rejuvenate. Today. I learned that one year out, I have lost 25% bone density in my knees and upwards of 30% in my pelvis. The 30% could be more. My right side shows, during a DEXA scan, that it is considerably.....fucked up. Either the machine wasn't reading appropriately because of a Heterotopic Ossification that I acquired March 1 of this year (blood clot). The suggested inaccurate reading could be because my proximal femur has this lovely baseball sized mass. An extra and inappropriate growth of bone in my soft tissue. It butts up right to my pelvis. In the DEXA it looks like it is touching would explain the crunching crepitus sound in my hip joint when I bend over at the waist (while sitting in my chair or on the ground). It also could explain why in the last 2 months my right hip has been popping, like when you crack your finger knuckles.

A loud and unpleasant, unnerving sound.



So that was my day. Emotionally a little draining. The healthy athletic person doesn't want bones that are just shriveling up so fast. I liked taking care of my body. Too bad my mind wasn't on the same page a year ago.



There are things on my list of "To-Do" that have been there for awhile. People reach out....I get busy with shit and don't respond. I am also terrible at asking for help, when I clearly could use some.
SO.....HERE WE GO!!!! I could use some help with random tasks.....

1.) I have been trying to call for a second opinion on my Spine. I have a bone chip in my dura (at least from my vague memory and doctors conversations within the first couple of weeks.) Why wasn't removed on initial surgery? Is that causing nerve pain? Suggestions of second opinions I can reach out to?

2.) Help with the house building process. Advice mostly, if you have experience on loan process for land/building, rolling it over.... hiring a contractor, recycled materials, design?

3.) Hip pads for biking. I don't need butt pads but pads on my hips!! Company who makes something like that?

4.) there was another....but I am spacing. Will remember and EDIT this :)
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I have been slacking. My apologies. I also don't know where I left off, so I will just start spewing......

In May, I started working for the Rocky Mountain Conservancy. The non-profit that raises funds and does projects for Rocky Mountain National Park. I am doing public outreach and social media things currently.

I don't work a ton, as I still drive to Denver every Tuesday to do physical therapy at Craig Hospital. Per Quinn style, I also have a ton of other things churning.

Churning- I wrote that article for Patagonia. If you haven't seen it you can ( https://www.patagonia.com/blog/2018/10/letting-go/)

Books, haven't been reading them too much...although I appreciate the gifts of many! Why? Well, in my spare time I find that I am googling things on Spinal Cord Injuries; clinical trails, current research, UTI's (I have had 2, boo), Heterotopic Ossification (of which the DVT and swollen right leg from March developed, I now have an extra bone mass near the top of my femur. I call it my hot dog bun.)

I email researchers, attempting to get into trials. This Sunday, I will be headed to Miami to see about a few ongoing studies at the Miami Project. I was speaking to the E-Stand project in Minneapolis and hopeful but just today was turned away. My injury level is T12 and the trials are restrictive to T10 and above, unfortunately.
This project is promising, using epidural stimulation and they are hopeful to expand for future projects but..... Many sent me that CNN article regarding, which I have a ton to speak about.

Much of the research for Epidural Stimulation has been around for a decade or more. Similar with A LOT of research projects for us. FDA has already approved the Epidural device, just not for this particular purpose. It is mind boggling how slow and unfunded Spinal Cord Research is. SCI is of the same population numbers as AIDS but research $$ is 9 million and 3 billion respectively. There are many avenues being pursued but few have the money to move past messing around in a lab with rats. If you want to help in anyway, spinal cord research needs to be a topic of conversation. Minnesota and some other states have become louder in this regard, advocating at local levels for little things like speeding ticket fines to include a small percentage to fund SCI research projects. Hence why the Mayo Clinic has a few studies and my home Hennepin County has the E-Stand project. SMALL things ACTUALLY HAPPENING!!!!!!!!!!

I wrote more...but think this is a good stopping point. I appreciate everyones donations and thoughts. ALL SCI folks would appreciate some advocacy for research and funding. WE NEED MORE!!!!

Educate yourself if you find yourself with a free moment.

NOGO Trap: https://www.redbull.com/us-en/theredbulletin/how-wings-for-life-funds-spinal-cord-research

Reeve Foundation Big Idea : https://www.reevebigidea.org/

United to Fight Paralysis: https://u2fp.org/

E-Stand: https://www.estand.org/

Miami Project: https://www.themiamiproject.org/
(Your funds are helping me to travel to Miami next week for some pre-screenings on a few trials, we will see!!!!) THANK YOU!
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Lets see.  Update.   My mood today is mellow. Surprising, as I have been quite angry lately. I am settling into a life rhythm of everyday pain, streaks of loneliness, dabbles of laughter and a 'critical dis-satisfaction of routine.'   

I receive some random but INCREDIBLY kind emails from strangers.  I received one last night that made me laugh.  Thank you.  I am going to share a quote from it......

"My fear is that I might say the wrong thing or too cliche. Yet when I was mulling over, I considered if I were in your shoes, what would I need? The answer, I don’t fucking know, but probably love, support, a handful of bumbling idiots that mean well, one of those friends that is wildly optimistic that you really appreciate but often consider punching in the face, and an actual punching bag."

All of that is true.  

My intentions were to share things about Spinal Cord Injury...I guess I can and still delve further into the feelings mentioned above.


Pain.  Well, to start, physical pain.  It feels like if I were wearing low-rise jeans that are on fire but also compress my legs like a refrigerator.  I am burning all-day-every-day.  When you see me sitting in my chair across the room smiling.....I am also burning and in pain.  Some days it is a 3/10.  Other days it is 7-8/10.  Those days I am obviously more irritable.  

Mental pain.  That is a fucked up one.  I am angry right now.  Angry I went to Yosemite.  Backing into that hindsight of my mood driving out there....heart and mind confused.  I shouldn't have left Estes Park this fall.  I was in the mood to trail run.  I was in the mood to make my home more of home.  I was inappropriately giving space, credit and hope to what I thought were integral parts of my life.  I was wrong....charging away instead of facing them directly.   Josie and I drove up to the Meadow in Yosemite Valley that day conflicted, confused, obligated, habituated.  Dealing with that...moving forward with my decisions, my personality, ME -- is a difficult task. 

Leading to loneliness....or tying into loneliness....and the mundane routine.  I wake up, alone usually still fatigued.  I sleep 3-7 hours a night, depending on the nerve pain levels, muscle spasms (more on those).  I try to swim every other day, at least.  If I swim.  I swim 500-1000 meters.  Nothing fancy as far as 'training' goes.  I go to work for a few hours (Rocky Mountain Conservancy...not National Park Service).  Tuesdays I drive down to Denver, leave the house at 7am, do some PT, have meetings, get a massage (usually), home by 8pm.  Off to bed, alone.  I am not afraid of alone, in the moment.  I miss particular partner comforts of the past.  Something that the future should give hope to, but I don't accept myself currently...so how would anyone else.  

I am cynical of the new routine.  Impatient.  Surprise surprise.   I have a few friends who have rallied to do st(roll)'s around the basic lakes of Estes Park; lily, sprague, bear and lake estes.  A few trails have been explored as well.  I still wait for my bike, news is it is JUST finished!  

I miss being red in the face and breathless from running uphill.  





  
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$4,371 of $25,000 goal

Raised by 66 people in 12 months
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